Autism Therapy: smell

definition of smell: not yet defined.

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Autism: The International Journal of Research and Practice, by Farbstein, I., Vorgraft Y., Spiegal R., and Apter A., published in 2007, summarized Oct 15, 2007

An intense, family-centered therapy may help children with autism.

This study was designed to see if therapy from the Mifne Institute in Israel could help children with autism. The method requires that a lot of time be spent with the child and the family. The authors found that the children improved in almost all areas that were measured. The areas that did not improve were the use of body, taste, smell and touch response. The authors noted that the children behaved better at the Mifne Institute than they did at home.


Some neurotypical 6th graders in Iowa had the opportunity to see, feel, and touch how their peers with autism deal with sensory issues. The school library was the scene of five sensory areas for the students to visit: sight, touch, taste, sound, and smell. For example, there was a jar filled with crushed garlic to simulate overpowering smell. In another area, kids listened to loud music with headphones while trying to carry on a conversation. “I didn’t realize how bad it is,” Leslie Pettie, 12, said,” when it was explained to her that many kids with autism feel the overload all day every day. These students have peers with autism and this exercise has helped them to be more understanding and more communicative with their fellow students.

Read original article: Sensory Simulation Helps Sixth Graders Understand, Experience Autism


Opportunity Works in Massachusetts recently purchased a Vecta Distraction Station, which is a mobile sensory integration machine. The occupational therapists who work with persons with autism and other sensory integration disorders say that the self-contained machine engages people and stimulates their senses. The Vecta Distraction Station consists of "a soothing fiber-optic color display, calming bubble columns, aromatherapy, vibrations, a mirror, music and a projector to display moving images onto a wall - all activities that awaken four of the five senses: sight, touch, smell and hearing."

Read original article.



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School Lunches for Kids with ASD

Sep 11, 2008 by Anonymous

SCHOOL LUNCHES FOR KIDS WITH ASD: DELICIOUS, HEALTHY & POSSIBLE.

THE CHALLENGE:

With only twenty minutes to eat, kids with autism spectrum disorder (ASD) should have "fast" foods that are healthy, tasty, loaded with nutrients and free of the culprits that are common problems: gluten, milk products, soy, and artificial additives and coloring. Add to the list sensory issues involving food texture, color and taste along with unusually picky appetites so common in ASD - and the task seems insurmountable. Beyond the challenges with foods are the safety issues of the food containers themselves, especially plastics containing phthalates and bisphenyl A (BPA). And of course there is the "cool" factor which affects pre-school through high school. Food that is different is totally uncool for kids who already face so many social and learning stigmas.

Knowing the challenges, we can now focus on the solutions.

THE SOLUTIONS:

Basics

As is the case with any meal, there are some basics to follow. Blood sugar control is critical. All people are affected by rapidly rising blood sugar which then cascades down too quickly and too low. The most noticeable effects are on brain function especially mood and attention. As the blood sugar drops too quickly, there can be irritability, hunger headaches, lack of focus, behavior problems, and cravings for a "quick sugar fix" which keeps the cycle going. This interferes with learning and can be disruptive to the class. Protein and fiber stabilize blood sugars. Below is a summary of the basic rules for any meal including school lunch.

Assumptions

All food suggestions are GFCF (gluten-free, casein-free). Glutens include wheat, oat, barley, rye, spelt and kamut. Milk products and milk casein include milk, yogurt, cheese, creams, ice cream, cream sauces, and butter.

Avoids

Glycemic foods which raise blood sugar (glucose) quickly include: sugars, sodas of any kind, candy, sweets, juices, and any refined grains (pretzels, bread, crackers, bagels, chips) on an empty stomach. Limit the sugars and keep the refined carbohydrates limited. If small amounts are consumed at the end of the meal, the negative effect is less.

