Autism Therapy: seizures

definition of seizures: not yet defined.

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Neuroscience, by Gilby, KL, Jans J., and McIntyre DC, published in 2009, summarized Jan 11, 2010

Omega-3 fatty acid supplementation reduced impulsive behaviors in one strain of rats, and increased seizures in another strain of rats; some of these behaviors may be found in children with autism or autism spectrum disorders (ASD).

Rat strains are rats that are bred to each other so that they all have the same genes. Omega-3 fatty acid supplements were given to two rat strains in this study. One rat strain (Fast rats) has hyperactivity, learning problems, impulsive behaviors, and increased chance of seizures. Another strain (Slow rats) has few seizures and does not have the behavioral problems that the Fast rats have. The Fast rats had less impulsive behaviors when they had omega-3 therapy, but they have the same seizure sensitivity. The Slow rats’ behavior didn’t change, but they had more seizures when they had omega-3 therapy. The authors said that omega-3 therapy may have different effects in different people, and urged caution when using the therapy.


Journal of Child Neurology, by Kossoff, EH, Zupec-Kania BA, and Rho JM, published in 2009, summarized Jan 1, 2010

A ketogenic diet that cuts down on carbohydrates may be helpful for children with autism and may help reduce seizures.

With a ketogenic diet, most of the daily nutrition comes from eating fat and protein. The Atkins diet is a type of ketogenic diet. Ketogenic diets have been reported to be helpful for children with epilepsy. While on the diet, some children have fewer seizures. Some children with autism also have seizures, so the diet may be helpful for children with autism as well. Neurologists are exploring whether a ketogenic diet may also be helpful for other autism symptoms. However, there were no published studies reported in the article about this diet and autism. There have been side-effects reported, and some can be long-lasting. Side effects include slower growth, digestive system problems, kidney stones, bone fractures, and other problems.


Official Journal of the European Paediatric Neurology Society, by Mordekar, SR, Prendergast M., Chattopadhyay AK, and Baxter PS, published in 2009, summarized Dec 14, 2009

An immune system suppressant (corticosteroid) may help some children on the autism spectrum.

Two 4-year-old children had a rapid onset of childhood disintegrative disorder (CDD). They had a change in personality, loss of speech, and withdrew from people. They also had seizures. The authors treated them with the corticosteroid prednisolone, and their symptoms gradually disappeared over the next 4 years. Prednisolone acts to reduce inflammation and calm down the immune system, and may have other effects. The doctors found no sign of inflammation in their nervous system. The doctors do not know why the medication worked for these children.


Journal of ECT, by Dhossche, DM, Reti IM, and Wachtel LE, published in 2009, summarized Oct 19, 2009

Some people with autism also have catatonia, and electroconvulsive therapy may be helpful in some of those cases.

Catatonia is a brain condition with symptoms where the person repeats words (his own or the words of others), repeats behaviors, and has a grimace look on his face. Catatonia symptoms are common in some people with autism. Catatonia can be severe for some people, resulting in loss of movement, reduced speech, or stupor. More mild symptoms of catatonia include freezing during actions, slow movement and/or speech. Electroconvulsive therapy (ECT) uses a mild electric shock that is given to specific places in the brain while the patient is under anesthesia (unconscious). The helpful effect of ECT comes from the seizures that are triggered in the brain by the electrical current. The electrical current happens to be the most reliable way to induce seizures in the brain. How seizures improve catatonia is unknown. The authors said that ECT therapy has been helpful for some people who have both autism and catatonia.


Currently the only FDA-approved biofeedback/neurofeedback equipment use is for “relaxation,” however, some scientists, therapists, and parents say neurofeedback has been helpful to children with autism. The National Institute of Mental Health will announce the results of its first study of neurofeedback for ADHD on October 26, at the annual meeting of the American Academy of Child and Adolescent Psychiatry. The study director said that parents and teachers of the 36 children in the study reported improved behavior. While most insurance companies do not cover the controversial treatment, the Magagnos of Lynbrook, N.Y., found that their insurance company did. Their son, who was diagnosed with Pervasive Developmental Disorder, was treated by Dr. Norman Doidge, a psychiatrist at the Center for Psychoanalytic Training and Research at Columbia. Dr. Doidge discovered the child had suffered tiny, asymptomatic seizures, and through neurofeedback “stabilized the child’s brain activity” and eliminated the seizures. The parents report their son has improved skills. Many scientists and doctors caution parents to be careful when approaching this therapy method for their children until more testing has been done.

