Many children like to dress up in costume for Halloween, but with children with autism and other special needs, sensory issues can make traditional costumes uncomfortable. Aviva Weiss, a pediatric occupational therapist (OT), began designing weighted vests for her daughter - the weight can provide a secure "hug" and calmness. Her company, Fun and Function, decided to move from basic weighted clothing items to costumes - for Halloween and to encourage imaginative play. Her weighted vests fit children ages 3-8 and include fireman, policeman, and fairy princess. They include hidden pockets where weights can be placed.









Please comment on this autism topic.
An open mind
May 18, 2009 by AnonymousLuckily, county health authorities decided that the swine flu was not nearly as serious as had originally been feared, and Thomas only missed school on Monday and Tuesday as a result of it. Not the whole week as they had originally closed the school, so thank goodness! Still we had the added trouble of explaining to Thomas that he would not have school that one week and then had to un-explain the whole thing, springing on him at 7:30 p.m. the night before he thought he did not have school that yes, contrary-wise, he DID have school. Hilarity ensued, I assure you. Not.
I’m sure that all of my readers are tired of hearing about this Disney Trip we’re planning in August, but I have more to say about it. In preparation for not just the rides but the shows, we’ve taken Thomas to Hayley’s little graduation ceremony and her dance recital as I mentioned in a previous blog. We were very concerned during Hayley’s graduation ceremony because Thomas would NOT sit still, was very squirmy and didn’t understand the concept of being quiet so as not to disturb others. This is somewhat frightening. Of course, I’m banking on the fact that Disney World will be overrun with small children who don’t understand the same thing and Thomas will merely fade into the background. He did a little better at Hayley’s dance recital the following evening (last week was a logistical nightmare...I don't think we ate dinner as a family all week) but I think that was only because he had Jonathan’s PSP with him. He actually used it for about the second half of the show, after Hayley performed. These little park district dance recitals are so adorable…the costumes are so sweet and the little girls look enchanting. Among the under-6 age set, not much actual “dancing” takes place, but the audience is so enraptured by the adorable tutus and hairdos that executing a perfect plie isn’t all that important.
There was actually one boy who performed in a fifties number! We pointed him out to Thomas who was engrossed in Lego Star Wars on the PSP by that point and didn’t take much notice, but I certainly did! So perhaps if we enroll Thomas in dance for next year, he would not be the only boy in the whole thing. My father, upon hearing that Thomas was interested in dance, did all he could to quash the idea. Being a rather traditional man, he piped up with some clap-trap about “boys should play ball” and such. Jonathan and I would be thrilled if Thomas could be in a dance class and actually do well! We totally don’t care about any negative stereotypes, especially if they are coming primarily from my father. He should be thrilled that Thomas has expressed an interest in doing something extracurricular and also social! (Are you listening, Dad? Drop the stereotype and get with the times! Even Mom listens to Flo-Rida!) I don’t know who Flo-Rida is, but she has them singing on her cell phone’s ringtone. She is apparently way-cool.
So all-in-all, Thomas’ performances at the graduation, the recital and a recent trip to Kiddieland all enforce the idea that yes, we should request a Guest Assistance Card at Disney and use it. We were on the fence, thinking that Thomas has improved so much that we might not need to use any special card. Truthfully, Thomas has improved, but not so much that he won’t annoy the hell out of other innocent families waiting in line to see Pirates of the Caribbean or something like that. That’s really the reason we’re going to use the card…people don’t want to wait in line next to this kid, trust me.
No matter what, we’re going to have to bring the PSP with at all times. Hopefully, we won’t have to use it very much, but we’ll have it just in case. One amazing thing happened with the whole Disney restaurant reservation odyssey: we got into Cinderella’s Royal Table for a character breakfast! We’ve heard, read and otherwise been bombarded with admonishments that start out like, “Okay, to get a reservation at Cinderella’s Royal Table, count to exactly 180 days before you want to go and then synchronize your watch to the Atomic Clock the night before you call. At exactly 6:58 a.m. Eastern time, dial the first five digits of the phone number…” Ugh. We figured that since we booked this whole trip closer than 180 days out, there was no way we could get in. So Jonathan called the other night to make some other reservations and just asked the person on the phone to just check for any day during our stay at Cinderella’s and we got in! Hayley was so excited, and so was Jonathan. He felt like Mr. Big-Man…yeah, he got a reservation, no problem…just called at his leisure and it was, "Yes, Mr. Jackson! You're booked, Mr. Jackson! We're so excited to see you, Mr. Jackson! Have a wonderful trip, Mr. Jackson!"
