Children’s GI problems appear less likely to respond to autism treatment and therefore GI symptoms may need to be considered and treated when creating a treatment plan for a child with autism.
The purpose of this study was to study the GI problems in a large sample of children with autism. The authors studied 172 children who entered two large-scale autism drug therapy trials. The groups (GI problems and no GI problems) were the same with regards to sex, race, special education placement, and family background. It seemed that those children who had more GI problems also had more behavioral problems. Children with autism and GI problems also had more social problems than children without GI problems.
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Responding to visual schedules
Dec 28, 2010 by AnonymousOne of the most important things to remember is that our words disappear, visuals (pictures) do not.. We all use visuals in one form or another, calendars, post it notes, grocery lists, etc. We all look to visuals for information for instance on the highway for a hospital, gas stations, places to eat and restrooms, divided highway ahead, merge to the right, speed limit 35 and Stop. Visual strategies though, are created with an intended focus of giving particular person information that they are not picking up naturally. If one mentions an abstract word to a group of people, they all may have a different vision of what that word means or looks like. A picture of the correct definition puts everyone on the same page with regards to comprehending the intended meaning of the word for that purpose. For instance your child may associate “eating” with their favorite cookie so when you say “we are going to eat” they are envisioning getting their favorite cookie, when in fact you are talking about giving them an egg for breakfast. There is confusion and probably a meltdown because they have a different view of what “eat” means. Visuals can help take away that confusion for them as well as their expectation of getting the cookie, especially if they are looking at a picture of a plate of eggs, then they are prepared as well for eggs for breakfast, or for what “we are going to eat.”
Visuals can be used to teach so much more than just schedules. I am the mother of a daughter with autism, who is now 16. I began using visual strategies with her when she was 3. They were affordable, I could do this myself and I did not need expensive equipment to find success. My daughter did have speech and occupational therapy and she did have a supportive team at school. I used visuals to teach routines, behaviors, social and academic rules, academics and the list goes on and on. I used them mainly to teach comprehension of our very abstract language and to also teach preparation for change. I created transition tools for moving from one environment to the next. She had bookmarks for the rules of the library, she had another bookmark with the class rules for doing seatwork as well as a foam cutout of a lunchbox with what to do when the lunchroom gets too noisy rule. I found the visuals were the bridge or the key to her understanding. They need to be used consistently, and you must have patience and you cannot give up. When my daughter looked confused, I would ask myself what it was about the situation she did not understand and then I created a visual to show her.
My daughter is now 16, a junior in high school, and is taking honors classes and two AP college level classes. She is fully included and was on the yearbook and school newspaper for two years. She has a great interest in sports and so her articles involved interviewing coaches and players for the articles. I believe the early intervention; with the use of visuals throughout the years is a major part of her success.
I co-authored a book with Linda Hodgdon, who is well known internationally in the use of visual strategies for individuals with autism. Linda has written two great books “Visual Strategies for Improving Communication” and “Solving Behavior Problems in Autism”. These were my constant companions and you may find them helpful as well. As a result of using all these visuals with my daughter over the years, I co-authored an e-book with Linda called “Practical Communication Tools for Autism-Visual Strategies for Lifelong Success”. It is about the journey with visuals and how they worked as well as pictures of many of them with my daughter. These can be found at www.usevisualstrategies.com
No matter what resource you use, the bottom line is to get started, be patient, consistent and to not give up trying. You don’t need to be trained in using a “system”, use your gut instinct. I tore apart magazines for pictures and used cereal box tops for cereal choices. This was before the age of the digital camera and film was expensive, but I did take a lot of pictures as well. I had to teach my daughter how to point and until she could. I read her facial expressions when I placed her hand on a picture. We did a lot of detective work and we worked through many obstacles until we got it right, but it was so worth it. Visuals have no side effects and are easy to use and affordable…best of luck
Living Gluten Free – Right to Heal
Feb 22, 2010 by karmic healthBy Sandi Star, CCN
After struggling for over 40 years with chronic migraines, IBS, Muscle and joint pain, fatigue, brain fog, asthma and a slew of other ailments and frustrations I decided to take a closer look at the cause rather than obsessing on the symptoms. I was tired of relying on doctors to give me answers and tired of the medications that only gave me side affects and little relief.
