Autism Therapy: summer

definition of summer: In the Northern Hemisphere, summer is designated as the period between the summer solstice (June 21) and the autumnal equinox (September 22). Weather is usually warm and children are generally out of school. Summer activities include summer camp, swimming, and horseback riding

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Journal of Applied Behavior Analysis, by Lerman, DC, Tetreault A., Hovanetz A., Strobel M., and Garro J., published in 2008, summarized Dec 8, 2008

Special education teachers can be taught to use applied behavior analysis (ABA) techniques in the classroom.

Many teachers have very little training on evidence-based practices for children with autism. This paper describes a model program that was designed to train current teachers of children with autism. The program was intense and lasted for five days in the summer. All but one of the nine teachers in the study learned the teaching methods taught in the training. The teachers were followed in the classroom for up to six months to see if they used their training.


Clinical Case Studies, by Mrug, S., and Hodgens JB, published in 2008, summarized Aug 5, 2008

The Summer Treatment Program in Alabama has had success in teaching social skills to children with Asperger's Syndrome.

Many experts believe that social skills therapy is an important part of a therapy program for children with autism. Experts also suggest that there is a need for treatments that are intense and that mimic real life. Very few studies, however, have looked to see which types of social skills therapy works best for children with autism. This case study describes four boys with attention-deficit/hyperactivity disorder (ADHD) and Asperger Syndrome who were in the Summer Treatment Program for children with ADHD. The behavioral interventions in the program helped all four boys.


J Autism Dev Disorder, by Lopata, C., Thomeer ML, Volker MA, Nida RE, and Lee GK, published in 2008, summarized Jul 28, 2008

Summer social treatment programs that include the Skillstreaming approach may help children with autism learn social skills.

This study was designed to see if a summer program can increase the social skills of children with high-functioning autism. Both parents and staff believed that the children gained social skills from the summer program. The parents and staff also believed that the children gained adaptive skills. The results from the summer school seemed to stem from the constant feedback given to the children from the staff. The study had 54 children ages 6-13.


Focus on Autism and Other Developmental Disabilities, by Lopata, C., Thomeer ML, Volker MA, and Nida RE, published in 2006, summarized Mar 29, 2007

Summer programs that focus on social behavior therapy can be quite helpful for children with Asperger Disorder.

This study looked at a summer treatment program that was designed to improve the social behavior of 6-13 year old children with Asperger Disorder. After the summer, children showed improvement in social skills, adaptability, and atypicality. Many parents said that they found their children to be more social after the summer program. The parents also said that the children were better able to change tasks, share toys, and change routine (adaptability). The authors note that this paper reports only the very first results from the study.


iPads and video interaction has provided a means for children with autism to communicate; it may also have provided addictive behavior. Christopher Mulligan founded Groupworks West, which provides assistance when people with autism show a susceptibility to addiction to the Internet and video stimulation. He has found parents who used the technology because it helped their kids communicate, but found it also lessens their social interaction with other people. Mulligan explained one reason for increased dependence on technology, “One of the first things cut were all recreational services including summer camp. They had horseback riding, swimming – wonderful services – and cutting summer camp funding really added a lot of stress to parents. Almost all of the families I help are families where both parents are working.” The kids’ only means of stimulation and interaction are through the Internet.

Read original article: Autistic Teens and Children Struggle with Cyber Addiction


The Theatre Development Fund sponsored the second autism-friendly Broadway show – Mary Poppins. The New Amsterdam Theatre sold out within two days. Along with parents and kids with autism, there were 40 autism specialists, mainly from Hunter College and Autism Friendly Spaces to assist families. So that children were prepared, there were descriptions of the characters and song lists. There were areas where children who were fidgity or anxious could go to calm down. Children could even watch the show via live feed if the audience crowd proved too much for them. Coloring books, puzzles, and video cues were available. The next event will be a repeat of the first – The Lion King. Tickets go on sale this summer.

Read original article: Parents Cheer Autism-Friendly "Mary Poppins"


Camp Connect is a 5-week summer camp for kids on the autism spectrum. This New Hampshire camp, sponsored by Easter Seals and Works Fitness Centers, is in its 5th year of providing an experience that goes beyond a typical summer school-type environment. Camp Connect, staffed by professionals in the autism field, is focused on language development and increased social skills. Therapies used to enhance the camp experience include picture schedules, social stories, and a social skills-enhancement program called Super Flex. Easter Seals The Family Place, explains "Our approach is always positive when addressing issues that arise relative to transition, anxiety, or overwhelming circumstances. Our purpose is to assist children in learning how to handle all social situations, even those that are overwhelming for them."

