A survey of Nigerian health care workers showed that the workers may have some negative opinions or beliefs about autism and autism therapies.
The researchers surveyed 134 Nigerian nurses about their attitudes and opinions related to autism. The survey found that 55% of the nurses thought that autism was treatable and 32% thought that it was preventable. Nurses working less than 6 years were more likely to think autism was preventable. Also, 25% of the nurses thought that autism was caused by supernatural causes. The authors think that changing the opinions of the healthcare workers through education is important. The authors also think that families of people with autism would be more likely to seek care and therapy if the healthcare workers encouraged it.









Please comment on this autism topic.
Responding to relationship development intervention (RDI)
Jan 16, 2011 by Anonymousi have 2 children with asd; my youngest (boy) was diagnosed 1st. at 3&1/2 while my daughter was over 8. same diagnosis. looks a little different but dealt with alot of predjudice in health care to acknowedge issues. used aba for my son for 1 year... it did help him in groove to follow rules and improve language... plus he started reading which was awsome. we switched to rdi when he was 5 yrs old. talk about family improvement... slowing it down, decreasing verbal language, increasing non verbal and referencing .. goal is building quality of family unit. my son is now in grade 2 and motivated to do things by himself... he knows he can ask without a tantrum if he needs help.. our daughter is very self conscious and trying to rein force different minds. when you practice it you see the result of a calm connection.. and it gives you hope . colette mann
Updated Information from iBiomed Creators for Tracking Autism Therapies
Jan 4, 2011 by scottieKnowing the financial burden attached to being a caregiver for an Autistic child, we were compelled to build a free web version for users who do not have a smartphone. In our journey with our children we realized that we needed healthcare providers, educators and mentors on board when it comes to improving the quality of care a person receives. The website is ready but is in the testing phase. Here is a link to pictures of what it will look like: http://www.facebook.com/photo.php?fbid=188241727857292&set=a.188241557857309.51353.146190262062439. We encourage people to go to http://bit.ly/eoHQUR to be notified when iBiomed Health Organizer & Network is released to the general public. Please add us as a resource on Healing Thresholds. Thanks again.
iBiomed is a mobile application which was recently featured in the Post and Courier newspaper, in Charleston, SC. and the Wall Street Journal. It was built by Florence Iwegbue & Kwame Iwegbue who is also a Physician in Charleston, SC. They personally built this software in order to ease the back breaking burden on their family, after their son was diagnosed with Autism and started having unexplained seizures: "We developed the software specifically to manage our son's Autism care, but we now realize that it goes way beyond the world of Autism." They hope to spread the word about this software because they know all to well, the pressures & stress that caregivers and families of children with special needs have to endure.
iBiomed is a free native iPhone/iPad application designed to manage the health and well being of children with Special Needs or individuals with complex, chronic medical illnesses. The App is now available for a free download from the App store. They have left it free because we believe this tool would be of great benefit to many people living with complex medical conditions requiring multiple healthcare providers, medications, tests & rehabilitative therapies. "We cannot articulate why we are so driven by this effort but we believe the medical community has long awaited it. We also believe that as a family it is a calling for us because of the special skills we possess and the circumstance we have found ourselves in. Our son has taken us on an unforgettable journey." Below is a link to watch a demo of iBiomed and a link to our site and Facebook group for pictures of the App in action. They realize that not everyone has an Apple device so we will be making it available for free use online by the end of this month. People can register here to be notified upon it's release: http://bit.ly/eoHQUR.
Click Here: http://bit.ly/iin5H9 for info on how iBiomed can help Health care Providers, Therapists, Nutritionists, Chiropractors, Acupuncturists, Educational Institutions, Vendors and other Holistic Practitioners.
The iBiomed Software allows you to create an Interactive Social Network Bio. If you are a vendor, Holistic practitioner, Healthcare provider, Therapist, Blogger, or mentor, this feature allows an easy one-click access to you, your product and your service.
iBiomed's Features Include:
1. Treatment Log Book:
Keep detailed records on the go and soon online with a mobile logbook for Prescriptions, Supplements, Therapies, Diets, Allergies, and Tests.
2. Add Multiple Time Stamped Notes to each of the above treatment items.
Your Notes are easily search-able.