A word on sodas - both regular and diet. They have no place in a healthy diet. They are high in phosphorus which depletes healthy nutrients. Consider them removers of electrolytes, not drink options. Water is best, but other good choices include: dilute juices, seltzer water with juice to flavor, vegetable juices (V8)

Promote Protein at every meal or snack

Choices include fish, poultry, meat, eggs, beans, nuts and seeds.

Avoids: milk products

The serving size for protein for each person is the size of the palm. A child's may be 1 to 2 ounces of meat/chicken/fish and a teen and adult may be 3 to 5 ounces. See the chart for guidelines

For beans, the serving size is two cupped palms full. See the chart for guidelines.

Fabulous Fiber at every meal

Choices include fruits, beans, nuts, seeds and grains.

Avoid: glutens

If your child eats very few vegetables, fruits, grains, nuts, seeds and beans, added fiber is important. Fiber as pure guar gum is easy to add to any recipe and also to drinks. It is GFCF and more fine than sugar, mixing completely in water or juice. See the table for fiber intake suggestions.

Favorite Foods at every meal or snack

Include at least one food that is a favorite in order to promote more interest in the meal.

Fun Meals - Part of the Cool Factor

Take a tip from the fast food marketers and include a surprise gift in the lunch. It might be a small collectible such as cars, baseball cards, characters, hair clips, stickers, or child's ring or bracelet. Home made "giftlets" (tiny gifts) are perfect.

Guidelines and Ideas

Go organic as much as possible. "USDA Organic" means the food is produced without the use of harmful pesticides, artificial fertilizers, antibiotics, growth hormones human waste, or sewage sludge, and that they were processed without ionizing radiation or food additives. Children with ASD are already coping with their own excess metabolites and really can not handle the burden of harmful chemicals in the environment and foods. The less the exposure the better. Anything you can do for your child is a benefit.

There are numerous resources for GFCF foods and recipes online and in many books. Utilize all of these to find the commercially available foods your child will eat as well as recipes that are not just GFCF, they are nutritious and delicious. Test them at home - not in the school lunch. There are GFCF juice boxes, pretzels, breads, wraps and snacks.

Establish three to five basic lunches that work. If your child is willing and interested, engage him or her in the process. Test new foods out at home until you have the food right and the combination of foods right.

Use freezer packs for keeping foods cold and thermos for hot foods. Include non-toxic hand sanitizers which are commercially available (avoid the commercial sanitizers). You can also send two paper towel pieces - one moistened with soap and one moistened with water..

Packaging - a good opportunity to Go Green!

Again - go with the marketers - jazz it up! Select a lunch container your child loves. Young children love to decorate a lunch box with stickers and paints. Make the lunch box the child's own work of art personalized with a name. Reusable containers and boxes are the green way to go. Older children will definitely want to select whatever is considered cool. The most cool may be a paper bag or small recycled bag carried in a back pack. Go with the trend and your child's own choice. There are companies who make safe, BPA-Free, safe lunch box sets with inserts for the different foods.

To avoid plastic wraps for sandwiches, use wax paper or parchment paper. Avoid containers with BPA by avoiding items with the recycle number 7. There are many BPA -Free containers which can be washed and reused. Your child will need to know to bring these back home rather than throw them away.

For napkins, use washable cloth napkins or dishcloths, or choose processed chlorine-free (PCF), post-consumer-waste (PCW) paper napkins available in stores and on line. If utensils are needed, use stainless steel appropriate to the child's skill level and age.

Nutritious Can Be Delicious - Even for the Picky Eater - The Trojan Horse Technique

Remember Odysseus from seventh grade mythology? Seeking to gain entrance into Troy, he cleverly ordered a hollow wooden horse so large that the Greek army could hide inside. What looked like a huge horse was really a disguise to conquer the city. We have used this concept for decades to hide nutritious food to nourish picky eaters.

Rather than introduce a new food in its natural form, begin by hiding a very small amount (about a tablespoon) of it as puree mixed or blended into a well-liked and well-tolerated food. This approach allows the body to accept the new food. As the child accepts the taste, include more. Children who have food texture issues are especially good candidates for blended foods because their sensory development may be younger than their chronological age. Adapt to the sensory level and return to purees until sensory issues improve. Rather than focusing on getting a child to tolerate foods that he perceives as "lumpy" or unpleasant to chew, the goal is getting a child to eat nutritious food, however you can.