We’ve got a couple of other reservations lined up and we’re planning our touring around them while still keeping the open mind that all of this could go flying out the window when we get there, but that’s okay. I think that keeping an open mind would be good for all of us as we approach the longest, biggest and most expensive vacation we’ve ever been on. I’m just a little worried about Jonathan. He’s expecting a lot out of the kids and I hope that they either deliver, or he loosens up a bit. I really hope I’m not going to be huddled in a corner of the hotel pool with a bottle of cheap booze while Jonathan cries in a lounge chair about how we spent thousands and flew all the way to Disney World and all the kids want to do is play in the pool. I don’t know where my mother-in-law figures into this nightmare, but she’ll be in there somewhere.
Spring Break #2
May 1, 2009 by AnonymousSpring Break #2 is here! Unfortunately, Thomas' school is one of those that has been closed due to a "probable case" of this swine flu. Perhaps I'm a slacker mom, perhaps I'm being far too blaise, but I think that this whole thing is a lot of hooey that conveniently coincides with the network ratings time, generally referred to as "May Sweeps."
As a result of all of this Swine Flu stuff, Thomas' school is closed until May 11 - a terrific thing indeed for an autistic child who has a difficult time adjusting to schedule changes - and especially unscheduled schedule changes. We're going to try to do a lot of reading next week and some math in the new Everyday Mathematics book Mrs. H. sent home last week.
As for Hayley, she's lucky she was even let into Preschool this morning, being the sister of a boy who attends an infected school. They had to have the director of the preschool call their insurance agent to see if she could attend. Luckily, they gave her the all-clear, but I feel like we're about to be quarantined with a big blood-red cross painted on our front door. However, instead of lamb's blood, they'll have to use the small can of Ralph Lauren "Hunting Coat Red" we have in the garage. A modern spin on a medieval plague classic.
Again, I think it's a load of hooey.
Last Wednesday, Jonathan took the kids to see Thomas' Sea Life exhibit at school. The kids mostly played in the classroom centers, but Jonathan (I was working) got a chance to talk to Mrs. H. who again expressed her desire to "take Thomas home," because she is so attached to him. She has no idea what she's talking about since Jonathan and I have positively decided that Thomas is a different kid at school - a more focused and less energetic kid. She also said that Thomas is reading at level C, which means absolutely nothing to the lay-person, but she explained to me on Thursday that it's a first-grade level. We think that's great, but why won't Thomas read at home for us?! It's like an exercise in futility trying to get him to sound out words. He'll make the letter sounds but then he won't put them together to make a whole word. Mrs. H. says that it's okay; he'll get it and she's just thrilled with his ability to read so far. That should be good enough for us, but I keep trying to find opportunities for him to read. I've tried saying, "You have to learn to read before we go to Walt Disney World 'cause we'll need your help reading the signs!" I don't think he buys it. Honestly, I don't either.
Thomas will be attending Hayley's dance recital with us this year and he will hopefully be well-behaved. My parents are going, Jonathan's mom is going and the three of us, so Hayley will have quite a little audience watching her dance to "I Feel Pretty." She does a lot better than she did last year. I was talking to one of the other moms from Hayley's dance class who's daughter was in Hayley's class last year too and we both agreed that we and our husbands laughed ourselves silly watching the little girls' recital - they were just so interested in the people and the lights and the costumes that any interest in dancing was not a priority at all. It was adorable.
Thomas has expressed an interest in participating in a dance class next year. Jonathan and I are both fine with it, but we wonder if that will open Thomas up to a bunch of teasing. Of course, it will roll right off of Thomas' back as he is nearly immune to that kind of thing, if he has even experienced it yet. Maybe we'll sign him up and perhaps notify the staff of the special circumstances, adding a stipulation that if Thomas can't do it or is too disruptive, he can get out of the class and we can get at least most of our money back. I have to admit that I think it's kind of cool that he would even want to do a dance class. Another Billy Elliot, maybe? Mommy can dream.