3. Manage the Treatment of as many people as you'd like; Just as with a portable electronic medical record.
3a. Add as many Supplements, Medications, Tests, Diets and Therapies & Alternative/Holistic Treatments as you’d like.
4. Treatment Journal:
Keep a Journal or Daily diary for each person whose treatment you'll be managing with iBiomed. The Journal entries are time stamped and easily search-able. e.g. foods, behavior logs or side effects and reactions.
5. Treatment History:
Review your treatment history of tests, supplements, diets, therapy notes, behaviors and journals. You can also edit past log entries, including test results. If the test results are numerical, you can easily differentiate between normal and abnormal values.
6. Treatment Reminder:
Treatment alerts to help you remember to administer supplements, medications tests and even Therapy sessions and medical appointments.
7. Share Treatment Information:
Share details of your treatment plan with family, health professionals, therapists or nutritionist by email. iBiomed can automatically generate an email summary of your treatment plan and treatment history by date range.
8. Supply Tracker for Rx & Supplements: Lets you know when you should reorder a prescription or Supplement.
9. Health Forum with "Smart Topic Filter" and Push notification to your mobile device: Now all your forum questions & answers can be accessed on your phone. It is also a so a great platform for parents and healthcare providers to interact.
10. Customizable Graph to track just about anything a person wants to watch closely; from symptoms to behaviors, appetite, sleep, or anything you want to track.
11. Available for online use at biomedprofile.com in January 2010. iBiomed Online Health Organizer will have all the same features of the App and much more. Go to: http://biomedprofile.com/index.php?option=com_content&view=article&id=54&Itemid=61 to Sign up to receive an email notification when the site is ready for online use.
Ayurveda for Autism Spectrum Disorder
Jan 4, 2011 by sunethriayurved...Hi everybody,
I am Dr.Prasad M, MD (Ay.), working with autistic kids from 2002 onwards. I went through the article mentioned. Let me share with you an unbiased information on the scope of Ayurveda, the age-old Indian system of Vedic medicine, in the treatment of ASD. This is based 100% on my personal experiences. Kindly see the following passages. Comments and criticisms are welcomed whole-heatedly.
Scope of Ayurveda in Autism Spectrum Disorder
Trials with Ayurvedic medicines and treatments for their efficacy in ASD are going on at various centres in India and abroad. The main advantage of ayurvedic medicine is that it has got a magazine of safe therapeutic preparations of various forms which are developed by continuous trials and rectifications over thousands of years. There are many preparations like kwatha (decoction), churna (powder), arishta (self-fermented beverage), gudika (pill), ghrtha (medicated ghee), thyla (medicated vegetable fats) etc. In recent times, many of the herbs used in Ayurveda are proven to have excellent detoxifying effect as well as free radical- scavenging potential. The therapeutic preparations like kwatha are combinations of many herbs. These combinations are originally developed on the basis of ayurvedic principles. Till recent times these formulations were not given due consideration by the western scientists. But now the picture has changed. More and more ayurvedic preparations are under their evaluation. In Ayurveda, the compounds as well as single herbs are used for different purposes of health care like pacifying vitiated functional units called doshas, eliminating excessive toxic accumulations, providing targeted nutrients to tissues, tuning the mind-body coordination, sharpening the efficacy of sense-organs, and so on. These prescriptions are based on personalised evaluation of different aspects like body constitution, doshik status, power of digestion and assimilation, status of bowel evacuation, physical strength, mental constitution, and etc which is done by experienced physicians. Mind is an important factor in the healing of any ailment. It is assumed that mind is like ghee which is held inside a pot called body. If the ghee is hot the pot also gets warmed and if the pot is hot definitely the ghee also will be hot. You cannot expect warm ghee in a cool pot and wise versa. Similarly, food is given the supreme role in the healing process as well as in the maintenance of health. It is a basic concept in Ayurveda that there is no use for any medicine if one stick on to pathya (wholesome) food (as it brings about health spontaneously) and there is no use for any medicine if one stick on to apathya (nasty) food (as there is no scope for functioning of the medicine). In the context of autism, these assumptions are extremely important and seen exceptionally beneficial.
The care of autism, as per ayurvedic principles, is based on the protocol of a three-step intervention.
Again, though the stages are generalised the execution will be personalised.
