Autism Therapy: sensitive

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Journal of Autism and Developmental Disorders, by Ludlow, AK, and Wilkins AJ, published in 2009, summarized Dec 28, 2009

Colored lenses that filter out certain colors may help visual processing and reading skills for people with autism.

This case report describes a 10-year-old boy with autism who was sensitive to artificial lights, strobe lights, and reflected light. He also suffered headaches and nausea in response to certain colors of walls, food, and clothing. The authors allowed the child to choose a colored film that was placed over a page for him to read. He chose the color purple, and he was able to read faster right away with the purple overlay. He also said that he could see the words more clearly. When the boy wore glasses with purple tint all the time, he had fewer problems with headaches and nausea.


J Clin Psychopharmacology, by Troost, PW, Lahuis BE, Hermans MH, Buitelaar JK, vanEngeland H., Scahill L., Minderaa RB, and Hoekstra PJ, published in 2007, summarized Apr 10, 2007

Risperidone therapy may cause problems with growth and development in some children.

The purpose of this study was to see if risperidone treatment causes increases in the hormone prolactin. Certain children (CYP2D6 ultrarapid metabolizers) process risperidone differently and respond with higher levels of prolactin. The more risperidone the children are given, the higher the level of prolactin they make. At the end of eight weeks, these sensitive children had prolactin levels that were four-fold higher than untreated children. About 10% of children getting risperidone treatment have levels of prolactin that are considered unsafe.


Arch Dis Child, by Sinha, Y., Silove N., Wheeler D., and Williams K., published in 2006, summarized Jan 27, 2007

There is no scientific support for the use of listening therapy in people with autism.

Many people with autism are sensitive to sounds and several treatments have been designed to help this: auditory integration therapy (AIT), Tomatis method, and Samonas sound therapy. This systematic review was designed to see whether these treatments help people with autism. The authors note that many different types of studies have been done and it is hard to compare the different studies. In their review, however, they did not find any sign that listening therapy works. The authors did find that it is important to keep the volume of the therapy low so as not to hurt the ears.


Journal of Child and Adolescent Psychopharmacology, by Troost, PW, Steenhuis M. - P., Tuynman-Qua HG, Kalverdijk LJ, Buitelaar JK, Minderaa RB, and Hoekstra PJ, published in 2006, summarized Jan 16, 2007

Children with autism may be more sensitive to the side effects of atomoxetine and therefore it may be better for them to receive lower doses of the drug.

This study was designed to test whether atomoxetine is an effective treatment for attention problems, hyperactivity, and impulsivity sometimes seen in children with pervasive developmental disorder (PDD). This was a prospective study which means that children (aged 6-17) were brought into the study, their basic symptoms were studied and then they were given atomoxetine. The study was small and all children (and parents and doctors) knew that all children were getting atomoxetine. Of the 12 children in the study, 5 stopped taking atomoxetine because they did not like the side effects. The authors report that atomoxetine could be a good therapy for the treatment of attention-deficit/hyperactivity disorder (ADHD) in children with PDD.


Have you ever tried taking your child with autism, or any child for that matter, to meet Santa at Christmas? Potomac Mills Mall and Worldwide Photography understand what a challenge that can be. Together, they created a “Sensitive Santa” event that allow children with autism and other developmental delays to have a good experience meeting the jolly old man. The lights are dimmed, the music is turned off, and there aren’t any long lines. Jessica Patterson of Worldwide Photography explains, “We don't really worry about the pretty pictures so much." We're just giving them the opportunity to do something that all the other kids get to do."

Read original article: Sensitive Santa Helps Kids with Autism Brave Holiday Traditions


Two years ago, AMC theatres and Autism Society of America began hosting special viewings of movies just for kids with autism – “Sensory Friendly Films.” Because AMC does not have theatres in Oregon, the Autism Society there went on a search for small local theatres to host films for kids. Bijou Arts Cinemas in Eugene, Oregon stepped up to host sensory-friendly films on Saturdays. Edward Schiessl, co-owner of the Bijou, shows films that will also appeal to University of Oregon audiences. He explains, “It's meant a steady stream of animated and adventure-themed classics from the 1980s and '90s, he says, well-attended by both audiences.” Bijou’s next venture will be to update the theatre food offerings to include gluten-free and casein-free items for children with dietary constraints.

