Autism Therapy: fever

definition of fever: not yet defined.

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Brain Research News, by Mehler, MF, and Purpura DP, published in 2009, summarized Jul 29, 2009

Fever may change the brain and thereby improve behavior in children with autism.

This article reviewed studies of brain functions during fevers. The authors think that fevers help a specific part of the nervous system to function well. The part of the nervous system is called the locus coeruleus-noradrenergic (LC-NA) system. The authors believe that research needs to focus on the genes and proteins that are important in the LC-NA system. It may be that genetic therapy or drug therapy can be developed in the future to help repair the LC-NA system in children with autism.


Clinical Pediatrics, by Mawson, AR, published in 2009, summarized Feb 13, 2009

Vitamin C therapy may counter some of the toxic effects of high levels of vitamin A that may follow an infection.

This case study describes a boy with autism who had severe pain in the right hip, fatigue, skin rash, and sore gums after being sick with a fever, cold and cough. These bone symptoms appeared three months after the cold was over. The authors suggest that the viral cold increased the level of vitamin A in the blood to toxic levels. The high levels of vitamin A could then have caused low levels of vitamin C. They describe this idea as being counter to the theory that children with autism have low levels of vitamin A.


J Neuropsychiatry Clin Neurosci, by Mendhekar, DN, and Duggal HS, published in 2007, summarized Jun 3, 2008

Lamotrigine may help with some of the mood, behavior, and social problems that can be symptoms of autism.

Although Rett's Disorder is normally a genetic syndrome, this letter describes a 5-year-old girl who acquired the symptoms of Rett Syndrome after an infection. After the brain fever (encephalitis), the girl acquired many of the symptoms of autism, but she did not have seizures. The doctors gave her lamotrigine and found that she had less hand flapping and other autistic behaviors. While the lamotrigine is normally given to help with seizures, other studies have shown that it can help with social behavior, temper tantrums, and emotional problems. For these reasons, lamotrigine is sometimes prescribed to people with autism or people with epilepsy who have symptoms of autism.


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Cabin fever in June...