Star of the Week
Oct 23, 2008 by AnonymousThis week, Thomas was the Star of the Week at school. Every kid gets to be the star once during the year, and Thomas, as with many things in his life, was less-than-enthusiastic about the whole thing. He got to bring home Buddy Bear - a little stuffed teddy bear – last weekend so that we could document some adventures with said bear. Thomas wanted nothing to do with Buddy, so Hayley was only too happy to carry him around and sleep with him.
On Saturday, we went to the local seasonally-open Halloween store to buy costumes for the kids. Thomas, as I said in previous entries, wanted to be nothing, never, EVER. However, he relented when bombarded with many options at the store. He finally settled on a cute Darth Vader costume which includes a mask. He surprised us by wearing the mask around the store for the remainder of our shopping trip. Thomas has always been averse to hats, masks and any sort of head-covering at all so we were thrilled by his excitement about the Lord Vader helmet. Actually, he was really good at the store which was filled with many people, of course, but also lots of gory imagery, lights and colors and noises that I thought could over-stimulate him. He handled it really well.
Guess what Hayley decided to be? Or I should ask, guess which Disney Princess Hayley decided to be? Jasmine from “Aladdin.” I wonder which one it will be next year. Both she and Thomas have been whacking each other on the head with the little magic wand the costume came with. We got Thomas a light saber because we’re idiots, but we haven’t really shown it to him yet. He can beat the hell out of us with it after Halloween.
Sunday, my folks came over to watch the Bears game and take us out to dinner to thank Jonathan for all of the ways in which he helped out during Tina’s wedding. While the boys were watching the game (and the kids), my mom and I went to the banquet hall that my sister Tiffany chose for her November 7, 2009 wedding. It’s about half a mile from our house, so we’re thinking of hosting the after-party.
After the game, we went out to dinner. I just don’t dread restaurants the way I used to, and it really is a wonderful feeling. We can go out to eat and as long as the place is reasonably family-friendly, we have little to worry about. Keeping Thomas in his seat can be a challenge, but usually a big bowl of chips and salsa does the trick. We had a good time and enjoyed seeing my folks who hadn’t seen the kids in a while.
Buddy Bear enjoyed all of this immensely.
Sunday night, we made a poster of pictures including Thomas jumping into the pool at the vacation house (one of his favorite things to do), pictures of his family, a picture of pancakes that I cut off the side of the Bisquick box (his favorite food) and a picture of Sophie the Dog. He was to take this to school and share it with his classmates. Given his ambivalence about the whole Star of the Week fuss, I e-mailed his teacher to tell her that Thomas was not enthused about it. She e-mailed me back after school on Monday to say that Thomas actually explained his poster really well and did a great job! One of the things he got to do was bring in his favorite book, “Alexander and the Terrible, Horrible, No-Good, Very Bad Day.” Since I come to class on Tuesdays, the teacher wanted me to read the book to the kids, which I did. They seemed to like it; everyone listened and gave me a “firecracker” when I finished. Instead of applause, they clasp their hands in front of them as if in prayer, make a “shhh” noise as they raise their hands, clap them over their heads and say, “Whooooo!” as they wiggle their fingers in the air. It’s really cute and very creative, I think. So I got my first firecracker, which is nice.
The kids worked on patterns on Tuesday, and I was shocked at how well Thomas did with it. They had to choose two shapes, color them in, cut them out and paste them in a pattern on a strip of cardstock. The thing that really surprised me was Thomas’ cutting. He did a great job cutting out the rectangles and circles that he chose. I had just had a discussion with the occupational therapist who said that she was going to be sending home some cutting worksheets for Thomas to work on because he needs a little extra help with that. Once the teacher saw how well Thomas did, she said she’d speak to the OT about it. Actually, Hayley also did a great job cutting her shapes too. The teacher was very impressed with that, and Hayley felt great about herself. I explained that Hayley loves to practice cutting; our dining room table is perpetually covered with tiny little snippets of paper.
Tomorrow is the Halloween Spooktacular at school which is a lot like the Fun Fair that many schools have during the year. I volunteered to provide a baked good for the Cake Walk. Hopefully, I can win it back. Pumpkin spice cake is one of my favorites. I’m wondering how Thomas is going to do with it. If he wants to leave the party early, it’ll be no big deal; we are leaving for Wisconsin from the Spooktacular because this weekend is Pier Removal Weekend. Incidentally, not one of my favorites.
Party-time, excellent!