Match the Color and Texture

Assume the new food is a vegetable, use organic baby food purees or make your own. Puree the new food into an established food that does not change the overall color, texture, smell, or taste. If a child eats nothing but white food, start with very light-colored vegetables including squash, cauliflower and corn. If the child likes ketchup or tomato sauce, then introduce deeper-colored vegetables such as beets, greens, peas and beans. Pureed vegetables can be beaten into batter for pancakes, muffins, brownies, and cookies or into tomato and other pasta and pizza sauces, and even into ketchup.

Mix Fruits and Vegetables

Vegetable juice makes a healthy addition to fruit juice. Try mixing carrot juice with orange juice, and then adding a teaspoon or so of another vegetable juice. Serve in a brightly colored sippy cup to camouflage any color changes. Blend pureed vegetables into cooked fruits such as applesauce or pearsauce, into meatballs, and even into nut butters. Expand ideas as tolerance improves. Be sure to carry out the Trojan Horse technique out of the sight of your child!

Muffin Casseroles

Many families have developed what we call muffin casseroles. One resourceful mother developed a GF/CF muffin for her child who ate only breads and muffins, and then gradually added fruit puree to the batter. As he tolerated fruits, she moved to vegetable purees, and finally added pureed meat. Until he was able to transition to eating foods in a traditional manner, he ate his muffin casseroles at every meal and snack-and loved them!

Increase Protein

The Trojan Horse technique is especially useful for kids who need more protein in their diets. Add eggs, especially the high-protein whites, and rice-protein powders to batters, breads, smoothies, meat sauces and meatballs. Do not add raw eggs to smoothies.

Gradually Move On

AS your child expands to eating vegetables, try vegetables dipped in honey or mayo/ketchup mix or hommus. It is a start . As a child accepts an increasing number of foods presented in a sneaky manner, eventually, he/she will accept the food alone - we promise! All it takes is patience, and a lesson from Greek mythology!

Choose one from each section. This list is GFCF. Also avoid any foods which provoke reactions or those forbidden at school (nuts for examples) or foods The "Other" section is optional.

Some Protein Choices: chicken strips, GFCF chicken nuggets w/ketchup to dip, meat slices rolled up, shrimp (send frozen, will thaw by lunch) w/seafood sauce to dip, organic "deli" chicken slices, hommus plain, on bread or crackers or as dip for veggies, muffin "pot pies", soy yogurt, egg salad, hard boiled eggs or deviled eggs, peanut butter on crackers or apples, nuts - all varieties - almonds, cashews, pecans, pistachios, hazelnuts. Hot food for thermos: chili or soups, turkey hot dogs cut up, GFCF pizza.

Some Vegetables & Fruit Choices: These can be eaten plain or dipped in GFCF sauces, ketchup or honey. Foods include: cup of vegetables, baby carrots or carrot strips, broccoli "trees", apples, bananas, berries, oranges, peaches, grapes, pineapple, melon, natural fruit cocktail in natural juice, raisins, apricots,  applesauce in cups, any blended fruit sauce.

Drink Choices: water, fruit juice, V8, V8+fruit, seltzer w/juice, fruit smoothie, other milk (soy, rice, coconut, almond), and keep drinks partially frozen so they will remain cold. 
Other: GFCF pretzels, rice crackers, baked tortilla chips, GFCF dry cereal, GFCF vegetable gummies, small GFCF cookie.

