Many people with autism may find change hard and going to college may be a very big change that requires careful planning.
This paper was written to help colleges understand how to meet the needs of people with high-functioning autism spectrum disorders (ASD). The authors note that many people with autism also have learning disabilities. The article lists six important issues for students with autism who go to college: 1) what type and size of college; 2) can/should the student live alone; 3) when and how to tell others that the student has autism; 4) what academic support system does the student need; 5) what social support system does the student need; and 6) what can be done to help the student adjust to college.
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Living Gluten Free – Right to Heal
Feb 22, 2010 by karmic healthBy Sandi Star, CCN
After struggling for over 40 years with chronic migraines, IBS, Muscle and joint pain, fatigue, brain fog, asthma and a slew of other ailments and frustrations I decided to take a closer look at the cause rather than obsessing on the symptoms. I was tired of relying on doctors to give me answers and tired of the medications that only gave me side affects and little relief.
I had been committed to health and fitness for over 20 years, losing close to 50 pounds and 5 dress sizes, however I still had all the chronic conditions that played havoc in my life. I realized there was a key element missing and soon found out it was my reaction to gluten and dairy. I didn't know enough about food intolerance or allergies or at least put the two together. I never believed food could have such a serious impact on overall health let alone be the direct cause of my diseases. With what I know today I’m surprised my doctor didn’t put the connection together when he diagnosed me with Sjögren’s Syndrome (autoimmune disease). Sjögren’s is one of the symptoms of Celiac along with a long list as you will see below and nutrition plays a critical role in the healing process. By making the appropriate diet changes – (gluten and dairy free), I’ve managed to eliminate my migraines, IBS………etc., etc., and have the Sjögren’s Syndrome under control. Even better, I have eliminated all medications and use food and natural remedies for nutrition and overall health. Now that you know why I became a clinical nutritionist and why I started Karmic Health lets get into the details of why it’s so important to understand gluten and its relation to diseases.
Why the problem with gluten now? A lot has changed in the way we harvest food compared to 50 years ago. Some of the seed companies began engineering wheat kernels that could be more easily ground and produce fluffier flour to make the soft, delicious white bread for example had to have greater yields; it made more money for the farmer and increased sales.
Gluten is a composite of the proteins gliadin and glutenin. These exist, conjoined with starch, in the endosperms of some grass-related grains, notably wheat, rye, and barley.
Understanding what happens in the body and some of the symptoms will help millions of people who go undiagnosed. Celiac is the most common genetic disease of mankind (yet for every person diagnosed, 140 will go undiagnosed).
A wheat allergy is the body’s abnormal autoimmune response to a certain protein component of wheat; it’s exhibited by a severe sudden onset allergic reaction. Usual symptoms are immediate coughing, asthma, breathing difficulties, and/or projectile vomiting. It can cause life-threatening responses in allergic people. A true Wheat allergy affects less than 1/2 % of population.
Intolerance's are much more common than true food allergies but are harder to diagnose. Food intolerance is an adverse reaction to food that does not involve the body's immune system. Generally food intolerance is an inability to properly digest certain foods. In some cases food passes right through the body before digestion is complete.
Leaky Gut is an increase in permeability of the intestinal mucosa to luminal macromolecules, antigens, and toxins associated with inflammatory degenerative and/ or atrophic mucosa or lining. Put more simply, large spaces develop between the cells of the gut wall allowing bacteria, toxins and food to leak into the bloodstream. Leaky Gut Syndrome has also been linked with many conditions, such as: Celiac Disease, Multiple Sclerosis, Fibromyalgia, Autism, Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Eczema, Dermatitis, and Ulcerative Colitis.
Celiac disease is an autoimmune disease caused by an inappropriate immune response to dietary proteins found in wheat, rye, and barley (gluten and
gliadin). This response leads to inflammation of the small intestine and to damage and destruction of the villi that line the intestinal wall. These villi are projections (small folds) that increase the surface area of the intestine and allow nutrients, vitamins, minerals, fluids, and electrolytes to be absorbed into the body. When the villi are destroyed, the body is much less capable of absorbing food and begins to develop symptoms associated with malnutrition and malabsorption. When the body is exposed to the gluten and gliadin proteins, it forms antibodies that recognize and act against not only the grain proteins, but also against constituents of the intestinal villi. As long as the patient continues to be exposed to the proteins, he will continue to produce these autoantibodies. Celiac disease is found throughout the world but is most prevalent in those of European descent. It can affect anyone at any age and is more common in women. It is thought to be an inherited tendency that is triggered by an environmental, emotional, or physical event – although the exact mechanism is not fully understood.