The first stage is based on medicines almost completely. Medicinal preparations like purgatives, specific formulations for de-worming, for enhancing the functions of the liver and pancreas, for enhancing the digestive fire (Agni), and for regulating the intestinal motility are used in this stage. Certain preparations meant for squeezing out heavy metals from the tissues are also used. Turmeric, garlic, curry leaves, etc are having this advantage.
Second phase is mainly comprised of massages. Traditional methods like abhyanga (hot-oil massages), udwarthana (dry powder massages), pindasweda of various types, thalapothichil, pizhichil, etc are used here. These manoeuvres improve the muscle tone, reduce hyperactivity, create better motor coordination, and normalize most of the obsessive repetitive movements. Child sleeps well. The bowels become more regular at this stage. He/she will be more receptive to commands or suggestions. The demand for sensory stimulation slows down considerably and the symptoms like increased sensitivity to certain sounds (hyperacusis) slowly disappear. There will be oral medications parallel to the therapies and a few of these medications will be carried over to the next phase as well.
Third stage is very specific and sold not be started before the proper completion of the first two. This is an important point as there is a general tendency to mark the condition as mental retardation and to prescribe brain tonics and memory boosters to all autistic kids indiscriminately.
The major therapies in this stage are shirodhara (pouring of liquids like oils on the head), shirovasthi (holding of medicated oils on the head inside specially designed leather-rims), shiropichu (wetting the scalp with oil bandages), dhoopanam (fumigation with specific medicines) etc along with specific medications like kallyanakam kashayam, indukantham kashayam, gorochanadi gudika,balakanakapathradi kashayam, sidharthakam gudika etc. Certain specific herbs like sahadevi, sankhapushpi, vacha, vishnukranthietc are also used. Follow up is done with ghee preparations like mahakallyanaka, mahapaisachika, brahmighrtha, saraswathaghrtha, etc.
Conclusion
It is seen that the classical ayurvedic treatment done systematically give promising results in kids diagnosed with ASD. But it should be emphasised that the level of improvements is different from child to child. Another important point is that these interventions are made in a corrective manner. The child gets relieved of a lot of physical problems and tantrums. But this will not make him/her a normal child. Intensive training and special education are needed to put him on track and to catch up the peers. This requires the dedicated involvement of parents, special educators, and skilled professional like occupational therapists.
Autism and Deafness Event
Oct 20, 2010 by Deaf AutismCalling all educators, health care personnel, family members and other allies
interested in individuals (children & adults)
with autism spectrum disorders who also are deaf or hard of hearing
Understanding a Dual Diagnosis: Children and Adults with Autism who are also Deaf/Hard of Hearing
< Special Educational Event! >
Why: To learn more about this dual diagnosis and how to better serve people affected
To give your ideas on creating a statewide support and information association for professionals and parents
What: Guest presentation by Joseph Trapani, representative from the National Deaf
Academy, Mt. Dora, Florida. NDA has a specialty program aimed at serving
deaf/hh children & youth with co-occurring autism spectrum disorders.
Small group and large group brainstorming and visioning for new association
When: Wednesday, November 10, 2010,
9:30 – 12:30 presentation and visioning
1:00 – 2:00 PM - Planning for next steps for interested stakeholders/Logic Model
Where: Colorado School for the Deaf and the Blind
33 N. Institute Street
Colorado Springs CO 80903
Cost: This event is free but donations would be greatly appreciated to pay for refreshments, interpreters, and materials. Some support may be available for families to attend: apply for a scholarship to Janet@handsandvoices.org.
To register: Contact Lorri Park, Autism Society of Colorado lorri@autismcolorado.org
720-214-0794 x11 by November 4, 2010.
Please advise if interpreting or other access is needed.
Unable to attend in person, but interested in possible webinar attendance?
Unable to attend, but want to give feedback on needs and desires for this population we serve?
Please contact lorri@autismcolorado.org. Lorri will email information about potential webinar attendance and email a prepared survey to you to return by November 4, 2010.
Event Hosts: Autism Society of Colorado (Lorri@autismcolorado.org)
Colorado Families for Hands & Voices (editor@handsandvoices.org)
Rocky Mountain Deaf School
Colorado School for the Deaf and the Blind
Colorado Department of Education
Bill Daniels Center for Children’s Hearing and more to come…