The above is an excerpt from the book The Kid-Friendly ADHD & Autism Cookbook: The Ultimate Guide to the Gluten-Free, Casein-Free Diet
by Pamela J. Compart, M.D. and Dana Laake, R.D.H., M.S., L.D.N.
Published by Fair Winds Press; November 2006;$24.95US/$32.50CAN; 978-1-59233-223-6
Copyright © 2008 Pamela J. Compart, M.D. and Dana Laake, R.D.H., M.S., L.D.N

Author Bio
Pamela J. Compart, M.D., is a developmental pediatrician in Columbia, Maryland. She combines traditional and complementary medicine approaches to the treatment of ADHD, autism, and other behavioral and developmental disorders. She is also the director of HeartLight Healing Arts, a multidisciplinary integrated holistic health care practice, providing services for children, adults, and families.

Dana Godbout Laake, R.D.H., M.S., L.D.N., is a licensed nutritionist in Kensington, Maryland. Within her practice, Dana Laake Nutrition, she provides preventive and therapeutic medical nutrition services. Her practice includes nutritional evaluation and treatment of the full spectrum of health issues affecting adults and children with special needs.


Still on my plate

Sep 30, 2007 by Anonymous

            We’ve been so busy that I just haven’t had the energy to write lately.  At night, I just want to hang out in front of the TV or escape into the world of Harry Potter for a while.

            Last week was very busy for our family.  Thomas had that video EEG on Wednesday and Thursday so he missed school those days.  He was actually very good for the test part which consisted mainly of just hanging out.  The hook-up and un-hook was very traumatic for us and Thomas especially.  Jonathan had to hold him down while the EEG technician super-glued twenty-four leads to Thomas’ head; each lead taking approximately one and a half minutes from start to finish.  It was awful.  Thomas was freaking out, and the nurse who was putting these things on Thomas seemed extremely frustrated with him.  He kept screaming “Ow!  It hurts!  Mommy, help me!”  He certainly knows how to play his mom!  The “Mommy, help me!” thing went on for quite a while.  I cried intermittently.  But the nurse, despite Thomas screaming about how much it hurt, kept telling Thomas that it didn’t hurt, there was no “ouch,” no boo-boo, etc.  I was getting mad!  How does she know how that super-glue and air-gun combo feels to Thomas?  No, there weren’t sharp needles and certainly nothing that would hurt an average person, but to Thomas, that air-gun thing and the acrid smell of the glue might have been torture. 

            During the testing part, especially after hook-up on Wednesday, Thomas was really good.  Because it was a video EEG, Thomas was on camera the whole time.  A nurse/technician was in the room with us from beginning to end making sure that the camera was pointing at Thomas every second (except in the bathroom).  He stayed on his bed most of the day and was very well-behaved.  Nice volunteers kept coming in to bring toys and movies for Thomas and he was very pleased to learn that this whole test thing included all the chocolate ice cream he could eat.  And he ate plenty.  Whenever he seemed to be getting restless or antsy, we’d run to the freezer and get a little ice cream cup.  It worked really well.  He had ice cream with every meal and for every snack.

            During the night on Wednesday was the really important time for the test since it is Thomas’ sleep problems that brought us to this point initially.  We were not allowed to give Thomas his sleep medication, so he was up until 11:30 p.m.  He got up a couple of times in the night.  He tried to crawl into my recliner at 4 a.m. but it was too small for both of us, so I got into his hospital bed with him.  We stayed there until he awoke at 6:30 a.m.  That was when his breakfast came!  Is it just me, or is 6:30 in the morning way too early for food service employees to be bringing clattering trays of lukewarm food into children’s hospital rooms?  Anyway, that’s what woke Thomas up. 

            In addition to keeping the camera trained on Thomas, the attending technician also kept a log of Thomas’ activity every few minutes or so.  When we woke up on Thursday morning, I looked at the log and noticed that the computer recorded two “events” during the night.  One was at 12:30 a.m. and the other was about two hours later.  These are obviously neurological events, so I’ll be eager to hear what the doctor has to say about them.  We have to wait two weeks for the doctor to review the test and call us back.

