Autism Therapy: family

definition of family: not yet defined.

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J Autism Dev Disord, by , published in 2009, summarized Nov 4, 2010

Children’s GI problems appear less likely to respond to autism treatment and therefore GI symptoms may need to be considered and treated when creating a treatment plan for a child with autism.

The purpose of this study was to study the GI problems in a large sample of children with autism. The authors studied 172 children who entered two large-scale autism drug therapy trials. The groups (GI problems and no GI problems) were the same with regards to sex, race, special education placement, and family background. It seemed that those children who had more GI problems also had more behavioral problems. Children with autism and GI problems also had more social problems than children without GI problems.


Research in Autism Spectrum Disorders, by Young, A., Ruble L., and McGrew J., published in 2009, summarized Oct 1, 2010

Children with autism who have public insurance seem to do as well as children with autism who have private insurance.

There are very few studies that look at how the type of insurance a family has affects the therapy received by a child with autism. The purpose of this study was to compare families with public and private insurance to see the services that they received for their children with autism. In the state of Kentucky, families with public and private insurance had the same out-of-pocket expense, service use, and mixture of services used.


JVME, by Burrows, KE, and Adams CL, published in 2009, summarized Aug 31, 2010

Service dogs may be a friend to a child with autism and help keep the child safe, but the family with the dog needs the support of a good veterinarian.

The purpose of this study was to learn from families what it is like to have a service dog to support a child with autism. Each family must find its own way to bring a service dog into the family. The authors found that the troubles with service dogs may offset the good of having a service dog. The authors suggest that veterinarians look at the results of this study so that they can better help the owners of service dogs. Veterinary schools can teach veterinarians how to learn what needs to be known about families who want service dogs.


Annals of Clinical Psychiatry, by Gutstein, SE, published in 2009, summarized Jun 15, 2010

Relationship development intervention (RDI) may be helpful as part of a larger autism treatment program.

The purpose of this article is to teach psychiatrists about RDI. RDI has been in use for ten years now and it is a major relationship-based tool for autism intervention. RDI consultants focus on family support and parent training. They also focus on helping any IQ weaknesses in the child. The author notes that while RDI has not been studied in outcome based research, the thought behind the therapy makes sense and therefore the therapy likely offers value to the child with autism and the family.


Tina Robbins realized just how special her Kalamazoo community was when they stepped up to help her out with her son with autism. Robbins is a single mom and her son Logan is a non-verbal youngster with autism. Robbins explained that Logan has sensory issues, wandering, and self-injurious behavior. As an advocate for her son, she reached out to Kalamazoo Community Mental Health and Substance Abuse Services (KCMHSAS) for help. Jeff Patton, CEO of KCMHSAS, explained that Kalamazoo is a caring community and different agencies pooled their resources to help Logan as well as other children with special needs. Western Michigan University provided speech and music therapy. He received his service dog, Denver, from Paws with a Cause. Cheff Therapeutic Riding Center provided equine therapy, while Project Lifesaver made sure that Logan didn’t wander away from home. Tina also gets help; Woods-Edge Learning Center and Family and Children’s Services Respite Program provides respite services, so that she can be re-energized and effective when caring for Logan.

Read original article: Kalamazoo Community Networks Support Children with Disabilities


Dotun Akande, the founder of Patrick Speech and Languages Center in Lagos, believes that early intervention is the best chance for children with autism in her country. Akande, mom of a child with autism, works to reach out and educate as many families as possible. She explains, “Parents too should know that having a child that has this challenge is not the end of the world. Early intervention is the key; so, all you need do is to help that child come out of that problem.” Patrick Speech offers interventions that include speech and language therapy, behavioral modification therapy, OT, social skills training, vocational training, academics, music therapy, hydrotherapy, and sensory integration.