I had been committed to health and fitness for over 20 years, losing close to 50 pounds and 5 dress sizes, however I still had all the chronic conditions that played havoc in my life. I realized there was a key element missing and soon found out it was my reaction to gluten and dairy. I didn't know enough about food intolerance or allergies or at least put the two together. I never believed food could have such a serious impact on overall health let alone be the direct cause of my diseases. With what I know today I’m surprised my doctor didn’t put the connection together when he diagnosed me with Sjögren’s Syndrome (autoimmune disease). Sjögren’s is one of the symptoms of Celiac along with a long list as you will see below and nutrition plays a critical role in the healing process. By making the appropriate diet changes – (gluten and dairy free), I’ve managed to eliminate my migraines, IBS………etc., etc., and have the Sjögren’s Syndrome under control. Even better, I have eliminated all medications and use food and natural remedies for nutrition and overall health. Now that you know why I became a clinical nutritionist and why I started Karmic Health lets get into the details of why it’s so important to understand gluten and its relation to diseases.
Why the problem with gluten now? A lot has changed in the way we harvest food compared to 50 years ago. Some of the seed companies began engineering wheat kernels that could be more easily ground and produce fluffier flour to make the soft, delicious white bread for example had to have greater yields; it made more money for the farmer and increased sales.
Gluten is a composite of the proteins gliadin and glutenin. These exist, conjoined with starch, in the endosperms of some grass-related grains, notably wheat, rye, and barley.
Understanding what happens in the body and some of the symptoms will help millions of people who go undiagnosed. Celiac is the most common genetic disease of mankind (yet for every person diagnosed, 140 will go undiagnosed).
A wheat allergy is the body’s abnormal autoimmune response to a certain protein component of wheat; it’s exhibited by a severe sudden onset allergic reaction. Usual symptoms are immediate coughing, asthma, breathing difficulties, and/or projectile vomiting. It can cause life-threatening responses in allergic people. A true Wheat allergy affects less than 1/2 % of population.
Intolerance's are much more common than true food allergies but are harder to diagnose. Food intolerance is an adverse reaction to food that does not involve the body's immune system. Generally food intolerance is an inability to properly digest certain foods. In some cases food passes right through the body before digestion is complete.
Leaky Gut is an increase in permeability of the intestinal mucosa to luminal macromolecules, antigens, and toxins associated with inflammatory degenerative and/ or atrophic mucosa or lining. Put more simply, large spaces develop between the cells of the gut wall allowing bacteria, toxins and food to leak into the bloodstream. Leaky Gut Syndrome has also been linked with many conditions, such as: Celiac Disease, Multiple Sclerosis, Fibromyalgia, Autism, Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Eczema, Dermatitis, and Ulcerative Colitis.
Celiac disease is an autoimmune disease caused by an inappropriate immune response to dietary proteins found in wheat, rye, and barley (gluten and
gliadin). This response leads to inflammation of the small intestine and to damage and destruction of the villi that line the intestinal wall. These villi are projections (small folds) that increase the surface area of the intestine and allow nutrients, vitamins, minerals, fluids, and electrolytes to be absorbed into the body. When the villi are destroyed, the body is much less capable of absorbing food and begins to develop symptoms associated with malnutrition and malabsorption. When the body is exposed to the gluten and gliadin proteins, it forms antibodies that recognize and act against not only the grain proteins, but also against constituents of the intestinal villi. As long as the patient continues to be exposed to the proteins, he will continue to produce these autoantibodies. Celiac disease is found throughout the world but is most prevalent in those of European descent. It can affect anyone at any age and is more common in women. It is thought to be an inherited tendency that is triggered by an environmental, emotional, or physical event – although the exact mechanism is not fully understood.
According to the National Digestive Diseases Information Clearinghouse, about 5 to 15% of close family members of a celiac disease patient will also have the condition.
Symptoms
There are literally dozens, if not hundreds, of symptoms of gluten intolerance. It all comes down to inflammation in the body! Many people believe the most common symptoms are gastrointestinal in nature - yet the majority of people with gluten intolerance (and celiac disease) have extraintestinal symptoms.
The most common symptoms of celiac disease include:
• Fatigue
• Addison’s disease (hormonal disorder)
• Gastrointestinal distress (gas, bloating, diarrhea, constipation, vomiting, reflux)
• Headaches (including migraines)
• Infertility
• Mouth sores
• Weight loss/gain
• Inability to concentrate
• Moodiness/depression
• Amenorrhea/delayed menarche (menstrual cycles)
• Bone/joint/muscle pain
• Dental enamel hypoplasia (dental enamel defect)
• Short stature
• Seizures
• Tingling numbness in the legs
The “cure” is a life long gluten free diet.
Making the Transition
1. Have a reality check. Remember this is a choice! If you want to feel lousy for the rest of your life and get worse as time goes on then continue eating gluten. If you want to start on a journey to heal; go gluten free!
2. Give it time. It takes time to heal. Take the 45 day challenge.
Within this time frame you will notice the brain fog is gone. Your body will start adjusting to a healthy weight. Yes, you will lose the bloating and weight around the middle. Don’t be discouraged if it takes a little longer to feel 100%.