According to the National Digestive Diseases Information Clearinghouse, about 5 to 15% of close family members of a celiac disease patient will also have the condition.
Symptoms
There are literally dozens, if not hundreds, of symptoms of gluten intolerance. It all comes down to inflammation in the body! Many people believe the most common symptoms are gastrointestinal in nature - yet the majority of people with gluten intolerance (and celiac disease) have extraintestinal symptoms.
The most common symptoms of celiac disease include:
• Fatigue
• Addison’s disease (hormonal disorder)
• Gastrointestinal distress (gas, bloating, diarrhea, constipation, vomiting, reflux)
• Headaches (including migraines)
• Infertility
• Mouth sores
• Weight loss/gain
• Inability to concentrate
• Moodiness/depression
• Amenorrhea/delayed menarche (menstrual cycles)
• Bone/joint/muscle pain
• Dental enamel hypoplasia (dental enamel defect)
• Short stature
• Seizures
• Tingling numbness in the legs
The “cure” is a life long gluten free diet.
Making the Transition
1. Have a reality check. Remember this is a choice! If you want to feel lousy for the rest of your life and get worse as time goes on then continue eating gluten. If you want to start on a journey to heal; go gluten free!
2. Give it time. It takes time to heal. Take the 45 day challenge.
Within this time frame you will notice the brain fog is gone. Your body will start adjusting to a healthy weight. Yes, you will lose the bloating and weight around the middle. Don’t be discouraged if it takes a little longer to feel 100%.
3. Look at your current diet and go through your pantry and refrigerator to find the foods and meals you already eat that are gluten-free. You may need to keep a food journal if you haven't already.
Be sure to list condiments, ice creams, produce, snacks, and other foods.
This list will be helpful as you create menus around your new foods and give you encouragement that you're already on the right track!
4. Give yourself permission to eat things that you may have restricted from your diet before your diagnosis. Potato chips or GF cookies may not be appropriate for other people, but they are a treat in a GF diet in small doses of course. You will need to find treats for yourself initially as you adjust to this diet. Count calories after you are comfortable with your new way of eating, manage your portions instead.
Once you are comfortable with the switch start cutting back on refined grains, crackers, breads, etc., to help the gut heal quicker. In all honesty, bread will not be that important. It's all about taking baby steps!
5. Look at your current menus and meals and find ways to eliminate gluten from your diet. Replace bread in sandwiches with GF bread or green leaf lettuce and add your favorite fixings and condiments. Have breakfast burritos with rice tortillas instead of toast and eggs. Look for GF hot and cold cereals (must not have barley malt) and have those handy for a snack or meal. Replace bread and crackers with tortilla or corn chips, brown rice cakes or popcorn. For example, chicken or tuna salad on rice cakes or scooped onto corn chips is delicious. Popcorn is a filling side dish with soup. Be on the lookout for meals on your current menus or the menus of friends and family that are naturally gluten-free (roasted chicken, baked sweet potatoes and steamed veggies, for example) and make them a staple on your new menus. Surf the internet, watch cooking shows and browse magazines for ideas and adapt them as you see fit.
6. Clear out any and all foods that have gluten, wheat, wheat flour, oats, oat flour, rye, semolina, or modified food starch from your pantry. This will allow you to see how close you are to living gluten-free already. If you have family members living with you who are not gluten free, you might consider giving the "offending edibles" to them to be put in another part of the house while you learn to live and think gluten-free. As time goes on you can cook for the entire family without gluten.
7. Plan and prepare your meals ahead of time. Being caught hungry without a plan is not a good idea! Keep a few GF soups on hand in case of extreme hunger. Keep a small cooler in your car with snacks such as nuts, dried fruit and water. It helps to outline and pack any meals you're eating at home and away from home, including snacks. An example could be -
o Breakfast: scrambled eggs and mixed vegetables rolled in a rice tortilla, sliced apples, and coffee.
o Lunch: Lettuce with turkey, avocado slices, tomato, and mustard, 1 oz. chips, and 2 organic dark chocolate pieces.
o Dinner: Grilled fish or chicken with mixed vegetables, wild rice, and fruit.
o Snacks: 1 oz. almonds and popcorn.
o Desert: Coconut Ice Cream or fruit.
Tips
1. Be patient with yourself. You'll have days when being gluten-free is really depressing (maybe even "fall off the wagon"). This is normal.