Read original article: Neurofeedback Gains Popularity and Lab Attention



Please comment on this autism topic.

Knowing the financial burden attached to being a caregiver for an Autistic child, we were compelled to build a free web version for users who do not have a smartphone. In our journey with our children we realized that we needed healthcare providers, educators and mentors on board when it comes to improving the quality of care a person receives. The website is ready but is in the testing phase. Here is a link to pictures of what it will look like: http://www.facebook.com/photo.php?fbid=188241727857292&set=a.188241557857309.51353.146190262062439. We encourage people to go to http://bit.ly/eoHQUR to be notified when iBiomed Health Organizer & Network is released to the general public. Please add us as a resource on Healing Thresholds. Thanks again.

iBiomed is a mobile application which was recently featured in the Post and Courier newspaper, in Charleston, SC. and the Wall Street Journal.  It was built by Florence Iwegbue & Kwame Iwegbue who is also a Physician in Charleston, SC. They personally built this software in order to ease the back breaking burden on their family, after their son was diagnosed with Autism and started having unexplained seizures: "We developed the software specifically to manage our son's Autism care, but we now realize that it goes way beyond the world of Autism." They hope to spread the word about this software because they know all to well, the pressures & stress that caregivers and families of children with special needs have to endure.

iBiomed is a free native iPhone/iPad application designed to manage the health and well being of children with Special Needs or individuals with complex, chronic medical illnesses. The App is now available for a free download from the App store. They have left it free because we believe this tool would be of great benefit to many people living with complex medical conditions requiring multiple healthcare providers, medications, tests & rehabilitative therapies. "We cannot articulate why we are so driven by this effort but we believe the medical community has long awaited it. We also believe that as a family it is a calling for us because of the special skills we possess and the circumstance we have found ourselves in. Our son has taken us on an unforgettable journey." Below is a link to watch a demo of iBiomed and a link to our site and Facebook group for pictures of the App in action. They realize that not everyone has an Apple device so we will be making it available for free use online by the end of this month. People can register here to be notified upon it's release: http://bit.ly/eoHQUR.

Click Here: http://bit.ly/iin5H9 for info on how iBiomed can help Health care Providers, Therapists, Nutritionists, Chiropractors, Acupuncturists, Educational Institutions, Vendors and other Holistic Practitioners.

The iBiomed Software allows you to create an Interactive Social Network Bio. If you are a vendor, Holistic practitioner, Healthcare provider, Therapist, Blogger, or mentor, this feature allows an easy one-click access to you, your product and your service.

iBiomed's Features Include:

1. Treatment Log Book:

Keep detailed records on the go and soon online with a mobile logbook for Prescriptions, Supplements, Therapies, Diets, Allergies, and Tests.

2. Add Multiple Time Stamped Notes to each of the above treatment items.

Your Notes are easily search-able.

3. Manage the Treatment of as many people as you'd like; Just as with a portable electronic medical record.

3a. Add as many Supplements, Medications, Tests, Diets and Therapies & Alternative/Holistic Treatments as you’d like.

4. Treatment Journal:

Keep a Journal or Daily diary for each person whose treatment you'll be managing with iBiomed. The Journal entries are time stamped and easily search-able. e.g. foods, behavior logs or side effects and reactions.

5. Treatment History:

Review your treatment history of tests, supplements, diets, therapy notes, behaviors and journals. You can also edit past log entries, including test results. If the test results are numerical, you can easily differentiate between normal and abnormal values.

6. Treatment Reminder:

Treatment alerts to help you remember to administer supplements, medications tests and even Therapy sessions and medical appointments.