Read original article: Early Intervention is the Key to Managing Autism Well


DisabilityScoop highlighted a recent study from the University of Pennsylvania, which found that increasing respite for caregivers may decrease the number of children with autism who are admitted to psychiatric hospitals. The study found that for every $1,000 that a state spent on respite, hospitalization decreased by 8%. Researchers believe that having to hospitalize a child with autism is sometimes because the stress on the family becomes too overwhelming, and that respite assistance could help. The researchers explained, “Identifying ways to reduce psychiatric hospitalizations among those with autism is important, because previous research has found that those with the disorder are far more likely to be hospitalized than their peers with other psychiatric or developmental conditions.”

Read original article: Respite Care May Be More Beneficial Than Autism Therapy


The North Alabama Medical Reserve Corps received a grant from AmeriCares to provide first responder training to deal with kids with autism. The first responders were busy this spring with flooding and tornadoes. Children with autism tend to be more frightened and likely to run away during times of stress and emergency. When first responders learn how to approach children who may suffer from communication and sensory issues, the children and their families have a better and less-stressed outcome.

Read original article: North Alabama Group Gets Grant to Train First Responders to Help Those with Autism



Please comment on this autism topic.

Children with autism and horses

Jan 17, 2012 by Anonymous

PREFACE:

My experience working with children diagnosed with Autism has been a little like knocking on the door to their place of business. 

Option #1

Sometimes, no one answers the door and even if the hours of operation are posted, they are not always observed.

Option #2

If the door is answered, you rare sometimes invited in, but once inside you realize it is a waiting room where messages are exchanged.  There is no direct contact.  This can cause delays, miscommunication and confusion.  Patience and timing are critical.

Option #3

With enough effort and understanding you are sometimes (and hopefully) invited into the main office and speak to the boss directly.  In this setting, skills understanding and effort are still required but are less demanding and more productive.

This is the most rewarding and productive of the three options.

The equine program developed at the Westwind Rodeo Academy has facilitated the opportunity to enter the office and speak to the boss directly.  (Remember - they are not YOUR boss, but the boss of the company you need to do business with.)

I personally believe it has been a key ingredient in several instances, in moving forward and grasping the potential for the Education system to assist and direct students diagnosed with Autism in their academic efforts and opportunities.

FOLLOWING : Is a cursory description of a multi-faceted program that will hopefully provide a glimpse into these concepts.

CAUTION:  The thoughts information and data provided here are solely my responsibility and have not been endorsed, accredited, approved or even spell-checked by the Westwind School Division, the Westwind Rodeo Academy or any other authority.

Harlan (Lanny) Smith B.S.W., Family School Liaison Counselor

e-mail lannysmith56@gmail.com

The Program

More than just a riding program, the Westwind Rodeo Academy in Cardston Alberta provides a unique program centered on relationships that is based on a triad as part of a larger group of nine.  Each child that attends the program is matched with a specific horse and equine specialist EQ (horse handler) that is chosen for their skills and experience working with children with special needs as well as their command of horse knowledge and competence.  

The group of 9 is formed with 3 groups of 3 to allow for broader experience, interactive activities and comparative experiences and an ambience in the session.  The selection of which 3 students will attend together is carefully considered and may include children with a variety of challenges not limited to Autism.  The sessions are repeated for 6 consecutive weeks and may be repeated up to 4 times a year, space allows and need requires, although each section is provided as a stand alone intervention.

One of the most inspiring experiences is when children fully embrace the horse and the relationship when they take the opportunity to lay down on the horses back without saddle (sometimes with a bareback pad or blanket, but not always), and spend quiet time, just embracing the horse while the child is at rest.  This can include conversation with the EQ as originated by the child and is largely a listening activity for the EQ, or just a silent time.  This activity is sometimes suggested by the child and sometimes by the EQ and may occur at anytime during the session.  It is can be used to de-escalate the child or address stress or emotional discomfort.  It is also used as a modest celebration or reinforcement in the relationship.

Actual riding occurs during these sessions but is not the object or the goal.  Many sessions pass without the child being on horseback as the situation dictates.   Each session is focused on the child's orientation to the world around them as far as they can express through words, body language, choices or actions, their needs and concerns as well as interests and inclinations.  Although safety is an over riding principal, convenience to the horse or EQ is secondary to the child's expressed or perceived preference.  

