Autism Therapy: control

definition of control: As in scientific control. An untreated condition or group in a scientific study or experiment that is used to compare the treated condition or group, and to observe possible changes that occur because of the treatment. Well-designed experiments and studies use good controls.

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Behavior Modification, by Ma, H. - H., published in 2009, summarized Oct 21, 2010

Some applied behavior analysis (ABA) approaches are more helpful than others when teaching social skills to people with autism.

The aim of this review article was to compare applied behavior analysis (ABA) techniques to treat autism. The study found five helpful ways to use ABA: priming, self-control, training, positive reinforcement plus punishment, and presenting preferential activities. These interventions were helpful for all ages and both genders. The least helpful use of ABA was in teaching perspective-taking skills. The author found that it worked better to train social skills as a whole instead of training just a single type of social skill.


Autism, by Crane, L., Goddard L., and Pring L., published in 2009, summarized Oct 19, 2010

Sensory processing disorder may persist in adults with autism and perhaps should be addressed with treatment.

The aim of this study was to see if sensory processing disorder was common in adults with autism. This study compared levels of sensory processing in adults with autism with an age and IQ score matched group using a self-report measure of sensory processing (Adult/Adolescent Sensory Profile – AASP). The authors found that adults with autism report high levels of sensory response compared to the control group. This is in contrast to a study that found that sensory processing issues decreased as children with autism became adults. The authors note that people with autism varied quite a bit with regards to their sensory processing disorder.


Cases Journal, by Edebol, H., Kjellgren A., Bood S. - A., and Norlander T., published in 2009, summarized Sep 7, 2010

Flotation tanks may be a useful tool for calming the nervous system and helping with sensory integration in adults with Asperger syndrome and attention deficit hyperactivity disorder (ADHD).

This case study describes an adult with Asperger syndrome and ADHD who was treated with flotation-Restricted Environmental Stimulation Technique (flotation-REST). The 36-year old woman from Sweden also had depression. She was given 19 sessions over a year and at the end felt that she was better able to live life on her own. With time she learned to control how alert she was (arousal control). She also learned to control how active she was (activity regulation). Her senses relaxed and she became better at sensory integration.


International Journal of Rehabilitation Research, by Cosper, SM, Lee GP, Peters SB, and Bishop E., published in 2009, summarized May 27, 2010

Interactive Metronome training may help children with attention deficit disorder or pervasive developmental disorder who have deficits in visuomotor control and speed.

This study was designed to see if Interactive Metronome therapy can help these children move better and pay attention better. The study was designed so that each child acted as his or her own control. The authors found that Interactive Metronome seemed to help with some aspects of motor control and reaction time. They did not see improved attention in the children after therapy. The authors note that there is very little research to back up the many claims made by people who offer Interactive Metronome therapy.


Adam Welker’s 8-year-old brother has autism so he was able to serve as the quality control guru for the hug machine that Adam built. Temple Grandin developed the concept of the hug machine, which applies pressure that seems to help with children’s emotions as they go from one to another. A retail-priced hug machine would cost several thousand dollars, but Adam was able to build his for around $300. As his Eagle Scout project, Adam learned to lead a team and use power tools; his mom said it brought the whole family together. Adam donated the hug machine to Bear Creek Services.

Read original article: Local Boy Donates "Hug Machine"


The Lakeside Center for Autism in Washington State is using Kinect to engage children with autism in movement and play. Kinect is part of Microsoft’s offerings that allow gestures and body movements to control action in video games. For example, a child can see and control a representation of him on the screen. The center uses Kinect as a biofeedback tool whereby the kids can see results of their actions. If the child jumps up and raises his arms, so too will the representation on the screen.

Read original article: Kinect Much More than a Game


This article focuses on a new study using the drug propranolol to help increase social skills and language in people with autism. Propranolol is typically used to treat high blood pressure, control heart rate, and reduce test anxiety. Dr. David Beversdorf, MU Thompson Center for Autism and Neurodevelopmental Disorders, and his group are the first to study the potential benefits of this drug on autism in a controlled manner. They believe the drug acts on the brains of people with autism to assist in language and communication. In earlier studies, researchers discovered that propranolol helped with word unscrambling and word fluency. In follow-up studies, Beversdorf hopes to be able to discover who with autism will respond favorably to the drug.

