Children with autism often have sleep problems, and therapies such as behavior therapy (applied behavior analysis [ABA]) and melatonin may be helpful in treating these sleep problems.
The goals of this study were to see what types of children with autism also have sleep problems and to see how often parents of children with autism reported sleep problems. More than half of children with autism have parents who reported sleep problems. The study showed that many children with autism have sleep problems and that sleep problems are worse in children with more severe autism. Children who were on drugs (melatonin, clonidine, and diphenhydramine) to treat sleep problems had greater sleep problems than children who did not seek treatment. In most cases children with autism slept fewer (not more) hours than children without autism.
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Responding to Tenex - Intuniv (guanfacine)
Sep 30, 2011 by AnonymousWe've used Tenex since my son was almost 4 in combination with Abilify (which we recently stopped). He is 8 now and weighs 125 lbs and is almost 5ft tall.. It has been amazing in helping him with the hyperactivity without sedating him or him a zombie. We tried the extended release version (Intuniv) but my son processes things very quickly and it didnt work well for us. We have found that giving him 1mg 2x per day and 2mg at bedtime with Melatonin (5mg) have increased his sleep. One thing to note about Melatonin is that it can cause night terrors so if thats happening you may need to switch to something else. Im not sure that using benadryl long term is good for our kids but you do what works and the dr is ok with. We also keep on hand ativan (he tends to have issues with anxiety ie drs appts, grocery shopping etc.) and clonazepam for long trips and severe aggression. The ativan and clonazepam are used sparingly. My son knows what his meds are, what they are for and can tell us if he needs something (he is rx'ed the tenex for am, lunch and bed but if he doesnt need it then he doesnt take the noon dose). Its been a long road to get him from non-verbal to verbal (still some delays but he can hold a conversation) and is now actaully quite social. His medications help allow him to be who he really is and dont just mask the problems that he has.
Responding to repetitive
Feb 12, 2011 by ricky wilsonGabapentin help with sleep and repetitive motions on children with austim.
Updated Information from iBiomed Creators for Tracking Autism Therapies
Jan 4, 2011 by scottieKnowing the financial burden attached to being a caregiver for an Autistic child, we were compelled to build a free web version for users who do not have a smartphone. In our journey with our children we realized that we needed healthcare providers, educators and mentors on board when it comes to improving the quality of care a person receives. The website is ready but is in the testing phase. Here is a link to pictures of what it will look like: http://www.facebook.com/photo.php?fbid=188241727857292&set=a.188241557857309.51353.146190262062439. We encourage people to go to http://bit.ly/eoHQUR to be notified when iBiomed Health Organizer & Network is released to the general public. Please add us as a resource on Healing Thresholds. Thanks again.
iBiomed is a mobile application which was recently featured in the Post and Courier newspaper, in Charleston, SC. and the Wall Street Journal. It was built by Florence Iwegbue & Kwame Iwegbue who is also a Physician in Charleston, SC. They personally built this software in order to ease the back breaking burden on their family, after their son was diagnosed with Autism and started having unexplained seizures: "We developed the software specifically to manage our son's Autism care, but we now realize that it goes way beyond the world of Autism." They hope to spread the word about this software because they know all to well, the pressures & stress that caregivers and families of children with special needs have to endure.
iBiomed is a free native iPhone/iPad application designed to manage the health and well being of children with Special Needs or individuals with complex, chronic medical illnesses. The App is now available for a free download from the App store. They have left it free because we believe this tool would be of great benefit to many people living with complex medical conditions requiring multiple healthcare providers, medications, tests & rehabilitative therapies. "We cannot articulate why we are so driven by this effort but we believe the medical community has long awaited it. We also believe that as a family it is a calling for us because of the special skills we possess and the circumstance we have found ourselves in. Our son has taken us on an unforgettable journey." Below is a link to watch a demo of iBiomed and a link to our site and Facebook group for pictures of the App in action. They realize that not everyone has an Apple device so we will be making it available for free use online by the end of this month. People can register here to be notified upon it's release: http://bit.ly/eoHQUR.