Read original article: Sensory Saturdays: Films Serve a Sensory-Sensitive Clientele


Snell's Pre-Kindergarten in California is home to the Sunshine Room, a place where sensory integration is the goal. Donna Johnson, school director, explains that the room provides therapy for children with autism - those who are super-sensitive as well as those who need pressure touch. The Sunshine Room has active equipment like monkey bars and a ball pit. It also has quiet spots with swings. The room also allows children to interact with their Pre-K peers so that social communication is improved.

Read original article.


Cool Cuts 4 Kids in California provides special care when cutting children's hair, but particularly those kids with special needs like autism. Stylists have a love of children and lots of patience. They understand that a child with autism might be sensitive to the sound of clippers or blow dryers. There are toys and games to occupy the children and their parents. In addition, Cool Cuts reaches out to the community to make them aware of autism by being a part of Apples for Autism - a fundraiser.

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Mouse ears and back-to-work

Feb 24, 2009 by Anonymous

I hate to say this, but I think that Thomas either has developed a tic on the Strattera or that tooth has GOT to come OUT. Mrs. H. has noticed it too, but she thinks that it is from absentminded tongue-pushing against that loose tooth. I don't know...it seems like he's pushing against it with his tongue but it's in such a tic-ish way that it's hard for me to tell what it's all about. Jonathan said, and I agree with him, that we'll have to wait at least until the first tooth falls out to see if it gets better. If not, then there'll be a call to the neurologist in which I am instructed to take him off the Strattera immediately. Bye-bye great IEP meetings and terrific progress. Hello, extra TVs playing in Thomas' head, keeping him from effective communication. I'm trying to stay optimistic but I'll be really bummed...rather, EXTREMELY DISAPPOINTED if the Strattera turns out to be off-limits like the Focalin, and for the same rotten reason. 

My first day of work which will be strictly orientation is on Thursday. Yesterday as I was taking Thomas to school, he told me that he wanted me to go to work right away. How cute. We'll see how he feels on Thursday when I'm not around to step and fetch and carry for him and Daddy has to do all! We'll see how it goes. I know that Jonathan will be interested in doing his very best so that we can go on our Grand Disney Vacation that we are still tentatively planning for August. The children have no idea of the scope and scale of Disney. I ordered a Disney vacation planning video a while ago that I filed away until recently. We watched it on Sunday during lunch and the kids (especially Hayley) were glued to it. So was Jonathan. I have to confess that even I was taken in by it. If any readers out there have any advice on touring Disney with an autistic family member, we'd love to hear it. Or any advice in general would be great. We're still on the fence about the dining plan...we're thinking that we can do better in terms of how much it costs, but if anybody has tried it and has feedback, please let me know. When we called the reservation hotline on Saturday, the gentleman on the phone said that every single Disney "cast" (employee) member is well-educated on special needs kids. I can't wait to test that statement.

Hayley's been down with a cold this week and missed school on Monday. That's the first day she's missed all school year! Unfortunately for Hayley, the beginning of any illness is marked by an in-bed barf-o-rama and she was in my mother-in-law's bed on Friday night when it happened. We went to pick the kids up on Saturday and I've never felt worse for someone because of what my child accidentally did! The entire bed was stripped and somehow Hayley got vomit all over the bedskirt. My mother-in-law had to yank that bedskirt off from under her very deep and heavy mattress all by herself at midnight. I felt awful and did make her bed (including bedskirt) over for her while we were there, but even when Hayley's thrown up at home in her bed, I've never seen such a serious and far-reaching mess. Thomas has managed to catch the same cold, but he doesn't vomit nearly as much as Hayley, so he's just a little stuffed up. It's amazing how these kids deal with illnesses. What would have grown-ups flat on their backs for days doesn't affect little ones nearly as much. I guess the bigger we are, the harder we fall.

