Autism Therapy: insurance

definition of insurance: Health insurance is a system designed to manage the risk of having a medical cost. In order to offer health insurance, someone (such as an insurance company) gathers a large group of people and tries to decide what is the chance that people in the group will need a type of therapy and what that type of therapy will cost. The total cost of all therapies for the entire group is then spread between the members of the group and paid by each person as the cost of insurance against needing the therapy. When a member of the group needs the therapy, the insurance company then pays for it.

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Research in Autism Spectrum Disorders, by Young, A., Ruble L., and McGrew J., published in 2009, summarized Oct 1, 2010

Children with autism who have public insurance seem to do as well as children with autism who have private insurance.

There are very few studies that look at how the type of insurance a family has affects the therapy received by a child with autism. The purpose of this study was to compare families with public and private insurance to see the services that they received for their children with autism. In the state of Kentucky, families with public and private insurance had the same out-of-pocket expense, service use, and mixture of services used.


Journal of Autism and Developmental Disorders, by Bouder, JN, Spielman S., and Mandell DS, published in 2009, summarized Jul 16, 2009

Insurance premiums (monthly payments) would increase slightly for everyone if insurance companies pay for autism-related services and therapy.

The authors calculated how many people have been getting autism-related therapy, and how much those therapies cost. Then they figured out how much it would cost private insurance companies to pay for it. They estimated that the monthly payments for all of the people insured by private companies would go up about 0.2-2%.


Pediatric Annals, by Wegner, LM, and Macias MM, published in 2009, summarized Apr 30, 2009

In order to provide a medical home for children with autism, doctors will likely have to spend time developing and working with teams of community-based specialists.

This article describes how insurance can be billed to pay for the many services that are often required for children with autism. The authors start by stating that every parent who takes their infant and young child to visit the doctor should ask about child development. If there seems to be a problem, then a screening test can be given and these can be charged to insurance. The time needed to score and explain the test to parents can also be billed to insurance. The article goes on to describe how codes can be used to bill insurance for care of children with autism.


Managed Care, by Reinke, T., published in 2008, summarized Nov 17, 2008

Many states are seeking to follow the lead of Pennsylvania and Louisiana and expand private health insurance coverage for autism services.

This article discusses who should pay for autism treatments. Under the U.S. Individuals with Disabilities Education Act (IDEA), early intervention and special education programs must provide services to children with autism. This will be a large cost if health insurance has to pay the bill for services offered in public schools. The concern is that the cost of health insurance will go up so much that small businesses will no longer be able to afford health insurance. The hope is that more and more children will be able to shed the autism diagnosis by age 8.


When Linda O’Brien couldn’t find an autism therapy center near her, she opened one; in fact, she has opened three in Florida. Spectrum House provides certified applied behavior analysis (ABA) therapy to children and adults on the autism spectrum. Spectrum House focuses on families in the military and accepts TRICARE insurance. In addition to ABA, Spectrum House therapists help with military-specific issues, host a mock apartment for living and cooking skills, and provide therapeutic horseback riding.

Read original article: Woman Opens Therapy Centers


Melanie Fowler, with degrees in speech pathology and special education, was still unprepared for her son’s diagnosis of autism. She and her husband Seth decided that they could help other parents “navigate” the system of schools, therapies, family interaction. Melanie wrote Look at My Eyes to help parents and to provide information for teachers. The book covers practical issues that include: finding a baby sitter, dealing with insurance companies, and having fun with your child. While Melanie wrote the bulk of the book, Seth provided insights that only a father can, and he blogs frequently on their site, www.lookatmyeyes.com. Since writing the first book, they’ve learned even more and want to share that in a second book.

Read original article: Family Crafts a Guide for Living with Autism


Mechelle Geier’s son Trevor was diagnosed with autism and had a difficult time communicating. Geier was told that he might never talk. She enrolled him in Kaufman Children’s Center’s TrainIn, which is a 4-week intensive applied verbal behavior program. TrainIn’s goal is to “jump-start” communication. A therapist at TrainIn explains, “The children come for two and a half hours a day, five days a week … to receive intensive intervention in speech language and play interactive type of skills." Geier is so impressed with Trevor’s results that she has started a foundation to assist families in paying for speech and other therapies that Michigan insurance companies will not cover.

