The potential benefits of a gluten-free casein-free (GFCF) diet for children with autism may not be worth the risk of poor nutrition from the restricted diet.
This author states that current studies have not shown consistent benefits of a GFCF diet for many children with autism. However, many parents currently are enthusiastic about the GFCF diet. Nutritionists think that parents should be educated about following the diet. Parents need to make sure they provide children with good overall nutrition, whether on the GFCF diet or not.









Please comment on this autism topic.
Physician Cautions Against Restrictive Diets for Autism Unless Necessary
Feb 17, 2011 by AnonymousThis is in response to Dr. Jay L. Hoecker, an emeritus consultant in Mayo Clinic’s Department of Pediatric and Adolescent Medicine, suggests that parents of children with autism should be careful when starting their child on a new diet.
What terrible advice. It is not hard to do a Gluten Free Casein Free Diet and in fact is healthier than most diets people have their children on.
It is meat, vegetables, fruits, and avoiding wheat based flours, but this doesn't mean they don't eat "grains" . It is about cooking from scratch. It means no preservatives, or colored dyes.
Calcium and Vitamin D can be achieved from Almond Milk or Rice Milk.
The added comment that "Temple Grandin's Mother didn't put her on this diet is ridiculous. I know first hand that when my daughter has "gluten" she regresses in her behaviors, her ability to concentrate and her ability to talk.
It sunds like Dr. Jay is just another doctor that would rather pump kids with drugs that go the natural healing route. Simply appalling!
Responding to gluten-free diet
Jan 3, 2011 by AnonymousRegarding the Gluten Free diet, the page continuously says to follow a gluten free diet, one must eliminate all wheat, barley, rye and oats.
In fact, Oats are completely acceptable to eat on a Gluten Free Diet. Gluten is only found in wheat, barley and rye. If oats are cut on the same machines as wheat etc. then they may be cross contaminated, but gluten free oats are definitely easy to find and very much acceptable on a gluten free diet.
The Gluten Free Diet is hard enough to understand and follow. No need to spread misinformation and make it harder....
Living Gluten Free – Right to Heal
Feb 22, 2010 by karmic healthBy Sandi Star, CCN
After struggling for over 40 years with chronic migraines, IBS, Muscle and joint pain, fatigue, brain fog, asthma and a slew of other ailments and frustrations I decided to take a closer look at the cause rather than obsessing on the symptoms. I was tired of relying on doctors to give me answers and tired of the medications that only gave me side affects and little relief.
I had been committed to health and fitness for over 20 years, losing close to 50 pounds and 5 dress sizes, however I still had all the chronic conditions that played havoc in my life. I realized there was a key element missing and soon found out it was my reaction to gluten and dairy. I didn't know enough about food intolerance or allergies or at least put the two together. I never believed food could have such a serious impact on overall health let alone be the direct cause of my diseases. With what I know today I’m surprised my doctor didn’t put the connection together when he diagnosed me with Sjögren’s Syndrome (autoimmune disease). Sjögren’s is one of the symptoms of Celiac along with a long list as you will see below and nutrition plays a critical role in the healing process. By making the appropriate diet changes – (gluten and dairy free), I’ve managed to eliminate my migraines, IBS………etc., etc., and have the Sjögren’s Syndrome under control. Even better, I have eliminated all medications and use food and natural remedies for nutrition and overall health. Now that you know why I became a clinical nutritionist and why I started Karmic Health lets get into the details of why it’s so important to understand gluten and its relation to diseases.
Why the problem with gluten now? A lot has changed in the way we harvest food compared to 50 years ago. Some of the seed companies began engineering wheat kernels that could be more easily ground and produce fluffier flour to make the soft, delicious white bread for example had to have greater yields; it made more money for the farmer and increased sales.
Gluten is a composite of the proteins gliadin and glutenin. These exist, conjoined with starch, in the endosperms of some grass-related grains, notably wheat, rye, and barley.