7. Share Treatment Information:

Share details of your treatment plan with family, health professionals, therapists or nutritionist by email. iBiomed can automatically generate an email summary of your treatment plan and treatment history by date range.

8. Supply Tracker for Rx & Supplements: Lets you know when you should reorder a prescription or Supplement.

9. Health Forum with "Smart Topic Filter" and Push notification to your mobile device: Now all your forum questions & answers can be accessed on your phone. It is also a so a great platform for parents and healthcare providers to interact.

10. Customizable Graph to track just about anything a person wants to watch closely; from symptoms to behaviors, appetite, sleep, or anything you want to track.

11. Available for online use at biomedprofile.com in January 2010. iBiomed Online Health Organizer will have all the same features of the App and much more. Go to: http://biomedprofile.com/index.php?option=com_content&view=article&id=54&Itemid=61 to Sign up to receive an email notification when the site is ready for online use.


Living Gluten Free – Right to Heal

Feb 22, 2010 by karmic health

By Sandi Star, CCN


After struggling for over 40 years with chronic migraines, IBS, Muscle and joint pain, fatigue, brain fog, asthma and a slew of other ailments and frustrations I decided to take a closer look at the cause rather than obsessing on the symptoms. I was tired of relying on doctors to give me answers and tired of the medications that only gave me side affects and little relief.


I had been committed to health and fitness for over 20 years, losing close to 50 pounds and 5 dress sizes, however I still had all the chronic conditions that played havoc in my life. I realized there was a key element missing and soon found out it was my reaction to gluten and dairy. I didn't know enough about food intolerance or allergies or at least put the two together. I never believed food could have such a serious impact on overall health let alone be the direct cause of my diseases. With what I know today I’m surprised my doctor didn’t put the connection together when he diagnosed me with Sjögren’s Syndrome (autoimmune disease). Sjögren’s is one of the symptoms of Celiac along with a long list as you will see below and nutrition plays a critical role in the healing process. By making the appropriate diet changes – (gluten and dairy free), I’ve managed to eliminate my migraines, IBS………etc., etc., and have the Sjögren’s Syndrome under control. Even better, I have eliminated all medications and use food and natural remedies for nutrition and overall health. Now that you know why I became a clinical nutritionist and why I started Karmic Health lets get into the details of why it’s so important to understand gluten and its relation to diseases.


Why the problem with gluten now? A lot has changed in the way we harvest food compared to 50 years ago. Some of the seed companies began engineering wheat kernels that could be more easily ground and produce fluffier flour to make the soft, delicious white bread for example had to have greater yields; it made more money for the farmer and increased sales.


Gluten is a composite of the proteins gliadin and glutenin. These exist, conjoined with starch, in the endosperms of some grass-related grains, notably wheat, rye, and barley.


Understanding what happens in the body and some of the symptoms will help millions of people who go undiagnosed. Celiac is the most common genetic disease of mankind (yet for every person diagnosed, 140 will go undiagnosed).


A wheat allergy is the body’s abnormal autoimmune response to a certain protein component of wheat; it’s exhibited by a severe sudden onset allergic reaction. Usual symptoms are immediate coughing, asthma, breathing difficulties, and/or projectile vomiting. It can cause life-threatening responses in allergic people. A true Wheat allergy affects less than 1/2 % of population. 


Intolerance's are much more common than true food allergies but are harder to diagnose. Food intolerance is an adverse reaction to food that does not involve the body's immune system. Generally food intolerance is an inability to properly digest certain foods. In some cases food passes right through the body before digestion is complete.


Leaky Gut is an increase in permeability of the intestinal mucosa to luminal macromolecules, antigens, and toxins associated with inflammatory degenerative and/ or atrophic mucosa or lining. Put more simply, large spaces develop between the cells of the gut wall allowing bacteria, toxins and food to leak into the bloodstream. Leaky Gut Syndrome has also been linked with many conditions, such as: Celiac Disease, Multiple Sclerosis, Fibromyalgia, Autism, Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Eczema, Dermatitis, and Ulcerative Colitis. 