I can't see anything very important on our familial horizon except for me going back to work, something I intend to do now until I reach retirement age. It will be a big change for the kids, sort of. They're used to Jonathan being gone all day at work and I won't be gone all day. Just a few evenings during the week and some weekend days but we all know Thomas and how sensitive he is to any kind of change. Luckily, I can rearrange furniture when I want to or buy a new bedspread when the spirit moves me. It's lifestyle changes for Thomas that bother him. We just put new bunkbeds in Hayley's room and he loves them so much that he wants some in his room. My folks have one more set that perhaps we'll go ahead and take off their hands. We'll be able to sleep an army in this house, but what I'm more concerned about is one spry little six year-old jumping cowabunga-style off the top bunks. It hasn't happened yet, but we just got the things. We'll see how it goes. If he starts his very own "Circus of the Stars" in Hayley's room, then I think we'll be limiting him to just one bunk.


My son, Elrynn, who is first grade, has a classmate who is mildly autistic.  The little boy in question seems attracted by Elrynn's sensitive nature but is struggling to let him know that he would like to be friends.  Essentially, Elrynn is experiencing daily this little boy hitting and pushing him in order to gain his attention.  Elrynn now does not wish to go to school because he is quite (understandably) upset by this.  Both I and the teacher have spoken to  Elrynn about this little boys needs and Elrynn has tried to include him in active play, but when invited to join, he doesn't know how to, becomes frustrated and then hits out further.  Both the classroom teacher and I are concerned that both boys learn from this experience but are unsure how to go about helping them.  

 

Any suggestions?

 

FMB


Back to school

Sep 4, 2008 by Anonymous

            Finally, the school year has commenced and life is slowly returning to a fixed routine.  Thomas has adjusted very well to kindergarten, as we had fervently hoped.  His teacher is very nice and always takes a few seconds after her morning session to let us know how Thomas did that day.  She doesn’t really do that with the other kids, I suspect because Thomas is one of her special kids, but she has thus far only had nice things to report and seems to really enjoy having him in class.

            His teacher uses a “red, yellow, green” system for reporting how the kids did in class that day.  Thomas has so far brought home only green lights, a fact that he is very proud of.  It’s one of the first things he reports on when he comes out of class.  After Open House last night, the teacher explained that if everything went well, the child gets a green light.  If she had to warn a child about their behavior once but then they cleaned up their act, they get a yellow.  If things were abysmal, a red light is sent home.  Even though Thomas has had greens so far, I know that there will probably be a yellow or a red at some point this year.  Everyone has bad days, after all.

            Speaking of bad days, I was worried about Thomas this morning.  The usual routine is for us to walk to school together and then wait outside the kindergarten door for the teacher to fetch the kids at 8:25 a.m.  Today, it was raining so we waited inside the hallway.  This confused and upset Thomas to the point of tears and he didn’t want to go into class.  He wanted instead to stay in the hallway with me and Hayley, his head buried in my hip.  So the aide came by and tried to distract Thomas with tactics I knew wouldn’t work, but she tried.  The teacher finally came out and gently took Thomas by the hand and led him into class, telling him that it was okay to be sad.  I wish she had told me the same thing.  I wasn’t really sad, just concerned.  It’s hard to make Thomas do stuff like that, especially when I can see him getting tearful.  As Hayley and I left the building, however, I couldn’t hear him crying loudly or shouting, and he didn’t resist when the teacher led him into the classroom.  I expected him to pull away from her when she took his hand, but he didn’t.