            While Thomas was being really good on Wednesday, Jonathan’s mom came to see him.  Thomas sat in his bed and talked for nearly two hours, nonstop.  It was exhausting for us to listen to, but it was so funny too!  Jonathan finally realized what was going on with Thomas; since he was tethered to a machine and unable to go very far, he was getting rid of all his energy through his mouth.  He would not stop, I tell you!  It was really funny and interesting.  I knew Jonathan was right…I couldn’t believe that Thomas was being as still and well-behaved as he was, yet his body had to find some way to expend the pent-up energy.  Thank goodness he decided to talk it out.

            The frustrated nurse came back again on Thursday to take the leads off Thomas’ head, and this experience was almost as horrible as putting them on.  They put mineral oil or some kind of spirits on his head to dissolve the glue (non-acetone nail polish remover, I think) and Thomas was not having any of that.  He freaked out again, but at the end of it the leads were off instead of on.  We rinsed his head and Jonathan took him to the play room down the hall while I waited (and waited and waited…why are hospitals so slow to discharge patients?) for the nurse to give me discharge instructions.  Every time I have been in the hospital, I seriously consider just walking out after the doctor gives me permission to go home.  What were we waiting for?  Thomas was not sick, not post-operative and had no wounds or dressings or fevers that needed care …why do we have to wait forever to be officially discharged? 

            Of course we didn’t just walk out.  We waited around for the very important instructions that told us that Thomas is on a “normal” and unrestricted diet (knew that) and can resume normal activity (knew that, too).  Thomas was very glad to be home and just this weekend got rid of the rest of the glue in his hair.  I’ll make sure to let everyone know about the results when we receive them.

            Thomas and Hayley had a fun weekend!  It started on Friday night when the Cubs clinched the National League Central division title!  Woo-hoo!  My sister and her fiancé came over to watch the game and we had a great time.  Saturday, my mother-in-law picked the kids up and took them to her friends’ ten-acre property for the big Hayride and Bonfire Party that they have each year for everyone’s grandkids.  Thomas and Hayley went with their cousin and Jonathan’s cousin’s son.  That meant that Jonathan and I had some time to ourselves to remember what it was like before we had kids.  We didn’t do much.  We bought a movie at Target and brought it home to watch.  We baked an apple pie and I did a lot of painting (we’re re-painting most of the rooms in our house).  Very exciting, I know.  But it was so quiet!  It was so peaceful!  Then the kids came home this afternoon just as the Bears were officially losing the game against Detroit and thus ended both the quiet and the peaceful.  Especially for Jonathan.  I never realized that a football game, either won or lost, could so greatly affect the general atmosphere in our home.  So alas!  Another week of grumbling and head-shaking.  Thanks for nothing, Bears!

            Thomas’ teacher called us yesterday.  She mentioned that Thomas is the highest functioning child in her class as far as language is concerned so she wondered if it would be okay if he spent some time in another classroom with kids who can help him learn some of the nuances of social language.  Apparently, there’s not a lot of talking amongst the kids in Thomas’ class and his teacher (and the principal, with whom this was discussed) wants to challenge him a bit more and help him really progress this year.  I was very happy to hear that from her since I’ve been a little disappointed in Thomas’ curriculum so far.  The first week was all about colors.  Great, but Thomas already knows his colors.  The next three weeks are about shapes.  I’m a little more on-board with that, since Thomas could use practice drawing shapes.  But still, he knows a lot of shapes.  I don’t really want this year to be a review for Thomas; it has to be a little more challenging so that we can really prepare him for kindergarten.  I never really understood the reasoning behind Thomas’ class-placement this year anyway.  There are no other autistic children in his class, but there are at least two kids with Down Syndrome and other varying disabilities.  I’m not sure what this means.  I know that Thomas is one of the oldest in his class, but I don’t really understand anything about why this class was chosen for Thomas.  Duh…maybe I should ask!

            So Thomas will go to spend play time in another teacher’s class just a couple of times a week at first.  Depending on his response, they may take him there more often.  I’m very interested to see how that goes and if it helps Thomas with social language skills.  His teacher said that the “demographic” in the other classroom is mostly kids with slight to moderate language delays.  I’ll make sure to let everyone know how Thomas responds to this new routine.