Read original article: Camp Connect Helps Teach Art of Friendship


The 2011 Summer Inclusion Film Camp brought together aspiring young filmmakers with autism and film professionals. The participants spend two weeks making a short film – from creating the idea, to acting, to editing, and finally a red carpet screening. The focus of this camp is on self-confidence, creativity, and team building; no one is the star, everyone works together to make the film happen. Joey Travolta began the camp in 2007 and receives support from Futures Explored and Full Circle of Choices.

Read original article: Inclusive Red Carpet Event - Youths with Autism Screen Movie They Made at Camp



Please comment on this autism topic.

Camp Leaps and Bounds

Dec 21, 2009 by Anonymous

My son went to the summer camp, and LOVED it. He really made great progress in a number of areas, and had fun too! He's enrolled in winter camp, and very excited to start next week.


A magical vacation...

Aug 20, 2009 by Anonymous

Okay. Here goes.
We had a wonderful vacation. I can only say that now, a few days later, after I’ve been given time to ponder and reflect. I wrote a blog on the airplane home, but after reading it now a few days later, I think it was a little harsh so I’m doing a re-write. I liken it to childbirth. After the baby is out and you’re thrilled to be a parent, you don’t really remember the agony of it all. You even start thinking about when you’ll have another one.
To be honest, most of the trip was exhausting to us. We learned a lot, which is a good thing. We’ll do things a bit differently next time, whenever that turns out to be. We think the kids had a great time; at least they’re saying that they did now. They were not very well-behaved for a large portion of the vacation. In fact, Donald Duck himself had to break up a fight between Thomas and Hayley at Chef Mickey’s at the Contemporary Resort. We were suitably mortified, I can assure you. We were, needless to say, disappointed in the kids and their behavior. We had hoped that they would be magically wonderful, since every Disney employee we ran into wished us a “magical” day. Even when I called the front desk for extra towels, I was wished a “magical” evening. I should have asked for “magical” towels.
There were two main pieces of advice that we received prior to our vacation that we should not have taken as gospel truth. The first was that autistic children can improve dramatically (magically!) while at Disney World. I really thought that this would happen for Thomas, since he is one of those kids who requires more stimulation than other kids. And Disney World is sensory overload extraordinaire. I’ll just say that Thomas has never acted more autistic in his life. I was quite disappointed. I’m not saying that I thought we’d spend ten days (too long, by the way, but more on that later) in Disney World and come home with a cured boy, but I at least thought that he might be better while on vacation. He was worse. And his badness rubbed off on his sister. Hayley copped an attitude most of the time which I’m sure has nothing to do with the fact that every Disney employee who crossed her path called her “princess.” I was called princess a couple times, but I know I’m not a princess. Trust me, I know. For Hayley, the jury in her brain is still out.
The second thing that we were told to do over and over again by everybody we talked to was to take a break in the middle of the day. Go back to the room, go swimming, take a nap, have a snack, re-charge the old batteries and then go back to the parks in the evening, fresh as daisies. Here’s what happened to us: We got on the bus to go back to the hotel, and during the bus ride the kids fell asleep. We made the trek back to the hotel room where the kids, having rested quite enough on the bus, would be bouncing off the walls just as Jonathan and I wanted to curl up and take a nap. Ha! So we maybe would take them swimming or watch cartoons for a while and then head out again. So this way, the kids were great for the rest of the day but Jonathan and I were completely frazzled and every little thing the kids did wrong set us off. The grown-ups were the cranky ones by day’s end. So some of the best days we had were ones where we went all day long, taking for our “break” a sit-down meal for lunch.
Despite our “go all day long” routine, I managed to pack on twelve pounds! Yes, despite walking around in the hot and humid Florida sun, sometimes toting a child on my back, I managed to gain several pounds over the course of the ten days. I can sum it up in two words: brownie sundaes. We did the basic Disney Dining plan which included one snack, one “quick-service” (fast food) meal and one sit-down table-service meal per person per day. Both the quick-service and the sit-down meal included a dessert for adults. Well, what are you supposed to do but order the dessert and scarf it down? We’d already paid for it! Next time, we think we’ll skip the dining plan, although it was very nice not to have to budget for food which can be a very inexact science. The food was all paid for before we left so that any extra money we brought could be used for incidentals and suchlike. We actually spent very little cash because we didn’t have to pay for food while we were there.
Again, in hindsight, it was a wonderful vacation but not without its ups and downs. We thought the kids would be better than they were. At the end of the trip, we decided that the kids were still a little too young to truly appreciate what they were enjoying. I don’t mean that we expected them to sit us down, look us in the eyes and say, “Mom, Dad, we know just how great an undertaking this has been for you, we understand the cost involved and we truly appreciate everything you’re doing for us. We will always treasure this time with you in our memories.” I don’t think I’ve even said that to my own parents now, who took us all to Disney World when I was in eighth grade. I can say that I have a huge appreciation for them having done it, and I understand what kind of planning and budgeting went into it.
Also, as I hinted at before, ten days was just straight-up too long. Next time, we’ll stay for maybe a week and get better accommodations. The All-Star Movies Resort was fine, but it was clear that it was Disney’s version of the nosebleed section given its proximity to the parks and the clientele. It was rather noisy and we dealt with rude people a lot. Really, at Disney in general, it’s every family for themselves, and those who realize this sooner rather than later will have a better time in general. Jonathan and I, being pushovers, care about other people’s feelings and were shocked at some of the rudeness we witnessed.
So next time – this hypothetical “next time” – we’d stay for shorter in a better hotel, rent a car so that we weren’t constantly at the mercy of the Disney Bus System and ditch the dining plan so that we could eat (less) outside the World and probably spend less. Everything at Disney is so expensive! I read that Disney will ride a money horse until it drops and boy, was that ever true! Plus, if you do the Dining Plan, Disney’s got you – all your money and you’re never leaving the parks until they shuffle you onto the bus to the airport and drop-kick your luggage to its final destination, and they don’t really care where that might happen to be. Our bags did show up, but somewhat smashed.
So that was our trip. If you have any questions, let me know. Now, we gear up for school! Hayley had her kindergarten assessment with Mrs. H. yesterday and she did a swell job! Pre-school really paid off in that respect. After her little interview, we went and visited Thomas’ new classroom and saw his teacher again. After seeing his teacher and class again, Thomas is much more…okay…with going to first grade. Plus, I told him that I’d make him cold pizza to eat for lunch. So that was great! I feel like he’ll be okay now and that he understands he’ll be at school all day and eat lunch with his friends. He’ll get a recess which will really help him out and Mrs. H. said that he will have sensory breaks in her classroom a couple of times per day or as needed. Thomas was pleased to hear that. When we were in his new classroom, he noticed many similarities between his kindergarten room and the first grade room which made him very happy. There was a chart on the wall for the weather, lots of numbers to count the days and the old “green-yellow-red light” cards on the wall to track everyone’s behavior.
As we walked home from school, I asked him again how he felt about it. I said, “So how do you feel about first grade now? Do you think you’ll like it?” He replied, “I think it’ll be great!” I really, REALLY hope he means it! School starts next Wednesday.
I can’t wait, for my own sake. It’s been one hell of a rough summer.