Relax – it’s a process.
2. Carry snacks with you wherever you go. It's often difficult to find an appropriate snack when the hunger strikes. GF bars are great!
3. Arrange with the hosts of gatherings you may attend to bring your own sides or complete meals. Most people are very supportive of restricted diets.
4. Carry a small cooler in your car with small cold packs to store fruit, snacks and water.
5. Consider avoiding restaurants during your transition phase as you learn how to eat and think gluten-free. Grilled meats (over a flame), baked potatoes and salads without croutons are usually safe bets. But keep a log of places you eat, what you ate and how you felt afterward. Gluten is insidious and can turn up in the oddest places (french fries, for example which can be dusted with flour).
6. Get your hands on cookbooks or start collecting your own recipes in a binder.
7. Carry digestive aids (enzyme and bioflavonoid) with you in case of accidental ingestion. There are ones specifically for gluten such as GlutenFlam by Apex Energetics; available from your healthcare practitioner.
8. Consider taking a multi-vitamin to make up for vitamins and minerals you may lack with your new diet (ask your doctor or nutritionist if necessary).
9. Find a mentor or support system.
10. Breathe
About the author: Sandi Star, CCN
Sandi is the founder of Karmic Health, specializing in nutrition related to disease where a gluten and casein (dairy) free lifestyle is crucial; working with celiac, autism and all auto immune disorders. Sandi graduated from The Natural Healing Institute with a degree in Clinical Nutrition and is continuing her studies in Clinical Herbology. She has hands on understanding of many health issues and has dedicated her life in helping others reach their optimal health.
For more information related to this article please visit www.karmic-health.com or contact Sandi Star at 760.685.3154
© Copyright Karmic Health 2010
An hour of sunshine....
Jun 26, 2009 by AnonymousFor me this has been a week of discovery, decisions and disbelief. Discovery came in the form of the realization and finalization that my son’s autism support group had indeed fallen pray to budget cuts and that no 11th hour call for restoration would be forthcoming. I admit that while I have become a very strong advocate for my son, I took comfort in knowing that reinforcements were always just a phone call away, and that his support person would always be there for me to help me find the right program, piece of information or just sit quietly on the other end of the phone while I vented. Although she was often quick to remark that I was as much a support system for her as she was for me (she herself a mother of a child with special needs) it was the knowledge that she would be there when I needed her that had gotten me through many emotionally difficult and overwhelming times. I knew that in times of crisis all I had to do was break glass! People so often take for granted the importance of emotional support from those who get truly get it, so today I feel a void and a profound loss that I had not anticipated even though I had been forewarned.
Perhaps borne out of a frenzied grasp at trying to make sense of my world and indeed to genuinely make a contribution to my community, and the ASD community at large I have decided to return to school and complete my degree. Whoaaa, easy with the applause...do not read Masters, Ph. D. or anything so lofty just yet. Read Bachelors of Science (Human Services). Many, many…(ok , to be blunt I left school mid-junior year…my son is now a junior in college, you do the math) years ago I fell on financial hard times and left school saying I would return in a semester, maybe two. Life happens. At least now I know what I want to do when I grow up.
Disbelief has come for me as it has for the world that we have lost two pop icons in one day. While you may or may not have been a fan of one or both, their contributions to music and cinema, as well as to humanity were monumental and should not be diminished. So maybe it’s just the unrelenting rain, or the overall feeling of sadness at this loss that has cast a dark pall over my day. Suffice it to say that I can only sum up this weeks blog with these thoughts…Time is too precious to wallow in negativity, regret, superiority complexes, inferiority complexes, grief, despair and pain. This week Joshua shaved almost 7 seconds off of his 50 meter freestyle meet time. Not quite Michael Phelps and no, he did not come in first place, but in my eyes he is a winner. Today the sun came out for an hour where I live (it has been raining almost nonstop all month). That’s what I want to remember about this week, the little wins and that brief moment of light and warmth. God bless you all!
Down to the wire
May 1, 2008 by AnonymousAnother week closer to summer vacation and I’m not dreading it. Unfortunately, I am still pressing the green rubber nodule for an apostrophe, but it’s become a part of my life now and I’d miss it if it changed. Or not. Anyway, Thomas was off on Monday because I thought he had a cold. I still think he had a cold, but it didn’t knock him on his cute little bottom the way it knocks adults on our large, cellulite-ridden bottoms. As soon as the time came for the bus to have picked Thomas up on Monday, I realized that he would have been fine and I was in for a very long day.