Jun 15, 2009 by Anonymous

Summer vacation has begun and I’m already being driven nuts by these children. These small, charming Gifts from God are making me wonder if we should move to a district that has a twelve-month school year. What’s really going on here is that Thomas and Hayley are driving each other nuts and that, in turn, is making me crazy. The root of the problem is that the weather has been so crummy (for mid-June) that we haven’t been able to do anything. If it’s warm enough to swim, it’s raining. If it’s sunny outside, it’s too cool to go swimming and all the slides at the park have big pools at the bottom. We’re still waiting and waiting for the weather to improve.
Today was actually pretty nice, but I made a grooming appointment for the dog that we had to work around. We left the groomer’s straight for Uncle Tom’s Pool and stayed there until the groomer called us to come pick up Sophie. Frantic pool and swimming activity usually works wonders on kids who have cabin-fever (in June, for crying-out-loud!) but my kids are not like other people’s kids.
We did have a few playdates a few weeks ago with the family I mentioned in my last blog. Thomas was actually really good with his buddy. I explained before they came over that he couldn’t just sit alone and play when we had “company” (what’s “company,” Mommy?) but he had to play with his friend. So, since he couldn’t play PSP, Thomas and his friend played MarioKart on the Wii. Whatever. They had fun. Hayley and her friend played Barbies and the littlest wee one just bounced back and forth, watching. Hopefully we’ll see them again soon and maybe meet at the park or something.
Graduation went fine, but of ALL DAYS for me to forget to give Thomas his Strattera, the graduation ceremony day was probably the worst. He had to sit quietly for semi-extended periods of time which didn’t work out too well for him. The video is funny because he kept waving me away, telling me to turn the camera off and go sit down. But he got an extra-special hug from Mrs. H., who I could tell was genuinely sad to have to say good-bye for the summer.
After the graduation ceremony, Thomas had just one more day of school that happened to be on Tuesday, my help-out day. So I got to be there for the last day, helping take everything off the walls and put things away for the summer. It was kind of sad. I’ve been there every Tuesday all year and have apparently built up a sentimental interest in the Kindergarten classroom and the routine. I really appreciated how much emotional investment the teachers must have in their kids by the end of the year and how hard it is for them to have to let them go. During the graduation ceremony, Mrs. H. gave a short speech about how once the kids go through her classroom for a year, they’ll always be “hers” and can come back and see her anytime. She got choked up as usual and it was very sweet. The kids all wore caps and gowns and Thomas kept pulling his up to reveal the decidedly un-formal t-shirt and shorts I put him in that day. No point making him doubly-uncomfortable in fancy pants AND mortar boards, I though. Nobody gave me any funny looks, though.
Hopefully the weather will turn better so we can walk to the park more often and maybe go to the zoo. All I know is that if we’re all cooped up in this house together for much longer, I’m going to start frantic home-improvement projects like re-painting or something. Hayley’s fifth birthday is coming up; her party is this weekend and Jonathan is apparently going to be up at 4 a.m., slow-cooking pork butts on the grill. It’s the only way, I guess. What I really want to do is get pictures of this madness. We’re going to turn the pork butts into pulled pork sandwiches made with Jonathan’s homemade BBQ sauce. He’s such a gourmand. I’m in charge of potato salad and coleslaw. And I’ll be buying beer too, I think.
We’re going to a wedding in Peoria June 26-28 and leaving the kids with Grandma Jackson. The dog’s going to my brother-in-law and sister-in-law’s house, God bless them. That’s the main reason I just had her at the vet and the groomer. Nothing says, “Gee, we sure do appreciate this” like dumping a shaggy, smelly and potentially unhealthy dog off with relatives. Jonathan and I certainly could use a break. We keep talking about taking a “date night” for ourselves, but there is just no time! This Friday, we’re going to be getting ready for Hayley’s party which is on Saturday, and I have to work on Sunday. We should be able to have some quality alone time in Peoria, if you can have quality alone time with twenty aunts and uncles, thirty cousins and their dates or spouses, your mom, dad and sisters all staying in hotel rooms nearby. We’ll have to take whatever we can get, I think. We’re going to be driving down with my sister and her husband, whose company we genuinely enjoy, so that will be fun too. Plus, I get to dress up! Yee-haw!
A couple weeks ago, Jonathan only had a half-day at work so we took the kids to see “Up” at the theater. We had never, ever taken both kids to the show before! Like so many things we’ve been doing recently, it was to be a litmus test for Thomas’ performance during stage and theater presentations at Disney. He was GREAT! Outstanding, even! He was, in fact, better behaved than Hayley. He sat in his seat and wore the 3-D glasses (yes, we sprung for the 3-D effect, but don’t think it added too much to the show. The previews were more impressive in 3-D than the movie was, so FYI, you can probably skip the 3-D showing and do the less expensive non-3-D show) and watched the WHOLE THING without complaint. The only problem was that he talked a lot during the show, asking a lot of questions, but he wasn’t too loud asking the questions and didn’t disturb others. There were plenty of children at this showing in particular that were allowed to run wild all over the place and I’m so glad to say that mine were not among them.
I’m trying to keep up with helping the kid’s reading and writing so that their brains don’t turn to mush over the summer but Thomas is totally on to me. He says, “I’m not in school anymore! I don’t have homework!” And then he finds something else to do. Hmpf. Hayley is still really interested in writing and will write words, asking how to spell them and drawing really cute pictures of people who look like potatoes with toothpicks sticking out for arms and legs. They’re really cute.
Well, there goes the random quiet moment I was able to enjoy today. Thomas is stealing noodles out of the colander and making Jonathan crazy and Hayley has fallen asleep next to me in a position that cannot possibly be comfortable. Ho-hum.


Letter-perfect

Dec 14, 2007 by Anonymous

            Christmas excitement has reached a fever pitch in our house.  Thomas is still vying for the “car to drive.”  We’ve decided we’ll have to get him some kind of ride-on toy with a steering wheel.  He’s been nuts about the steering wheel concept lately.  The old handlebars on his Diego tricycle just aren’t cutting it anymore in terms of keeping Thomas’ interest.