            I have volunteered to help out with his class this year and I know that his teacher is excited about this.  I just hope that Thomas can handle it.  I think that was one of the reasons that he didn’t want to leave me in the hallway today.  As we were walking in, I was talking about how sometime soon, I would be helping his teacher “teach” in the classroom.  I think that he thought I meant “today.”  We’ll see how that goes.  If it’s too disruptive or causes Thomas too much anxiety, I’ll have to help in some other way.  One nice thing is that the teacher (who’s name I will be using instead of “teacher” soon, I hope…I suppose I should get her permission) has said that if I help in the classroom or school, Hayley is welcomed to join in the class.

            Thomas continues with the Focalin and I can’t really tell if it’s helping, even though we’ve increased the dose.  I was thinking that maybe it works for him in school, because the day is structured and he is required to focus on certain activities.  I don’t ask that of him too much at home so maybe I just don’t give the meds a chance to show me what they can do.  One thing he’s developed, I believe as a result of the Focalin, is a tic.  He clears his throat and opens his mouth as if to yawn when he’s talking.  Some days it’s worse than others.  I may call the doctor about that if it gets much worse or more noticeable.  It’s kind of disconcerting to watch.  I wonder if there’s another Ritalin-type medication that wouldn’t cause a tic.  Since I don’t even know for sure if the Focalin is working, it may not be worth it for Thomas to take since the tic has presented itself.

            We had a nice Labor Day weekend, complete with Wisconsin Cow-Chip Toss festival and all.  Thomas swam in the lake all three days of the weekend, and actually jumped in a few times off a friend’s pier.  The kids had a great time and came home exhausted.  Tomorrow, we are going to spend the night at Grandma’s cottage and then continue driving on Saturday up to the Wisconsin Dells to stay at Kalahari Water Park to use the gift certificate my mother-in-law gave us for Christmas last year.  The outdoor portion of the park is closed from Labor Day to Memorial Day, so we’ll miss that.  I think that the extensive indoor area will be plenty for us to explore on Saturday and Sunday.  I don’t want all of us to spend all day in the sun anyway.  Getting tan lines now would be irresponsible of me since my sister’s wedding is only five weeks from Saturday.  We’re all very excited.  Hayley is a little disappointed that she won’t be attending.  Apparently, she loves weddings even though she’s never been to one.

            As I said, we really couldn’t ask for a better start to the school year.  Hayley starts preschool on Monday, but I’m going to be kicking myself for paying for preschool if she gets to come to kindergarten while I volunteer in Thomas’ class.  Hayley actually got pretty upset this morning when we tried to soothe Thomas.  She didn’t want to leave him either.  My sensitive little girl.  I’ll try to remember that when she’s bugging him intentionally and making all of us crazy in the process.


Artificial Sweeteners

Sep 24, 2006 by Anonymous

Artificial Sweeteners

I know that discussing artificial sweeteners is one touchy topic for many families, especially when PWS is involved and our choices are so limited. I want to write about our latest experience with Erin and Splenda, not to add fuel to the fire, but in case what we have seen rings a bell with anyone else. Some of us use artificial sweeteners w/o problem and others of us don't. I'm not giving direction to either group, just our experience with Erin.

In theory, using Splenda or others is ideal. The calories are low, and so is the cost (at least compared to things like xylitol). We've stayed away from all of them but decided to give it a try when we were going through a time when a situation arose when we needed to increase Erin's liquids dramatically. We tried to use a little Crystal Lite lemonade every day. I used the bottled kind and even diluted that. Within a few days, we saw major changes in behavior. She became irritable, inflexible, and all-around unpleasant. After a wash-out from the Crystal Light, she returned to herself again. This is not to say that she still doesn't have a flare from time to time, but the intensity and frequency of her meltdowns were markedly different. We won't try that again!

We have other options. We didn't have to even try Splenda, but the convenience and cost were appealing. What we saw from those days was that it was definitely NOT worth it for us. It may well be that only a subset of children with PWS are sensitive to this or that, but it might be worth considering if you are concerned about the type of issues we saw with Erin. Again, before anyone takes offense, I am not evaluating anyone else's decisions, just describing our experience in case it might benefit someone else.

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