We have witnessed EQ's trotting beside the horse as ridden by the child who has expressed a desire to have the horse move at faster than a walk.

(Again, safety is paramount which necessitates one or more EQs running beside the horse. In this case, the child's skills and aptitude to remain safely on the horse is previously determined.  We also consider the horses history and attitude and performance on that particular day as part of the decision making process.)  

This can be physically demanding and inconvenient for the EQ but a major contributor to the child's experience and benefit.  The results the child experiences, the more effort required by the EQ to facilitate without imposing or tainting the child's experience.

The other component of this system is the support of a Mental Health Practitioner and supervision by the Facility Director.  This completes the formal team.  Decisions about activities, concepts and specific goals are managed by the Facility Director and Bahavior Specialist and the EQ's in consultation.

We have also encouraged with some success, the attendance to at least one of the sessions in each section by a significant family member as well as the students classroom teacher and possible other support personnel.  These individuals are given direction about the concepts of non-interference and non-projecting on the child's experience while acknowledging the elements the child is embracing.  They meet the horse, the EQ and observe the activities.  We often take pictures or video and encourage this experience to be talked about at home and in the classroom.

Of course this is a snapshot of the experience in condensed form and there are many details and intricacies that cannot be explained or properly presented in this format.  Overall, the development of this process has been  most rewarding and inspiring and worth the investment of time, money and effort.  It requires many elements working in concert to achieve this model.  We are fortunate that these things have come together thus far.

Questions or comments leading to discussion and education are appreciated.


I have a son with 'Moderate Level' Autism, who was diagnosed in 2009. After completing an intensive ABA program he has developed to a stage where he is developmentally, educationally and socially on par with his peers.

As such, we established our business called 'Simply ABA'. This facilitates ABA Programs for families with Autistic children, please feel free to review our website at www.simply-aba.com which gives a full history of our son's condition, extracts from his original diagnostic report from the consultant paediatrician and information on his current progress and abilities, in addition to valuable information on ABA itself.

I wish all parents the very best in successfully obtaining support and guidance in the area of Autism which I understand first hand to be an extremely distressing and daunting diagnosis as a parent.

Julia


I am a parent of an 18 yr. old young man with ASD who we have been doing RDI with for the past 3 years. Once we began the program his life and ours changed. He now initiates conversation with us - true conversation, with give and take, perspective sharing, observations are related and my interests considered. He is much more other-focused and considerate. Outbursts and anti-social behaviors have been significantly decreased. Our household is so much more calm and life normalized. His ability to make study us during communication (total body language - faces, posture, tone - not just the words said) and approrpriately respond and interpret this non-verbal aspect of language is really imporved and remarked upon by family/friends and teachers. He is able to do this on his own, no prompting, no scripting - it is becoming "normal" and happening as expected. We are completely satisfied with this program and while costly, it has delivered the results where others haven't. It really changed his life. I work in Special Olympics and have a control group to compare him and this intervention against as a result. His progress compared against his peers (same age/ school experiences/ but different interventions) is significantly better. We very much look forward to how far he can go.



Thank you to all the RDI defenders. It is ridiculous to believe that there is just one tried and true therapy for kids with autsim.  I believe ABA works for some kids, but it wasn't even an option for mine.  We had a very well-known doctor who agreed with our decision and believed because of our son's personality, ABA might cause of problems for him.  We started RDI at home about 2 years ago.  We then moved into extendeder services at our home and now have him in an RDI therapeutic school 5 full days a week.  WOW, what a difference!  My son has made such striders.  The extenders are wonderful people who really care about him and his progress.  He has built peer relationships at school that I never thought was possible.  RDI is not a fad.  Because of the nature of the program, progress is documented on a regular basis via videos made by parents, consultants, etc.  It is amazing to look back and see how far my son has come.  As a parent, you feel supported and a huge part of your child's progress which is so rewarding.  I urge other families to take a look at RDI and not be pushed into other therapies that they are not comfortable with.  BTW, my son's RDI is covered 100% through insurance after we reach our deductible.



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