Celiac disease is an autoimmune disease caused by an inappropriate immune response to dietary proteins found in wheat, rye, and barley (gluten and


gliadin). This response leads to inflammation of the small intestine and to damage and destruction of the villi that line the intestinal wall. These villi are projections (small folds) that increase the surface area of the intestine and allow nutrients, vitamins, minerals, fluids, and electrolytes to be absorbed into the body. When the villi are destroyed, the body is much less capable of absorbing food and begins to develop symptoms associated with malnutrition and malabsorption. When the body is exposed to the gluten and gliadin proteins, it forms antibodies that recognize and act against not only the grain proteins, but also against constituents of the intestinal villi. As long as the patient continues to be exposed to the proteins, he will continue to produce these autoantibodies. Celiac disease is found throughout the world but is most prevalent in those of European descent. It can affect anyone at any age and is more common in women. It is thought to be an inherited tendency that is triggered by an environmental, emotional, or physical event – although the exact mechanism is not fully understood.


According to the National Digestive Diseases Information Clearinghouse, about 5 to 15% of close family members of a celiac disease patient will also have the condition.


Symptoms


There are literally dozens, if not hundreds, of symptoms of gluten intolerance. It all comes down to inflammation in the body! Many people believe the most common symptoms are gastrointestinal in nature - yet the majority of people with gluten intolerance (and celiac disease) have extraintestinal symptoms. 


The most common symptoms of celiac disease include:


Fatigue


• Addison’s disease (hormonal disorder)


Gastrointestinal distress (gas, bloating, diarrhea, constipation, vomiting, reflux)


• Headaches (including migraines)


• Infertility


• Mouth sores


• Weight loss/gain


• Inability to concentrate


• Moodiness/depression


• Amenorrhea/delayed menarche (menstrual cycles)


• Bone/joint/muscle pain


Dental enamel hypoplasia (dental enamel defect)


• Short stature


Seizures


• Tingling numbness in the legs 


The “cure” is a life long gluten free diet.


Making the Transition


1. Have a reality check. Remember this is a choice! If you want to feel lousy for the rest of your life and get worse as time goes on then continue eating gluten. If you want to start on a journey to heal; go gluten free


2. Give it time. It takes time to heal. Take the 45 day challenge.


Within this time frame you will notice the brain fog is gone. Your body will start adjusting to a healthy weight. Yes, you will lose the bloating and weight around the middle. Don’t be discouraged if it takes a little longer to feel 100%. 


3. Look at your current diet and go through your pantry and refrigerator to find the foods and meals you already eat that are gluten-free. You may need to keep a food journal if you haven't already.


Be sure to list condiments, ice creams, produce, snacks, and other foods.


This list will be helpful as you create menus around your new foods and give you encouragement that you're already on the right track!


4. Give yourself permission to eat things that you may have restricted from your diet before your diagnosis. Potato chips or GF cookies may not be appropriate for other people, but they are a treat in a GF diet in small doses of course. You will need to find treats for yourself initially as you adjust to this diet. Count calories after you are comfortable with your new way of eating, manage your portions instead.


Once you are comfortable with the switch start cutting back on refined grains, crackers, breads, etc., to help the gut heal quicker. In all honesty, bread will not be that important. It's all about taking baby steps! 


5. Look at your current menus and meals and find ways to eliminate gluten from your diet. Replace bread in sandwiches with GF bread or green leaf lettuce and add your favorite fixings and condiments. Have breakfast burritos with rice tortillas instead of toast and eggs. Look for GF hot and cold cereals (must not have barley malt) and have those handy for a snack or meal. Replace bread and crackers with tortilla or corn chips, brown rice cakes or popcorn. For example, chicken or tuna salad on rice cakes or scooped onto corn chips is delicious. Popcorn is a filling side dish with soup. Be on the lookout for meals on your current menus or the menus of friends and family that are naturally gluten-free (roasted chicken, baked sweet potatoes and steamed veggies, for example) and make them a staple on your new menus. Surf the internet, watch cooking shows and browse magazines for ideas and adapt them as you see fit.