Read original article: Promising Drug Treatment for Improving Language, Social Function in People with Autism


Cognitive Behavior Therapy (CBT) may be used with children on the Autism Spectrum to help them understand their autism. CBT promotes the idea that the more a person understands themselves – their emotions and thoughts – the better they can control situations which might be overwhelming. Dr. Tony Atwood, along with several colleagues, took CBT workbooks he has used with parents and children on the spectrum and turned them into a “toolkit.” The Cognitive Affective Training kit (CAT-kit) provides “an easy, hands-on program designed to promote awareness of how thoughts, feelings and actions intersect.” The author explains how she used these techniques with her son, allowing him to rate situations stressful to him on a visual thermometer. He was then able to do some self-calming exercises, and at the same time, his mom knew what he was feeling.

Read original article: New Tool Allows Children with Autism to Express Emotions



Please comment on this autism topic.

I am a parent of an 18 yr. old young man with ASD who we have been doing RDI with for the past 3 years. Once we began the program his life and ours changed. He now initiates conversation with us - true conversation, with give and take, perspective sharing, observations are related and my interests considered. He is much more other-focused and considerate. Outbursts and anti-social behaviors have been significantly decreased. Our household is so much more calm and life normalized. His ability to make study us during communication (total body language - faces, posture, tone - not just the words said) and approrpriately respond and interpret this non-verbal aspect of language is really imporved and remarked upon by family/friends and teachers. He is able to do this on his own, no prompting, no scripting - it is becoming "normal" and happening as expected. We are completely satisfied with this program and while costly, it has delivered the results where others haven't. It really changed his life. I work in Special Olympics and have a control group to compare him and this intervention against as a result. His progress compared against his peers (same age/ school experiences/ but different interventions) is significantly better. We very much look forward to how far he can go.



Responding to aquatic

Sep 4, 2011 by Anonymous

I have been a private swim instructor, specializing in teaching children with disabilities for over 10 years in Los Angeles. Most of my swimmers are children, ages 2- 12, who are on the Autism spectrum. When these children are in the water, they all have shown a sense of comfort, mind and body relaxation. With certain cues, such as the word "focus," I am able to receive quick eye contact and immediate response to my action requested by them. Positive reinforcement and encouraging words, whether the task was perform correctly or not, increases their consistency of performance in the water. Their sense of body movement in the water becomes hightened because they have control over the water and therefore they feel the need and comfort to be in the water and be active.


Responding to neurofeedback

Nov 12, 2010 by Anonymous

We have used neurofeedback (NFB) for our Asperger son. I don't know how well it works for autistic people. For Asperger syndrome, it can work very well, but it's a long process.

We started the therapy when my son was 9 years old, having extreme difficulties at school because he couldn't cope with anything. His anxiety was so high even the NFB doctor thought it was remarkable. The initial assessment showed that my son had high delta-theta waves (associated with ADD-like attention span), low sensorimotor rhythm (SMR) waves (associated with sensory issues,fidgeting, tics, agitation, and anxiety), and high high-beta waves (associated with intense anxiety). This profile is pretty much exactly what all Asperger kids look like.

We liked the NFB approach because unlike virtually all other ASD treatments we tried or looked at, this was the first one that looked inside our son's brain to see what was going on. The assessment wasn't based on theory, observation, or cookie-cutter practice, but on the actual output from the kid's head.

The NFB treatment involved playing computer games via electrodes stuck to the scalp and ears. It sounds more fun than it is, because the games are very slow. We had to bribe my son to do the therapy. We are very tech-savvy, so we trained at the centre so that we could do the sessions at home (we live hours away from the clinic).We did the sessions every day so that we could see the results faster. We kept a log sheet of observations, hours of therapy, and game points, and included any observations from his teachers.