            I was really dreading the video EEG thing, but now that it’s over I feel like things are calming down a bit.  The first half of the week is usually a little hectic for us with Hayley’s dance class and Kid Rock.  We’ve been doing okay with the dance class so far; Jonathan has been home by 4 p.m. the last two Tuesdays in a row so my sister Tina didn’t have to come and take care of Thomas for us.  We’re having our windows replaced sometime in the next three weeks and I really want to get the air vents and ducts cleaned before winter hits, and the bedroom carpeting…I always feel like I can only have a few tasks on my mind at a time and no more than that or something will have to give.  The EEG is off my plate, but depending on the results, there’s a good chance that I’ll have to take Thomas in to see the doctor soon.  I can’t really file all of that away until I have the results, if any.  If any medical professional says the word “inconclusive” in reference to that EEG, I’ll scream.  You’ll probably be able to hear me from there.


Beyond the Mask

The walk-a-thon, Walk Now for Austism Chicago 2007 was a great success. Healing Thresholds held a booth inside Soldier Field Stadium for individuals to get on line and to cheeck out the website and to create art. Art therapist worked with the children through the creative art process of mask making.

Art therapy is an established mental health profession that uses the process of making art to improve the physical, mental, and emotional well-being of individuals. Art therapists believe that the creative process of artistic self-expression helps individuals to resolve problems, develop interpersonal skills, manage behavior, reduce stress, and increase self-esteem.

While growing up, we all have many obstacles and challenges to overcome. We can either take on these challenges and try to grow from them, or allow the challenges to  control us. These obstacles and challenges can influence who we are and who we will become. Art therapy is a way of understanding and facing the conflicts that occur in our lives.

The expression of art begin early in a child’s life as a reaction to sensory experiences.  As the child’s senses mature, his/her reationship to the environment also matures. In additon, as a child grows and learns s/he begins to understand him/herself in relation to the environment.  The milestones in a child’s life relate to the physical emotional, and cognitive perspective of development.  As a child identifies his/her own experiences and the environment, mental growth begins. A young child begins to express him/herself in constructive forms of art that are self-expressions of his/her feelings, emotions and thoughts. Through development, a child knowledge gained takes on a visual form.  By creating symbols a child can take something they have captured and tranform it to something that has meaning. Art therapist use the abstraction of art and the multisensorial experience of art to help a individual understand his/her environment and overcome or cope with the challenges in life.

We all wear masks and may wear several in the same day.  As mask makers, we wear masks that are both visual and invisible. They can hide, protect or allow us to express ourselves. The face is powerful and holds the senses of sight, sound, smell, and taste.  In addition, our emotions can be seen mostly through facial expression.

            Often masks are used in rituals, religion, culture and uniforms. Some cultures believe masks to be magical. They may symbolized or represent an animal or spiritual meaning. Overall, masks are a powerful form of art that has been around for thousands of years.

            In art therapy the process of creating and wearing masks can help an individual to explore the self.  A mask can serve as a container to be seen or unseen.  By exploring different masks allows an individual to transform from the present state to a new place.

These experiences may enable an individual to be free to express themselves or perhaps provide an emotional distance.  Masks can connect the non verbal to a visual form. 


Thomas

May 24, 2007 by dankohn

Thomas’ teacher gave him a good report, saying that he came a long way since the beginning of the year and she really enjoyed having him in class because of all the funny things he says! The speech and occupational therapists said that as well.  Thinking about it, he does say an awful lot of comical things.  It’s hard to see past the day-to-day struggles with Thomas to appreciate his inner personality, but speaking with his teachers reminded us that we need to stop and smell the flowers with Thomas, because he really is an intelligent and fun kid.  When he’s not slamming doors or stuffing his sister into the empty cabinet in his room, that is.

From: http://autism.healingthresholds.com/blog/coda93/lazy-and-busy



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