            Jonathan and I will hit the malls tonight and tomorrow to get all of our Christmas shopping done.  My mother-in-law is taking the kids for us so we can focus.  Sunday we’re taking them to see Santa Claus, who is not so scary this year.  We’ve been talking and talking about it, but I’m very interested to see what will actually happen when we get to the mall.  I hope we get the “good” Santa.  At a mall near our house, they have a “good” Santa with a real beard and a jolly appearance.  Unfortunately, when he’s on break they bring in the skinny, pimply-faced Santa with the fake beard and lense-less spectacles.  When Thomas was two and Hayley was a baby, we got the skinny Santa.  We don’t have that picture on display.  We’re on a crusade for an authentic-looking Santa.

            Last weekend was our big party weekend, but the kids only had to go to one:  their cousin’s first birthday party on Saturday.  Thomas loves his aunt and uncle’s house because it has stairs (he curses the day that Jonathan and I were foolish enough to purchase this ranch-style abomination with no stairs – he routinely tells us that he wants a new house with stairs.  Me too!  Ask Santa for that!) so he spent most of the time at the party going up and down, up and down.  That’s fine with me; it’s good exercise for him and keeps him busy.  He did get a little over-stimulated at one point so I put him on the couch and rolled pillows on him.  It’s so funny how Thomas can be jumping around, running absolutely amok and making trouble, but when I starting doing some deep-pressure exercises, he calms right down and gets quieter.  It’s always easy to spot when Thomas is in need of occupational help but I want to get better at recognizing it before he starts going nuts so that we can possibly avoid the whole running amok thing.  He’s not usually disruptive, but people start getting concerned when his face is flushed and he seems completely out of control.  Plus, most other kids and all grown-ups get exhausted just watching him.

            The great thing about Christmas Eve, Christmas Day and Thomas’ birthday party are that the kids get new toys to keep them busy.  Jonathan and I can usually relax a little bit (after we’ve sliced up our arms and hands undoing millions of little twist-ties in an attempt to free Polly Pocket or Lightning McQueen from their cardboard prisons) and “take some wine” as my college drama teacher used to say.  Nothing says “holiday” like bleeding hands, mountains of unnecessary packaging materials and a big box of wine.

            Next Friday will be the Holiday Sing at Thomas’ school and he’s been singing the songs at home, most of which I’ve never heard.  One is about candy canes, “Oh I took a lick from a peppermint stick and thought it tasted yummy; it used to hang on the Christmas tree but now it’s in my tummy!”  Another one is about a chubby little snowman.  I’m so impressed that Thomas can remember these songs; he really is memorizing and regurgitating on command which is so cool!

            Thomas has acquired another talent that I didn’t notice until recently:  he can recognize a lot of letters!  Last year for Christmas, Santa brought Thomas and Hayley the LeapFrog Word Whammer which sticks to your fridge and comes with letters.  You can build three-letter words with it, just explore single letters or make the words that the machine asks to you make.  Thomas will play with it appropriately, finding the letters that the thing asks for.  The other day I was cooking and Thomas was sitting on the floor playing with the Word Whammer.  It asked him to find the letters to make the word “pin.”  He found the “I” and the “N” without any help but finally asked for me to help him find the letter “P”.  (I should mention that the machine tells you the letters to find; Thomas didn’t hear the word “pin” and know how it’s spelled.)  I was surprised when I looked at the machine and thought that maybe it was possible that the “I” and the “N” were already there when he turned the Word Whammer on, but he kept finding the right letters over and over again!  At the beginning of the school year, the teachers always ask what parents would like their kids to learn this year and I’ve been saying that I’d like Thomas to recognize more numbers and letters.  Thomas has obviously been working hard and so have his teachers.  It’s amazing to think that he’s not too far away from learning to read.  I’ve been trying to help him sound out words but he loses interest quickly.  I’m sure it will come.  If he can recognize letters, he can surely learn to read – and soon.

 


Lazy and busy

May 23, 2007 by Anonymous

            The evenings have been running so late for us recently that I just haven’t had a chance to write.  We’ve been busy, too.  I have this dry-erase calendar on the wall in my kitchen to help us stay organized.  After my husband missed a doctor’s appointment a few months ago, I decided to put this calendar on the wall in a high-profile location so that we would miss nothing.  At the beginning of every month, I wipe the old month away and fill in the three or four things I have planned for the new month.  I breathe a sigh of relief and look at my mostly blank calendar.  “We couldn’t be busier than we were last month!”  I think.  Little by little however, the new month fills up and before I know it, things are just as hectic as they’ve always been.