Just around the bend...

Jul 26, 2009 by Anonymous

Summer is half over and as with people nationwide concerns regarding bugdet cuts to services, inavailability of services that are supportive of our children on the spectrum and the dangers in the community that became more apparent as they get older abound. While I am sure parents overall have concerns about their children being at risk in their community this fear is exacerbated greatly when your child is often oblivious to these dangers because of social skill and comprehension deficits. In the past few weeks I have run into two friends whose teenage sons, once a part of a special needs support group which has fallen prey to the budgetary axe, both found themselves under arrest. I could debate the circumstances but suffice it to say that this is every mothers nightmare. So what do we do when the mainstream only hear about early intervention. It is as if by some misfortune parents who have not solved this exhaustive puzzle of advocating and searching for appropriate services and therapies simply no longer exist once their child falls out of that window the public eye envisions of a child on the spectrum. Beautiful doe eyed 2, 3, 4 and 5 year olds. What happens when they become 12, 13,16, 19? when insurance companies want to deem their progress insufficient and therefore not medicallly necessary? When schools have decided thier capabilities long before they max out at age 22? When they have too often become prey for others willing to exploit their disability? I lose sleep over the thought that my son will one day find himself in a compromising situation because of his inabiility to discern dangers around him, or people who would use him, hurt him.... So that is my thought for the week. How do you as educators, clinicians and parents affect change in the lives of our preteens and teens and adults with ASD so that mothers like me will not live this nightmare?


Thank goodness THAT'S over!