After 30 hours of treatment, he suddenly figured out how to control his high-beta waves. Where he used to get scores of 10, he could now get scores of 200, then 400, then 1000. He had no idea how he was controlling the levels, but he was doing it. Within a few days, we noticed that his anxiety was GONE. I mean GONE. Suddenly nothing bothered him anymore. He wasn't afraid of the dark, or of barking dogs, or of rain, or of traffic. He stopped fretting about death and getting older and started simply living.

We continued the therapy for another 30 hours and got his SMRs up. That's when he started eating a bunch of new foods and playing outside. He'd even ask to try out something new. However, the SMR's are the hardest wave to fix, because they're deep in the brain, and he didn't maintain the high SMR's for long.

The one we had the least success with was the delta-theta, which ironically is usually the easiest to treat. Oh well. So he's still a space cadet!

We wrapped up the therapy at 100 hours, very pleased with the results.

My son is now 14 and doing well. We've noticed in the ensuing years since doing his NFB that it's worthwhile to do tune-ups three to four times a year. Video games, sedentary activities, and long car drives all seem to push his brainwaves back into the old patterns. We can tell when this occurs because suddenly he can't cope with anything, he's screaming a lot, and the teachers are phoning us to ask what's going on. All we need to do is a week of NFB, a half-hour per day, and the problems disappear. We've now trained our son to do his own sessions, so it's very easy for us.

If you want to learn more about NFB, you need to do some reading first. The best book on the subject is one that's probably in your public library: A Symphony in the Brain. It explains how the brain works. There is a chapter on NFB near the end. Besides that, there are many books available discussing the applications for NFB treatment. It works so well for anxiety disorders, depression, and post-traumatic stress disorder (which are all disorders in which the brainwaves get into bad patterns and get stuck there) that its popularity is growing. NFB is expensive. There are some people trying to develop simpler, more user-friendly technology, but the practitioners are used to the old systems. We have to wait for a younger generation of NFB doctors to move into the field to take it in new directions.


Living Gluten Free – Right to Heal

Feb 22, 2010 by karmic health

By Sandi Star, CCN


After struggling for over 40 years with chronic migraines, IBS, Muscle and joint pain, fatigue, brain fog, asthma and a slew of other ailments and frustrations I decided to take a closer look at the cause rather than obsessing on the symptoms. I was tired of relying on doctors to give me answers and tired of the medications that only gave me side affects and little relief.


I had been committed to health and fitness for over 20 years, losing close to 50 pounds and 5 dress sizes, however I still had all the chronic conditions that played havoc in my life. I realized there was a key element missing and soon found out it was my reaction to gluten and dairy. I didn't know enough about food intolerance or allergies or at least put the two together. I never believed food could have such a serious impact on overall health let alone be the direct cause of my diseases. With what I know today I’m surprised my doctor didn’t put the connection together when he diagnosed me with Sjögren’s Syndrome (autoimmune disease). Sjögren’s is one of the symptoms of Celiac along with a long list as you will see below and nutrition plays a critical role in the healing process. By making the appropriate diet changes – (gluten and dairy free), I’ve managed to eliminate my migraines, IBS………etc., etc., and have the Sjögren’s Syndrome under control. Even better, I have eliminated all medications and use food and natural remedies for nutrition and overall health. Now that you know why I became a clinical nutritionist and why I started Karmic Health lets get into the details of why it’s so important to understand gluten and its relation to diseases.


Why the problem with gluten now? A lot has changed in the way we harvest food compared to 50 years ago. Some of the seed companies began engineering wheat kernels that could be more easily ground and produce fluffier flour to make the soft, delicious white bread for example had to have greater yields; it made more money for the farmer and increased sales.


Gluten is a composite of the proteins gliadin and glutenin. These exist, conjoined with starch, in the endosperms of some grass-related grains, notably wheat, rye, and barley.


Understanding what happens in the body and some of the symptoms will help millions of people who go undiagnosed. Celiac is the most common genetic disease of mankind (yet for every person diagnosed, 140 will go undiagnosed).


