Autism Therapy: home care

definition of home care: not yet defined.

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Difficulties Experienced by Families with Disabled Children
JSPN, by Sen, E., and Yurtsever S., published in 2007, summarized May 6, 2008

Nurses can protect families and children with autism by helping to organize the care of the child.

This study was designed to describe the problems that parents have when taking care of children with disabilities. Many times a diagnosis can cause conflict within a family. Many times the mothers do most of the care taking and they do not get the support that they need. Two in five mothers in the study were blamed by the family members for having a child with a disability. Nurses can support mothers by giving information, counseling, and support for home care.


Comparison of Indicators for a Primary Care Medical Home Between Children with Autism or Asthma and Other Special Health Care Needs
Arch Pediatr Adolesc Med, by Brachlow, AE, Ness KK, McPheeters ML, and Gurney JG, published in 2007, summarized Jun 1, 2007

Children with autism do not get the best treatment from their doctors and this may have a bad effect on their outcome.

This survey was designed to see if children with autism receive what the American Academy of Pediatrics (AAP) defines as medical home care. Medical home care is doctor care that is: "accessible, continuous, comprehensive, family-centered, compassionate, culturally effective, and coordinated with specialized services." This United States survey found that children with autism are half as likely to have a medical home as children with other special health care needs. The results agree with a different survey that found that only half of parents of children with autism feel that their child has a medical home. The authors believe that doctors treating children with autism need to better understand community resources, send children for expert support, and help families maintain a therapy plan.


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Florida State Senator Creates Web Portal for Families with Autism to Manage Healthcare

May 17, 2012

Florida State Senator, Jeremy Ring, understands the problems of parents of kids with autism and other behavioral difficulties managing their child’s healthcare. He developed a Facebook-like, but private, free Web-based healthcare management platform. Mercurian helps families organize family care teams – this can be anyone from a home care attendant to a relative to teachers and therapists. Team members can share as much information as they like to help track the child’s progress. The hope is that the data collected will help families notice changes in behavior, improvements in communications between families and professionals, and provide updates to schools and physicians.

Read original article: Senator Creates Website for Children with Autism


ABA Lifeline Interactive Makes Autism Assistance Accessible

May 22, 2008

Jean Muckian, the Wisconsin founder of ABA Lifeline Interactive, hopes her tool will make applied behavior analysis therapy more accessible to more families struggling with autism. This family-based intervention can be loaded onto a computer or iPod and accessed anytime. Ms. Muckian states, "The ABA Lifeline Interactive tool teaches parents to function without the added cost of an in-home care individual, while allowing for constant positive reinforcement of their teachings." Parents move with their child's successes to each level of instruction.

Read original article. 


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