3. Look at your current diet and go through your pantry and refrigerator to find the foods and meals you already eat that are gluten-free. You may need to keep a food journal if you haven't already.
Be sure to list condiments, ice creams, produce, snacks, and other foods.
This list will be helpful as you create menus around your new foods and give you encouragement that you're already on the right track!
4. Give yourself permission to eat things that you may have restricted from your diet before your diagnosis. Potato chips or GF cookies may not be appropriate for other people, but they are a treat in a GF diet in small doses of course. You will need to find treats for yourself initially as you adjust to this diet. Count calories after you are comfortable with your new way of eating, manage your portions instead.
Once you are comfortable with the switch start cutting back on refined grains, crackers, breads, etc., to help the gut heal quicker. In all honesty, bread will not be that important. It's all about taking baby steps!
5. Look at your current menus and meals and find ways to eliminate gluten from your diet. Replace bread in sandwiches with GF bread or green leaf lettuce and add your favorite fixings and condiments. Have breakfast burritos with rice tortillas instead of toast and eggs. Look for GF hot and cold cereals (must not have barley malt) and have those handy for a snack or meal. Replace bread and crackers with tortilla or corn chips, brown rice cakes or popcorn. For example, chicken or tuna salad on rice cakes or scooped onto corn chips is delicious. Popcorn is a filling side dish with soup. Be on the lookout for meals on your current menus or the menus of friends and family that are naturally gluten-free (roasted chicken, baked sweet potatoes and steamed veggies, for example) and make them a staple on your new menus. Surf the internet, watch cooking shows and browse magazines for ideas and adapt them as you see fit.
6. Clear out any and all foods that have gluten, wheat, wheat flour, oats, oat flour, rye, semolina, or modified food starch from your pantry. This will allow you to see how close you are to living gluten-free already. If you have family members living with you who are not gluten free, you might consider giving the "offending edibles" to them to be put in another part of the house while you learn to live and think gluten-free. As time goes on you can cook for the entire family without gluten.
7. Plan and prepare your meals ahead of time. Being caught hungry without a plan is not a good idea! Keep a few GF soups on hand in case of extreme hunger. Keep a small cooler in your car with snacks such as nuts, dried fruit and water. It helps to outline and pack any meals you're eating at home and away from home, including snacks. An example could be -
o Breakfast: scrambled eggs and mixed vegetables rolled in a rice tortilla, sliced apples, and coffee.
o Lunch: Lettuce with turkey, avocado slices, tomato, and mustard, 1 oz. chips, and 2 organic dark chocolate pieces.
o Dinner: Grilled fish or chicken with mixed vegetables, wild rice, and fruit.
o Snacks: 1 oz. almonds and popcorn.
o Desert: Coconut Ice Cream or fruit.
Tips
1. Be patient with yourself. You'll have days when being gluten-free is really depressing (maybe even "fall off the wagon"). This is normal.
Relax – it’s a process.
2. Carry snacks with you wherever you go. It's often difficult to find an appropriate snack when the hunger strikes. GF bars are great!
3. Arrange with the hosts of gatherings you may attend to bring your own sides or complete meals. Most people are very supportive of restricted diets.
4. Carry a small cooler in your car with small cold packs to store fruit, snacks and water.
5. Consider avoiding restaurants during your transition phase as you learn how to eat and think gluten-free. Grilled meats (over a flame), baked potatoes and salads without croutons are usually safe bets. But keep a log of places you eat, what you ate and how you felt afterward. Gluten is insidious and can turn up in the oddest places (french fries, for example which can be dusted with flour).
6. Get your hands on cookbooks or start collecting your own recipes in a binder.
7. Carry digestive aids (enzyme and bioflavonoid) with you in case of accidental ingestion. There are ones specifically for gluten such as GlutenFlam by Apex Energetics; available from your healthcare practitioner.
8. Consider taking a multi-vitamin to make up for vitamins and minerals you may lack with your new diet (ask your doctor or nutritionist if necessary).
9. Find a mentor or support system.
10. Breathe
About the author: Sandi Star, CCN
Sandi is the founder of Karmic Health, specializing in nutrition related to disease where a gluten and casein (dairy) free lifestyle is crucial; working with celiac, autism and all auto immune disorders. Sandi graduated from The Natural Healing Institute with a degree in Clinical Nutrition and is continuing her studies in Clinical Herbology. She has hands on understanding of many health issues and has dedicated her life in helping others reach their optimal health.
For more information related to this article please visit www.karmic-health.com or contact Sandi Star at 760.685.3154
© Copyright Karmic Health 2010
Drinking buddies
Aug 31, 2009 by AnonymousWell, I was worried about the wrong kid.