A wheat allergy is the body’s abnormal autoimmune response to a certain protein component of wheat; it’s exhibited by a severe sudden onset allergic reaction. Usual symptoms are immediate coughing, asthma, breathing difficulties, and/or projectile vomiting. It can cause life-threatening responses in allergic people. A true Wheat allergy affects less than 1/2 % of population. 


Intolerance's are much more common than true food allergies but are harder to diagnose. Food intolerance is an adverse reaction to food that does not involve the body's immune system. Generally food intolerance is an inability to properly digest certain foods. In some cases food passes right through the body before digestion is complete.


Leaky Gut is an increase in permeability of the intestinal mucosa to luminal macromolecules, antigens, and toxins associated with inflammatory degenerative and/ or atrophic mucosa or lining. Put more simply, large spaces develop between the cells of the gut wall allowing bacteria, toxins and food to leak into the bloodstream. Leaky Gut Syndrome has also been linked with many conditions, such as: Celiac Disease, Multiple Sclerosis, Fibromyalgia, Autism, Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Eczema, Dermatitis, and Ulcerative Colitis. 


Celiac disease is an autoimmune disease caused by an inappropriate immune response to dietary proteins found in wheat, rye, and barley (gluten and


gliadin). This response leads to inflammation of the small intestine and to damage and destruction of the villi that line the intestinal wall. These villi are projections (small folds) that increase the surface area of the intestine and allow nutrients, vitamins, minerals, fluids, and electrolytes to be absorbed into the body. When the villi are destroyed, the body is much less capable of absorbing food and begins to develop symptoms associated with malnutrition and malabsorption. When the body is exposed to the gluten and gliadin proteins, it forms antibodies that recognize and act against not only the grain proteins, but also against constituents of the intestinal villi. As long as the patient continues to be exposed to the proteins, he will continue to produce these autoantibodies. Celiac disease is found throughout the world but is most prevalent in those of European descent. It can affect anyone at any age and is more common in women. It is thought to be an inherited tendency that is triggered by an environmental, emotional, or physical event – although the exact mechanism is not fully understood.


According to the National Digestive Diseases Information Clearinghouse, about 5 to 15% of close family members of a celiac disease patient will also have the condition.


Symptoms


There are literally dozens, if not hundreds, of symptoms of gluten intolerance. It all comes down to inflammation in the body! Many people believe the most common symptoms are gastrointestinal in nature - yet the majority of people with gluten intolerance (and celiac disease) have extraintestinal symptoms. 


The most common symptoms of celiac disease include:


Fatigue


• Addison’s disease (hormonal disorder)


Gastrointestinal distress (gas, bloating, diarrhea, constipation, vomiting, reflux)


• Headaches (including migraines)


• Infertility


• Mouth sores


• Weight loss/gain


• Inability to concentrate


• Moodiness/depression


• Amenorrhea/delayed menarche (menstrual cycles)


• Bone/joint/muscle pain


Dental enamel hypoplasia (dental enamel defect)


• Short stature


Seizures


• Tingling numbness in the legs 


The “cure” is a life long gluten free diet.


Making the Transition


1. Have a reality check. Remember this is a choice! If you want to feel lousy for the rest of your life and get worse as time goes on then continue eating gluten. If you want to start on a journey to heal; go gluten free


2. Give it time. It takes time to heal. Take the 45 day challenge.


Within this time frame you will notice the brain fog is gone. Your body will start adjusting to a healthy weight. Yes, you will lose the bloating and weight around the middle. Don’t be discouraged if it takes a little longer to feel 100%. 


3. Look at your current diet and go through your pantry and refrigerator to find the foods and meals you already eat that are gluten-free. You may need to keep a food journal if you haven't already.


Be sure to list condiments, ice creams, produce, snacks, and other foods.


This list will be helpful as you create menus around your new foods and give you encouragement that you're already on the right track!


4. Give yourself permission to eat things that you may have restricted from your diet before your diagnosis. Potato chips or GF cookies may not be appropriate for other people, but they are a treat in a GF diet in small doses of course. You will need to find treats for yourself initially as you adjust to this diet. Count calories after you are comfortable with your new way of eating, manage your portions instead.