6. Clear out any and all foods that have gluten, wheat, wheat flour, oats, oat flour, rye, semolina, or modified food starch from your pantry. This will allow you to see how close you are to living gluten-free already. If you have family members living with you who are not gluten free, you might consider giving the "offending edibles" to them to be put in another part of the house while you learn to live and think gluten-free. As time goes on you can cook for the entire family without gluten.


7. Plan and prepare your meals ahead of time. Being caught hungry without a plan is not a good idea! Keep a few GF soups on hand in case of extreme hunger. Keep a small cooler in your car with snacks such as nuts, dried fruit and water. It helps to outline and pack any meals you're eating at home and away from home, including snacks. An example could be -


o Breakfast: scrambled eggs and mixed vegetables rolled in a rice tortilla, sliced apples, and coffee.


o Lunch: Lettuce with turkey, avocado slices, tomato, and mustard, 1 oz. chips, and 2 organic dark chocolate pieces.


o Dinner: Grilled fish or chicken with mixed vegetables, wild rice, and fruit.


o Snacks: 1 oz. almonds and popcorn.


o Desert: Coconut Ice Cream or fruit. 


Tips


1. Be patient with yourself. You'll have days when being gluten-free is really depressing (maybe even "fall off the wagon"). This is normal.


Relax – it’s a process.


2. Carry snacks with you wherever you go. It's often difficult to find an appropriate snack when the hunger strikes. GF bars are great! 


3. Arrange with the hosts of gatherings you may attend to bring your own sides or complete meals. Most people are very supportive of restricted diets.


4. Carry a small cooler in your car with small cold packs to store fruit, snacks and water


5. Consider avoiding restaurants during your transition phase as you learn how to eat and think gluten-free. Grilled meats (over a flame), baked potatoes and salads without croutons are usually safe bets. But keep a log of places you eat, what you ate and how you felt afterward. Gluten is insidious and can turn up in the oddest places (french fries, for example which can be dusted with flour).


6. Get your hands on cookbooks or start collecting your own recipes in a binder. 


7. Carry digestive aids (enzyme and bioflavonoid) with you in case of accidental ingestion. There are ones specifically for gluten such as GlutenFlam by Apex Energetics; available from your healthcare practitioner.


8. Consider taking a multi-vitamin to make up for vitamins and minerals you may lack with your new diet (ask your doctor or nutritionist if necessary).


9. Find a mentor or support system.


10. Breathe


About the author: Sandi Star, CCN


Sandi is the founder of Karmic Health, specializing in nutrition related to disease where a gluten and casein (dairy) free lifestyle is crucial; working with celiac, autism and all auto immune disorders. Sandi graduated from The Natural Healing Institute with a degree in Clinical Nutrition and is continuing her studies in Clinical Herbology. She has hands on understanding of many health issues and has dedicated her life in helping others reach their optimal health.


For more information related to this article please visit www.karmic-health.com or contact Sandi Star at 760.685.3154


© Copyright Karmic Health 2010


Seizures

Aug 10, 2009 by Anonymous

My daughter has Atonic Seizures ( Drop Attacks)  gets 5-10 a Day!   Has been on Ketogenic Diet for a month, now. There has been no change or reducing in the seizures.   My question is How do parents out there cope with such a illness?

Concern Mom from  E.P. ,Texas


Tennis, anyone?

Apr 15, 2008 by Anonymous

Finally, the weather is improving! We’ve been spending a lot more time outside playing in the yard and walking to the park. Last year, it seemed like no matter how old Thomas got, I’d still be strapping him into a stroller or making him sit in the wagon to take him to the park. It’s really amazing how much things can change in what seems like no time at all.