Thomas still has a runny nose, but it doesn’t bother him nearly as much as it bothers me. I’ve never been very good at dealing with a runny nose. If I see another kid with a runny nose, I have to resist the impulse to whip a Kleenex out of my bag and wipe that nose. He’s been picking a lot, too. Charming. There’s no school tomorrow for a School Improvement Day. I wonder what they do, exactly, on those days.
On Monday night, Thomas’ teacher called to let us know that the kids would be walking to a fire station on Wednesday to see the trucks and talk to the firefighters. We got to talking about Thomas, as his IEP meeting is less than a week away at this point. Really, everyone at Thomas’ school says such nice things about him! The school social worker, whom I met with today, prefaced our meeting by saying that he’s so friendly and just a happy little guy that everyone enjoys having around. She wanted me to come in and complete a standardized questionnaire-type thing about Thomas’ habits at home; what he can do, what he can’t do, disruptive behaviors and the like. I have to say that I think he scored fairly well for a regular five year-old. The social worker helped answer some of the questions that I had to think about by saying, “I’ve never seen him do that at school.” She seemed really excited about Thomas’ progress over the past two years and what we can expect of him next year.
Jonathan and I had a big argument on Monday night about Thomas. Jonathan was listening while I was on the phone with Thomas’ teacher and he was getting pretty upset about what he was hearing just on my half of the conversation. I mentioned to the teacher that I was sure that the psychologist gave Thomas an IQ test but because of that test, Thomas would most likely not qualify for the MLP classroom. Today, the social worker told me that a child has to have an IQ of less than seventy to qualify. Everyone we’ve talked to believes that Thomas’ IQ is more than seventy (including us). Jonathan feels, however, that Thomas would do much better in an MLP classroom, which is all-day kindergarten. He is worried about how Thomas will do in a regular kindergarten class with thirty kids; he’s afraid Thomas will get left behind, that the teacher won’t have the special education background or support system she will need to educate Thomas and still give the other kids the time they need. Valid concerns, all – but I think that Thomas can do it. I’m really interested to hear what Thomas’ service team has to say on Tuesday, but I think they’re going to recommend that he be in a mainstream class and I’m all for it.
I’ve been talking to Thomas a lot about kindergarten next year. I think he understands that he’ll be going to a new school and he says he’d like to make new friends. I’ve asked him how he thinks he would do in a class with a lot more kids and he says, “You know, Mommy, I think that would be good.” The more I think about it, the more I think he can do it and I don’t think I have to explain to anyone reading this that it would mean so much for us and our family if Thomas could be in a mainstream classroom for kindergarten. He would still get “resource minutes,” which are minutes set aside during Thomas’ school day when he would go get occupational therapy or speech therapy – whatever he needs. I’m very excited about the IEP meeting because I have a feeling that they are going to say a lot of great things about Thomas, and who ever tires of hearing educators extol their child’s virtues?
I just really hope that Jonathan and I can go into this meeting with a united front. My position right now is “wait and see.” Jonathan seems to think that the teachers and therapists are pushing us to accept a mainstream classroom for Thomas because of money issues within the district. I personally think that this theory is cuckoo-bananas. The argument Monday got pretty heated at times, but I had my trademark smart-mouth comments locked and loaded and those drive Jonathan just crazy. My bottom line is that I don’t think the service team would recommend anything they didn’t think Thomas could handle. And no matter what we decide next week, nothing is written in stone and we can always change our minds before next year, or two weeks into the school year or any time at all. If Thomas will be in a mainstream classroom, that would mean he’d attend our home school – and I guess I should go and register him there after all. I was kind of short with the principal, too…maybe I’d better go and volunteer for something. My mom was the PTO president of our grade school for a few years…maybe I could do something like that. Nothing to it, right?
So we’re looking forward to next Tuesday. Jonathan will be out of town all weekend on a fishing trip with his brothers and boy-cousins…they put a treehouse-esque sign on the door that says “NO GIRLS ALLOWED” all weekend. The only possible exception is any female who will cook or clean for them. I think they even rib anyone whose wife calls while they’re on this sojourn, so I’m planning on Jonathan being basically unreachable all weekend. It’s supposed to rain here all weekend too, so I don’t know what we’re going to do. Thomas loves to play tennis on the Wii…he’s really good at it, too! We’ll find some way to fill the time until Monday. They sent the gluten-free kid’s leftover snack and Tupperware home with Thomas today, so he’s got to return that on Monday anyway.