Sep 29, 2008 by AnonymousI think we’ve finally settled on the half Clonidine in the morning as a means to help Thomas settle and focus at school every day. The sleepiness and fatigue have worn off and his teacher reports that he’s doing fine. I forgot to give him his medication on Friday morning, but luckily it was Pajama Party Day, so all the kids were running amok. The teacher said that he was excited, but she chalked that up to the “party atmosphere” – a term that reminds me of my dorm days at college – so she wasn’t concerned about his behavior that day. He was not excited about wearing pajamas to school, but he did it. He was also concerned about the whole party thing, saying that he didn’t want to have a pajama party and that it would be “horrible.” What he’s really saying is that he doesn’t understand what a pajama party entails and that he is, if not afraid of the unknown, ambivalent about it.
When I picked him up after class on Friday, he reported that he had a great time and that the pajama party was “wonderful.” That’s really the word he used to describe it! My children have fabulous vocabularies, a trait that I’m proud they inherited from their mother. As a reward for not pitching a tantrum about the party and both of the kids staying in their own beds on Thursday night, we went to Chuck E. Cheese’s for lunch. It’s so great going on a school day when it’s nice outside because the place was a ghost town. They had fun and when the tokens were gone, they agreed that we should go home.
Jonathan and I had parties all weekend, or at least I did. My sister’s bachelorette party was Saturday night and I stayed over at the maid of honor’s condo. We had a great time, but the kids didn’t want me to go. Jonathan is out of the house all day last Sunday at the Bears game and they didn’t bat an eye about it, but if I take my hair dryer out from under the sink and start blow-drying, they know Mommy’s planning to leave the house and they start putting up a fuss. Jonathan does too, he’s just not as direct about it. Thomas gets upset when I walk the dog for forty minutes every evening, saying, “Don’t go Mommy! I’ll miss you!” Very cute, I guess.
I’m getting so old. At ten-thirty on Saturday night, I was having a hard time keeping my eyes open. The other ladies at the party were sort of the same. We kept looking at our watches and exclaiming, “It’s only eleven? Gee, it feels like 2:30 a.m! Do you have any coffee?” The maid of honor, in her infinite coolness and wisdom, went to the Cheesecake Factory and bought eight different slices of cheesecake which we all passed around and shared. We all sat there, our mouths full of whipped cream and cake, saying, “God, this is way better than any stupid stripper!” We all had fun, especially the bride. The next morning, I got up and went for a jog around my hometown, which was so much fun (except the jogging part). I ran by the houses we grew up in and our friend’s old houses. I was running by the junior high and remembered that the last time I ran down that block, I was probably being timed for a mile. I’m glad I wasn’t being timed this time.
Yesterday afternoon, my cousin Susie came to watch Thomas and Hayley while Jonathan and I attended a retirement party. The kids are so good for babysitters, and especially our family members. The kids know Susie from vacations, and it appears as though Hayley has the same stellar memory that Thomas does. We were telling the kids on Friday that Little Susie (so called because her mom, my aunt’s name is also Susie) would be coming to watch them and Hayley said, “Yeah, remember at the vacation house when she helped us bring food in?” Jonathan and I stared at each other for a moment and then remembered that Little Susie had helped us bring in groceries shortly after we got there. We never would have remembered that. The kids get confused and call her Aunt Susie sometimes, which is total payback because I used to babysit her and her older sister when they were young, and they called me “Aunt Jenny” or sometimes, my favorite: “Cousin-Aunt-Jenny.” Little Susie was also the one who, when she was three, told me that I had a lot of nose-hair. I’m still waiting for Thomas or Hayley to get her back for that one. It’ll happen – I just have to be patient.
So I wasn’t home for most of the weekend. We’re keeping next weekend open just for incidentals and anything I have left to get, buy or help with for Tina’s wedding in less than two weeks. I can’t believe it’s upon us! Rehearsal Dinner Friday, Jonathan is taking the day off work and my mother-in-law is taking the kids all weekend, probably through to Monday since that’s Columbus Day and there’s no school. I talked to my sister Tiffany last night, who will be flying in with her fiancé the Wednesday before the wedding and she has promised to bring candy and gifts for my children. I say load ‘em up on Friday…they’re going with Grandma!
We have a hectic and exciting two weeks to look forward to while also trying to keep things sane and on as much of a schedule as we can. I can’t even think about Halloween costumes or anything like that at least until after the wedding. My brain is aging. I can only take so many marbles rolling around up there at a time.