Once you are comfortable with the switch start cutting back on refined grains, crackers, breads, etc., to help the gut heal quicker. In all honesty, bread will not be that important. It's all about taking baby steps! 


5. Look at your current menus and meals and find ways to eliminate gluten from your diet. Replace bread in sandwiches with GF bread or green leaf lettuce and add your favorite fixings and condiments. Have breakfast burritos with rice tortillas instead of toast and eggs. Look for GF hot and cold cereals (must not have barley malt) and have those handy for a snack or meal. Replace bread and crackers with tortilla or corn chips, brown rice cakes or popcorn. For example, chicken or tuna salad on rice cakes or scooped onto corn chips is delicious. Popcorn is a filling side dish with soup. Be on the lookout for meals on your current menus or the menus of friends and family that are naturally gluten-free (roasted chicken, baked sweet potatoes and steamed veggies, for example) and make them a staple on your new menus. Surf the internet, watch cooking shows and browse magazines for ideas and adapt them as you see fit.


6. Clear out any and all foods that have gluten, wheat, wheat flour, oats, oat flour, rye, semolina, or modified food starch from your pantry. This will allow you to see how close you are to living gluten-free already. If you have family members living with you who are not gluten free, you might consider giving the "offending edibles" to them to be put in another part of the house while you learn to live and think gluten-free. As time goes on you can cook for the entire family without gluten.


7. Plan and prepare your meals ahead of time. Being caught hungry without a plan is not a good idea! Keep a few GF soups on hand in case of extreme hunger. Keep a small cooler in your car with snacks such as nuts, dried fruit and water. It helps to outline and pack any meals you're eating at home and away from home, including snacks. An example could be -


o Breakfast: scrambled eggs and mixed vegetables rolled in a rice tortilla, sliced apples, and coffee.


o Lunch: Lettuce with turkey, avocado slices, tomato, and mustard, 1 oz. chips, and 2 organic dark chocolate pieces.


o Dinner: Grilled fish or chicken with mixed vegetables, wild rice, and fruit.


o Snacks: 1 oz. almonds and popcorn.


o Desert: Coconut Ice Cream or fruit. 


Tips


1. Be patient with yourself. You'll have days when being gluten-free is really depressing (maybe even "fall off the wagon"). This is normal.


Relax – it’s a process.


2. Carry snacks with you wherever you go. It's often difficult to find an appropriate snack when the hunger strikes. GF bars are great! 


3. Arrange with the hosts of gatherings you may attend to bring your own sides or complete meals. Most people are very supportive of restricted diets.


4. Carry a small cooler in your car with small cold packs to store fruit, snacks and water


5. Consider avoiding restaurants during your transition phase as you learn how to eat and think gluten-free. Grilled meats (over a flame), baked potatoes and salads without croutons are usually safe bets. But keep a log of places you eat, what you ate and how you felt afterward. Gluten is insidious and can turn up in the oddest places (french fries, for example which can be dusted with flour).


6. Get your hands on cookbooks or start collecting your own recipes in a binder. 


7. Carry digestive aids (enzyme and bioflavonoid) with you in case of accidental ingestion. There are ones specifically for gluten such as GlutenFlam by Apex Energetics; available from your healthcare practitioner.


8. Consider taking a multi-vitamin to make up for vitamins and minerals you may lack with your new diet (ask your doctor or nutritionist if necessary).


9. Find a mentor or support system.


10. Breathe


About the author: Sandi Star, CCN


Sandi is the founder of Karmic Health, specializing in nutrition related to disease where a gluten and casein (dairy) free lifestyle is crucial; working with celiac, autism and all auto immune disorders. Sandi graduated from The Natural Healing Institute with a degree in Clinical Nutrition and is continuing her studies in Clinical Herbology. She has hands on understanding of many health issues and has dedicated her life in helping others reach their optimal health.


For more information related to this article please visit www.karmic-health.com or contact Sandi Star at 760.685.3154


© Copyright Karmic Health 2010



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