Click Here: http://bit.ly/iin5H9 for info on how iBiomed can help Health care Providers, Therapists, Nutritionists, Chiropractors, Acupuncturists, Educational Institutions, Vendors and other Holistic Practitioners.
The iBiomed Software allows you to create an Interactive Social Network Bio. If you are a vendor, Holistic practitioner, Healthcare provider, Therapist, Blogger, or mentor, this feature allows an easy one-click access to you, your product and your service.
iBiomed's Features Include:
1. Treatment Log Book:
Keep detailed records on the go and soon online with a mobile logbook for Prescriptions, Supplements, Therapies, Diets, Allergies, and Tests.
2. Add Multiple Time Stamped Notes to each of the above treatment items.
Your Notes are easily search-able.
3. Manage the Treatment of as many people as you'd like; Just as with a portable electronic medical record.
3a. Add as many Supplements, Medications, Tests, Diets and Therapies & Alternative/Holistic Treatments as you’d like.
4. Treatment Journal:
Keep a Journal or Daily diary for each person whose treatment you'll be managing with iBiomed. The Journal entries are time stamped and easily search-able. e.g. foods, behavior logs or side effects and reactions.
5. Treatment History:
Review your treatment history of tests, supplements, diets, therapy notes, behaviors and journals. You can also edit past log entries, including test results. If the test results are numerical, you can easily differentiate between normal and abnormal values.
6. Treatment Reminder:
Treatment alerts to help you remember to administer supplements, medications tests and even Therapy sessions and medical appointments.
7. Share Treatment Information:
Share details of your treatment plan with family, health professionals, therapists or nutritionist by email. iBiomed can automatically generate an email summary of your treatment plan and treatment history by date range.
8. Supply Tracker for Rx & Supplements: Lets you know when you should reorder a prescription or Supplement.
9. Health Forum with "Smart Topic Filter" and Push notification to your mobile device: Now all your forum questions & answers can be accessed on your phone. It is also a so a great platform for parents and healthcare providers to interact.
10. Customizable Graph to track just about anything a person wants to watch closely; from symptoms to behaviors, appetite, sleep, or anything you want to track.
11. Available for online use at biomedprofile.com in January 2010. iBiomed Online Health Organizer will have all the same features of the App and much more. Go to: http://biomedprofile.com/index.php?option=com_content&view=article&id=54&Itemid=61 to Sign up to receive an email notification when the site is ready for online use.
Just around the bend...
Jul 26, 2009 by AnonymousSummer is half over and as with people nationwide concerns regarding bugdet cuts to services, inavailability of services that are supportive of our children on the spectrum and the dangers in the community that became more apparent as they get older abound. While I am sure parents overall have concerns about their children being at risk in their community this fear is exacerbated greatly when your child is often oblivious to these dangers because of social skill and comprehension deficits. In the past few weeks I have run into two friends whose teenage sons, once a part of a special needs support group which has fallen prey to the budgetary axe, both found themselves under arrest. I could debate the circumstances but suffice it to say that this is every mothers nightmare. So what do we do when the mainstream only hear about early intervention. It is as if by some misfortune parents who have not solved this exhaustive puzzle of advocating and searching for appropriate services and therapies simply no longer exist once their child falls out of that window the public eye envisions of a child on the spectrum. Beautiful doe eyed 2, 3, 4 and 5 year olds. What happens when they become 12, 13,16, 19? when insurance companies want to deem their progress insufficient and therefore not medicallly necessary? When schools have decided thier capabilities long before they max out at age 22? When they have too often become prey for others willing to exploit their disability? I lose sleep over the thought that my son will one day find himself in a compromising situation because of his inabiility to discern dangers around him, or people who would use him, hurt him.... So that is my thought for the week. How do you as educators, clinicians and parents affect change in the lives of our preteens and teens and adults with ASD so that mothers like me will not live this nightmare?