Thomas loves to ride his little pedal car to the park. The only problem is that riding the pedal car is all he wants to do when we get there. Hayley wants to play on the slides or the swings but Thomas wants to keep on truckin’. So we go on to the next park and the next (there are three nearby that are all connected by paths) and by then Hayley has seen a flying bug and it’s all over; we have to go home immediately. We saw a very sluggish and sleepy bee on the ground at the park yesterday and Hayley flipped out. (I was rather surprised to see a live bee this time of year too, as a matter of fact.) She is suddenly quite imprisoned by her intense and irrational fear of bugs and it’s worrying me for the coming summer. I’ve tried explaining to her that bugs are important to trees and plants and that bugs live outside and we have to get along with them when we’re outside too. Not much of that is sinking in. I hope she can get over it before summer really gets going. Our family vacation will be one very long week if she doesn’t.

So Thomas pedals to the park, being careful not to get too far away from me – and I can trust him to not run away! (Or pedal away, as the case may be.) Tomorrow it’s supposed to be even warmer and I suggested tonight during baths that we go to a different park. I’ve seen some other neat-looking parks on my jogs and I hope we can try some of them. Thomas is ill-disposed, however. He said that we shouldn’t go to different playgrounds; “that wouldn’t be too much fun.”

Tomorrow is Spring Picture Day at school and I can’t wait to see the kind of picture Thomas brings home. He’s been very into having his picture taken lately. I’ve been selling a lot of old clothes on eBay as I lose weight, and every time I get the camera out to take snaps of these items, Thomas insists that I take a picture of him and then show it to him. It hit me that Thomas and Hayley will never know a time before digital cameras! They’ll never fool around with film and flashcubes (I’m only just barely old enough to remember flash cubes, I swear!) and waiting four days for film to be developed only to find out that Aunt Maude had her eyes closed in every single picture of her at Uncle Joe’s retirement party.

Which brings me to another aspect of life that our children will never remember in its original form: We located and purchased a Nintendo Wii this weekend. Jonathan and I really wanted one (Happy Mother’s Day to me; Happy Father’s day to him) not just for us but for the whole family. I like it better than the average game system because most of the time, you’re standing up making wild, gesticulating motions as you pretend to punch with fists, poke with an epee, display a blazing backhand or perfect a breaststroke. We were playing yesterday and I remember wondering what an alien would think if they were to watch us through our windows as we had what looked like severe seizures in front of the TV. Anyway, the point is that there is more physical activity and coordination required to play this Wii system. You would not believe how much my biceps hurt yesterday from that tennis game! I think those are biceps…anyway, Thomas loves it, too! He is actually really good at the tennis game and Hayley likes to play golf. Thomas laughs so hard when his little character waves the tennis racquet and admittedly, he’s only really able to volley the ball because he’s always moving and therefore his character is always swinging, but he likes it and that’s what’s important. There’s a little “Mii” section of this system where you can create the characters you play with, from the height and body type to face shape, hair color and pretty much every aspect of someone’s appearance. So we made characters for our whole family, plus the kids’ aunts, uncles, cousins and grandparents. I showed Thomas and Hayley and now they like to see who’s in the stands for tennis, who’s watching at the bowling alley and who’s on their baseball team. It’s very cute! I’m hoping that as they grow, they’ll get better-coordinated with the Wii. We bought a couple games we thought the kids would be better at, but even those were too advanced. I’m going to try to find some games that are rated “EC” for “early childhood.” Those would almost certainly be more appropriate, educational, and easy-to-play. One thing’s for sure: They’ll never remember Atari cartridges and joysticks.

Thursday or Friday, I have to go to kindergarten orientation and I feel rather unprepared. I’m not sure if they’re going to have childcare available – and I don’t know if our home school is even the one Thomas will be attending next year. If our grade school doesn’t offer an MLP class, he’s going to be bussed somewhere else. I’m going to have to call his school or our elementary school tomorrow to find out what I’m supposed to do. We’re not going to decide on Thomas’ placement until May 6, and even then we could change our minds over the summer.

We’re going to the cottage this weekend to put the pier in the water. After we were there two weeks ago, I really don’t dread it. The kids are so good up there now that this is finally the year that things get better! We’ve been waiting for it and now it’s here. Undoubtedly, God will jar me out of my reverie somehow – like I’ll get pregnant or something. (I’m not pregnant, mom. That was a joke.)



Please comment on seizures or other autism therapy topics.

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