            That’s a long way of saying that we’ve been alternately lazy and busy lately, so the family dinner that used to be at 6:00 p.m. gets pushed back to 6:30 or 7:00.  Baths are late and there’s a mad rush to get the kids in bed by 9:00, by which time Jonathan and I are beat.  Also, there have been a lot of can’t-miss season finales on television lately.

            Anyway, Thomas is still on his “good” day streak that started two Fridays ago.  Of course!  Tomorrow’s the last day of school and he’s finally stopped shouting so much, learned how to behave in the classroom and resigned himself to the rules.  We had Thomas’ IEP meeting yesterday at school.  Jonathan took the day off work to come with and I was really glad he was with me because yesterday had to be on my top ten list of Weirdest Days Ever.

            Everything started fine.  Thomas got on the bus and Jonathan and I took Hayley to her last class at the park district.  We were talking with the other class moms when I got a voicemail on my phone.  I looked at the phone and saw that it was Thomas’ school.  I thought, “Oh, great.  They want to change the conference after Jonathan took the day off!”  I listened to the message and it was the school nurse saying that Thomas wasn’t feeling well and could we come pick him up?  I called back and said that we were coming in anyway and he’d just have to stay with us for the meeting.  We went and got Hayley out of her class early.  When we got to school, Thomas had fallen asleep on one of the teacher’s aides and he seemed just fine when he woke up.  Thinking all was well, we sat down for the meeting and all of a sudden, Hayley spiked a raging fever.  I was almost certain she was going to barf all over me and the school’s laptop and I’d have to discuss Thomas’ progress while wearing half-digested Cocoa Puffs.

            Luckily, Hayley fell asleep.  However, I was so preoccupied with her that I was not able to mentally digest very much.  The upshot of the meeting was that Thomas made a lot of progress in speech this year; he can answer “wh” questions consistently most of the time.  The speech therapist asked Thomas questions to test him, such as, “What do you wear on your head?” and, “Where do you sit?”  He answered almost all of the questions she asked correctly but the funny one was, “What swims?”  Thomas answered, “Me.”  She placed him at two years, eight months for expressive speech and two years, ten months for receptive speech (understanding what is said to him).  So he’s pretty much on-par with Hayley.

            Thomas’ teacher gave him a good report, saying that he came a long way since the beginning of the year and she really enjoyed having him in class because of all the funny things he says!  The speech and occupational therapists said that as well.  Thinking about it, he does say an awful lot of comical things.  It’s hard to see past the day-to-day struggles with Thomas to appreciate his inner personality, but speaking with his teachers reminded us that we need to stop and smell the flowers with Thomas, because he really is an intelligent and fun kid.  When he’s not slamming doors or stuffing his sister into the empty cabinet in his room, that is.

            The wacko day doesn’t stop there!  After lunch, our neighbor called and asked me to pick his son up from day-care for him.  The boy (who is Thomas’ age) had spiked a fever and Dad couldn’t get there right away.  I went and got him, gave him some Tylenol and after a bit he was just fine and enjoying our toys.  Hayley’s fever came down some so we served dinner, which she didn’t eat.  She only drank some chocolate milk which was regurgitated moments later.  I made three spectacular barf-saves with a dinner plate, though!  Not a drop was spilt, and there was no scrubbing involved.  (I know that if we still had carpet, it would have hit the floor and never come out again.)  Hayley is so funny about vomiting.  It doesn’t seem to faze her.  She just does it and wipes her mouth with the back of her hand and declares, “All done!”  Then she barfs a little more and says, “Okay.  NOW all done!”  The two kids who were pulled out of school for illness turned out to be just fine, and Hayley, who seemed to be fine all along ended up being the greatest cause for concern.

            So that was my goofy day.  Thank goodness Jonathan was here with me!  My mom called to ask how the conference went and she said so many wonderful things to me that I cried (thanks, Mom).  She told me how proud she is of me and that we’re doing a great job with Thomas…she said more nice things as well, but I’m not going to go into it or I’ll cry again.  Seriously, thanks, Mom.