Read original article: Kaufman Center's "TrainIn" Program Gives Autistic Boy's Family Hope


Currently the only FDA-approved biofeedback/neurofeedback equipment use is for “relaxation,” however, some scientists, therapists, and parents say neurofeedback has been helpful to children with autism. The National Institute of Mental Health will announce the results of its first study of neurofeedback for ADHD on October 26, at the annual meeting of the American Academy of Child and Adolescent Psychiatry. The study director said that parents and teachers of the 36 children in the study reported improved behavior. While most insurance companies do not cover the controversial treatment, the Magagnos of Lynbrook, N.Y., found that their insurance company did. Their son, who was diagnosed with Pervasive Developmental Disorder, was treated by Dr. Norman Doidge, a psychiatrist at the Center for Psychoanalytic Training and Research at Columbia. Dr. Doidge discovered the child had suffered tiny, asymptomatic seizures, and through neurofeedback “stabilized the child’s brain activity” and eliminated the seizures. The parents report their son has improved skills. Many scientists and doctors caution parents to be careful when approaching this therapy method for their children until more testing has been done.

Read original article: Neurofeedback Gains Popularity and Lab Attention



Please comment on this autism topic.

Responding to insurance

Sep 13, 2011 by Anonymous

I live in North Carolina.  My daughter was diagnosed with autism and in the hopes of getting the best treatment and intervention available, she is being left behind. Her insurance, medicaid, pays for very little of her early intervention services.  And to add to our disappointment, medicaid does not pay for ABA services.  


Responding to insurance

Sep 13, 2011 by Anonymous

We have private insurance for which we pay a premium and deductible.  It covers occupational therapy, language therapy, physical therapy and psychological therapy but at a combined 75 visits for calendar year.  This is not for each therapy but rather 75 total for all together. Thus, even with illness or vacation times taken, we do not have enough alotted time slots covered to continue therapy for a full year.  Once we run out of the 75 covered slots, we must pay out of pocket.  We pay a copay of $20 per visit.  So, for example, if my child sees a language/speech therapist and the ot once per week it is $40 out of pocket until we hit the magic 75 allowed under the insurance.  Then we woud have to pay $150 for one therapy and $160 for the other per week.  The psychology/psychiatrist appointments are monthly. All of these therapies would be available more frequently and I am told by the therapists very helpful if we could do more than once a week for 1/2 a session but we cannot afford to do this.  The children on the autism spectrum benefit greatly from these therapies and it is something that should be covered under the insurance policies, just as any health or mental health issue should be.


Thank you to all the RDI defenders. It is ridiculous to believe that there is just one tried and true therapy for kids with autsim.  I believe ABA works for some kids, but it wasn't even an option for mine.  We had a very well-known doctor who agreed with our decision and believed because of our son's personality, ABA might cause of problems for him.  We started RDI at home about 2 years ago.  We then moved into extendeder services at our home and now have him in an RDI therapeutic school 5 full days a week.  WOW, what a difference!  My son has made such striders.  The extenders are wonderful people who really care about him and his progress.  He has built peer relationships at school that I never thought was possible.  RDI is not a fad.  Because of the nature of the program, progress is documented on a regular basis via videos made by parents, consultants, etc.  It is amazing to look back and see how far my son has come.  As a parent, you feel supported and a huge part of your child's progress which is so rewarding.  I urge other families to take a look at RDI and not be pushed into other therapies that they are not comfortable with.  BTW, my son's RDI is covered 100% through insurance after we reach our deductible.


Just around the bend...

Jul 26, 2009 by Anonymous

Summer is half over and as with people nationwide concerns regarding bugdet cuts to services, inavailability of services that are supportive of our children on the spectrum and the dangers in the community that became more apparent as they get older abound. While I am sure parents overall have concerns about their children being at risk in their community this fear is exacerbated greatly when your child is often oblivious to these dangers because of social skill and comprehension deficits. In the past few weeks I have run into two friends whose teenage sons, once a part of a special needs support group which has fallen prey to the budgetary axe, both found themselves under arrest. I could debate the circumstances but suffice it to say that this is every mothers nightmare. So what do we do when the mainstream only hear about early intervention. It is as if by some misfortune parents who have not solved this exhaustive puzzle of advocating and searching for appropriate services and therapies simply no longer exist once their child falls out of that window the public eye envisions of a child on the spectrum. Beautiful doe eyed 2, 3, 4 and 5 year olds. What happens when they become 12, 13,16, 19? when insurance companies want to deem their progress insufficient and therefore not medicallly necessary? When schools have decided thier capabilities long before they max out at age 22? When they have too often become prey for others willing to exploit their disability? I lose sleep over the thought that my son will one day find himself in a compromising situation because of his inabiility to discern dangers around him, or people who would use him, hurt him.... So that is my thought for the week. How do you as educators, clinicians and parents affect change in the lives of our preteens and teens and adults with ASD so that mothers like me will not live this nightmare?



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