How long did we wring our hands and experience gut-wrenching anguish over Thomas’ surely difficult and confusing transition to all-day, eat-lunch-at-school first grade? On the first day of school, he kissed me goodbye and walked in the building. Okay, so long! See you later! Hayley, on the other hand, was rather upset, sobbing loudly. I have a bit of a dilemma on my hands that I have to drop Hayley off at the Kindergarten entrance and Thomas gets dropped off at the First Grade entrance. So on the first day, it was pouring outside (naturally) so we had to walk into the hall. I left Hayley, who wasn’t listening to me and when I told her that I’d be right back after I found out where Thomas needed to go. I walked about ten feet away when I heard her crying. One of the aides who knows Thomas offered to take him to his class so that I could stay with Hayley, which I did, until it was time for me to leave her. She was crying – loudly and a lot.
Jonathan and I were completely confused by this behavior. Hayley had been in that classroom once every week for the past school year! However, Jonathan made the sensible point that I had been with her the whole time she was there. This was the first time I left her there. Okay, that makes sense. Anyway, Hayley stopped crying shortly after I left and ended up having an okay day. Since it rained for the first three days of school this year, Jonathan was able to pick up the kids with me which was nice for him and the kids. Thomas was very excited to see Jonathan after his first day of school. We immediately noticed that Thomas had forgotten his lunch box and home folder so we had to go back in for them. His teacher said that he did a fine job and the social worker said that the few times she poked her head in the room, he was doing great. So Thomas is off to a surprisingly smooth start. Of course, I remember last year when there was a “honeymoon period” right at the beginning of the year and then things went downhill a bit. I might be remembering a couple years ago when Thomas was in preschool. I don’t know. I just hope we keep grooving like this.
Thomas is doing fine eating lunch at school, although he rarely finishes. I guess he eats like Jonathan – slooooooowly. Most days, he brings his bag home with leftovers. He always asks for a snack when he gets home which is not that weird – most kids have after-school snacks. But I hope he’s getting enough time to eat. Rather, it’s probably that he doesn’t stay focused and eat when it’s time to do so. He might be socializing with the two girls he sits next to. Anyway, he likes recess and he likes eating lunch at school. We’ve managed to put other edible (to Thomas’ standards) items in his lunch box so that we don’t have make pizza every night to put in the lunch box the next day. He eats chicken nuggets and chicken sandwiches too. We put a juice pouch or chocolate milk in there along with maybe a granola bar and fruit snacks. The fruit snacks are always finished when we get his lunch bag back. It’s usually the nuggets, pizza or sandwich that is half-eaten.
Part of the program in first grade is learning to read, so we have to read with Thomas for twenty minutes every night. I have modified this program to reading one book at night. Making Thomas try to do anything he doesn’t enjoy for twenty minutes is frustrating for him and us. He’s able to recognize words when prompted, so he’s got a good foundation. I just wonder when he’s going to start trying to sound out words on his own. He makes the word sounds but doesn’t put them together. And then there’s Hayley, who’s prone to know-it-all-ism, hanging over my shoulder, shouting, “Mommy! I know that word!” It’s hard getting her to keep quiet while I’m trying to get Thomas to read. I’ll have to put her in her room while we’re trying to read from now on.
It’s hard, too, to try and get everything ready for school on nights when I work. I try to get lunches made and homework done before I go to work at 5 p.m. But I suspect I’m preaching to the choir of my readers here…I don’t even work full-time, so I have little room to complain about trying to keep everything running smoothly. Things are going well for me at work, though. They really seem to like me and I won Employee Of The Month while we were in Florida and they want me to start training new people as a “Neighborhood Expert” which I am not officially yet as I have to attend some sort of “expert camp” or retreat or something before. At least it’s nice to be appreciated.
One funny story and then I’m off to collect Hayley from school: The last time the kids were at the cottage, they went out for ice cream. Hayley and Grandma ordered the same flavor, so Mary said that they were “ice cream buddies.” Fast-forward to this past Friday when Hayley and Thomas both chose to have grape Kool-Aid for dinner. Hayley looked at her cup and his and declared, “Thomas! Look! We’re drinking buddies!” Jonathan and I laughed until there were tears in our eyes.
The DAN Protocal & our Bio-Medical journey
Feb 14, 2009 by AnonymousMy grandson is 5 years old and we are following the DAN protocal. He had severe "gut" issues that went along with being autistic. In October 2008 we started him on the GF/CF diet and it has made a HUGE difference in his life. Since then we found a Defeat Autism Now (DAN) Dr. and she is leading us down the road to recovery from autism. I would like to speak to others that are going down the same road that we are so we can share our experiences.