            Today, Thomas did something that he hasn’t ever done before…he ate pudding!  He has been averse to all smooth-textured foods before now (except for when he was a baby) and wouldn’t eat yogurt, applesauce, pudding, mashed potatoes or anything mushy like that.  I decided to make myself some sugar-free pudding for lunch because I had a sore throat (which has turned into a cold…hooray!) and thought it would make me feel better.  Thomas saw the chocolate color of the pudding and asked if he could have some.  I said, “Really?  You want some pudding?”  He replied that he did so I gave him some.  He ate it all up and said that he really liked it!  I’m going on my last major shopping-trip of the school year tomorrow since I can’t do that with both kids over the summer, so I’ll get more pudding and maybe some yogurt.  Watch – he’ll never touch the stuff again.  I just thought it was really neat that he tried something new – something he didn’t like before – and enjoyed it!  Plus, it was a brave sensory experience for him since he’s never tolerated that texture.  I was very impressed and if it sticks, it opens up a whole new menu section for us:  The “mushy” food-group.


Ahoy, matey

Feb 22, 2007 by Anonymous

Back to the old salt mill.  (Cry me a river, right?)  Our vacation went by so fast, as they (the good ones) often do.  Jonathan and I had a great time with our friends and the kids were just fine here at home.  Thomas had Tuesday off of school due to snow, but the rest of his week was just “okay,” I am told.  He had been shouting again and my mother-in-law said that she had a long talk with Thomas about it.  Really, he has been pretty quiet since we got home yesterday.

We came in the house with our bags and the kids were in Thomas’ room with their grandma, playing.  Thomas scampered out and got this huge smile on his face and started doing the “Thomas Happy Dance.”  He gave us big hugs immediately.  Hayley came running and said, “Oh, hi Mommy!  Hi, Daddy!”  In an effort to buy back their love right away, I had packed the gifts and pillow-chocolates in an easily accessible bag compartment.  Their favorites?  Hayley liked the (free) Mardi Gras beads I had caught at the party on the Lido deck Tuesday night (family ship – didn’t have to “do” anything to get them), and Thomas’ hands-down favorite is the inflatable replica of the ship we sailed on.  The kids both really liked looking at our pictures, and I showed them where the stingray sucked on my wrist after mistaking me for squid.  There’s a large purple bruise there still (it happened on Thursday) and Thomas likes to say, “That stingray bit my mommy!”  Hayley kisses it to make it better.  I would have avoided the stingray hickey if I could have, but I think it fits in nicely with a “Jaws” theme when the men are sitting around the table in the galley, showing their sea wounds.

Of course, my mother-in-law said that the kids were really good and that Thomas went to bed very nicely every night we were gone.  Luckily, he has kept that up since we’ve been home.  I don’t think either one of the kids holds against us the time we spent away, although yesterday, we sat at the dinner table and Thomas looked at Jonathan and said, “I don’t love you and I don’t love Mommy.  I love Grandma.”  

Thomas seems like he’s getting the sniffles, or it could just be the dry air.  I woke up this morning (after enjoying the high humidity of the high seas) with a stuffed up nose and sore throat.  He doesn’t have a fever so tomorrow, we’re really going to get back into the swing of things.  School for Thomas, class for Hayley and laundry for me.  The thing is that I don’t feel pressured to wash the clothes and send out the dry cleaning because we only packed summer clothes that we can’t wear at home right now anyway.  Is there a huge rush to get those tank tops and swimsuits laundered and put away?  I don’t think so. 

I can’t tell if the kids are being really well-behaved or if I’m just well-rested and relaxed.  Thomas hasn’t been screeching at all, really.  Of course, we’ve only been home for twenty-four hours.  When we were buying souvenirs for the kids on the ship, we were talking about how it would be nice to come home and see them.  In the back of my mind, I was thinking, “Yeah, and after a few hours we’ll wonder why we ever got off the ship.”  I haven’t had a moment like that yet, though.  I was amazed when I saw Thomas and Hayley.  Hayley looks like she grew three inches and Thomas’ hair seems to have grown three inches.  While we were on the ship, Jonathan mentioned that he couldn’t remember the sound of Thomas’ voice and I thought that was strange, but true as I considered it.  Hayley seems to be talking more than ever and even Thomas appears to be more mature somehow.

I think that the week away did us all a lot of good. Including the dog.



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