Jul 14, 2009 by Anonymous

Bastille Day. Also, visit-the-neurologist-day. Woo-hoo.
I do not understand what it is about these children that they absolutely CANNOT shut their little mouths for FIVE MINUTES while I talk to the neurologist. They were good and well-behaved until she walked in the room and that was it! They were acting like they do when I’m on the phone: like I’m standing around, doing nothing, waiting only for them to make some request of me. I broke it down, and every minute I get to spend in this doctor’s office costs $25. I had to ask her to repeat herself more than once because the kids were acting like we were at the park instead of the doctor. Then, after I finished my disjointed and frequently interrupted conversation with her, she dropped a bomb: She wanted Thomas to have blood drawn to check his liver and kidney function, and also a CBC.
I have lost count over the past few days of how many times I have told Thomas that there would be NO SHOTS at the doctor. Technically, I was right; there were no shots. But somehow, Thomas didn’t see it that way. The doctor told us that we could just come back tomorrow or the next day so that we had time to prepare Thomas, but this hospital is a good hour away (on two expressways that are both under construction) and I decided to just bite the bullet and get the blood drawn today. What jolly fun we had! Actually, the phlebotomists thought the kids were both hilarious. Thomas sat on my lap and screamed his head off while Hayley held her hands over her ears and said, “Mommy, this is CWAZY!” When they took the needle out and slapped a bandage on his arm, they offered him stickers and he said, “But I wasn’t well-behaved! I don’t deserve stickers!” We left the lab as both techs were doubled-over laughing.
Anyway, Thomas did a lot better with the neurologist’s exercises than he did last time. He successfully completed almost all of the things she wanted him to do which is a great improvement. We decided together that he should try an increased dose of Strattera, moving him up to 18 mg from 10 mg. We’re going to stick with the current dosage of Clonidine because he hasn’t gained any weight since his last appointment, which is good. A side-effect of Strattera is weight gain, I guess.
I just wish they would behave at this doctor’s office. No matter how I threaten them or try to coax them or cajole them beforehand, NOTHING works and they’re always a pain. I wish I could see this doctor without Thomas (or Hayley) having to be with me. I guess it doesn’t work that way.
In my last blog I mentioned that I was trying to get Thomas to do some writing over the summer. We did have a successful “writer’s workshop” about a week ago. We all sat down and drew a picture and then decided what to write about it. It took a lot of waiting and asking pretty-please to get Thomas to sit down and do the thing, but once he sat down he drew a nice picture of several cars on a street and then wrote – mostly by himself! – “there are 5 people in the cars.” I was so proud of him that I wanted to scan the paper into my computer and e-mail it to his teacher. In the end, I decided to leave her alone and let her have her summer. I was so tickled that Thomas even seemed to be happy with the whole thing because of my favorable reaction. We’ll try again soon. It’s just nice to know that Thomas hasn’t forgotten how to read and write since school got out. Actually, he did a much better job than he used to do in school every day, writing most of the letters and sounding out most of the words himself.
While at the doctor, we got her to sign a letter I drafted for anybody at Disney World who might want to see it. It outlined the reasons why Thomas can’t be expected to stand in long lines or be around people for too long. Really, the reason we’re going to get the Guest Assistance Card for Thomas is not for his own comfort or our sanity. It’s more for the comfort and sanity of innocent people who might be standing near us. I shudder to think of what might happen if we encounter metal queuing-area fences. If he’s got anything in his hands to whack against the metal, there will be no survivors. Anybody in line with us will be doomed. In fact, I’ve decided that’s a good thing to say if there are any rude looks or inconsiderate comments from any other patrons in line while we move modestly up to the front. “Trust me buddy, you don’t WANT to wait in line next to this kid! Wanna read the letter from his neurologist?” I’m sure everyone will be perfectly courteous and understanding.
We’re still swimming as often as we can and trying to fill up the kid’s summer days with fun activities, but it’s hard. The weather (I know, again about the weather!) has not been consistently warm or sunny, or I have to work that evening or we have a doctor’s appointment…it’s always something. We should (God willing) be done with doctors until January, so that’s good. Well, except for the pediatrician. Hayley had a check-up last week (along with a Hepatitis A booster for Thomas…I’ve never heard so much screeching in my life) and absolutely REFUSED to pee in a cup, so we’ve got to give them a sample sometime.
I’m not fooling anyone, least of all myself. It’s never going to get done, and I’m not making a special trip to the doctor with Hayley’s urine so they can dip a stick in it and tell us that all’s well.



Please comment on summer or other autism therapy topics.

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