Understanding what happens in the body and some of the symptoms will help millions of people who go undiagnosed. Celiac is the most common genetic disease of mankind (yet for every person diagnosed, 140 will go undiagnosed).
A wheat allergy is the body’s abnormal autoimmune response to a certain protein component of wheat; it’s exhibited by a severe sudden onset allergic reaction. Usual symptoms are immediate coughing, asthma, breathing difficulties, and/or projectile vomiting. It can cause life-threatening responses in allergic people. A true Wheat allergy affects less than 1/2 % of population.
Intolerance's are much more common than true food allergies but are harder to diagnose. Food intolerance is an adverse reaction to food that does not involve the body's immune system. Generally food intolerance is an inability to properly digest certain foods. In some cases food passes right through the body before digestion is complete.
Leaky Gut is an increase in permeability of the intestinal mucosa to luminal macromolecules, antigens, and toxins associated with inflammatory degenerative and/ or atrophic mucosa or lining. Put more simply, large spaces develop between the cells of the gut wall allowing bacteria, toxins and food to leak into the bloodstream. Leaky Gut Syndrome has also been linked with many conditions, such as: Celiac Disease, Multiple Sclerosis, Fibromyalgia, Autism, Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Eczema, Dermatitis, and Ulcerative Colitis.
Celiac disease is an autoimmune disease caused by an inappropriate immune response to dietary proteins found in wheat, rye, and barley (gluten and
gliadin). This response leads to inflammation of the small intestine and to damage and destruction of the villi that line the intestinal wall. These villi are projections (small folds) that increase the surface area of the intestine and allow nutrients, vitamins, minerals, fluids, and electrolytes to be absorbed into the body. When the villi are destroyed, the body is much less capable of absorbing food and begins to develop symptoms associated with malnutrition and malabsorption. When the body is exposed to the gluten and gliadin proteins, it forms antibodies that recognize and act against not only the grain proteins, but also against constituents of the intestinal villi. As long as the patient continues to be exposed to the proteins, he will continue to produce these autoantibodies. Celiac disease is found throughout the world but is most prevalent in those of European descent. It can affect anyone at any age and is more common in women. It is thought to be an inherited tendency that is triggered by an environmental, emotional, or physical event – although the exact mechanism is not fully understood.
According to the National Digestive Diseases Information Clearinghouse, about 5 to 15% of close family members of a celiac disease patient will also have the condition.
Symptoms
There are literally dozens, if not hundreds, of symptoms of gluten intolerance. It all comes down to inflammation in the body! Many people believe the most common symptoms are gastrointestinal in nature - yet the majority of people with gluten intolerance (and celiac disease) have extraintestinal symptoms.
The most common symptoms of celiac disease include:
• Fatigue
• Addison’s disease (hormonal disorder)
• Gastrointestinal distress (gas, bloating, diarrhea, constipation, vomiting, reflux)
• Headaches (including migraines)
• Infertility
• Mouth sores
• Weight loss/gain
• Inability to concentrate
• Moodiness/depression
• Amenorrhea/delayed menarche (menstrual cycles)
• Bone/joint/muscle pain
• Dental enamel hypoplasia (dental enamel defect)
• Short stature
• Seizures
• Tingling numbness in the legs
The “cure” is a life long gluten free diet.
Making the Transition
1. Have a reality check. Remember this is a choice! If you want to feel lousy for the rest of your life and get worse as time goes on then continue eating gluten. If you want to start on a journey to heal; go gluten free!
2. Give it time. It takes time to heal. Take the 45 day challenge.
Within this time frame you will notice the brain fog is gone. Your body will start adjusting to a healthy weight. Yes, you will lose the bloating and weight around the middle. Don’t be discouraged if it takes a little longer to feel 100%.
3. Look at your current diet and go through your pantry and refrigerator to find the foods and meals you already eat that are gluten-free. You may need to keep a food journal if you haven't already.
Be sure to list condiments, ice creams, produce, snacks, and other foods.
This list will be helpful as you create menus around your new foods and give you encouragement that you're already on the right track!
4. Give yourself permission to eat things that you may have restricted from your diet before your diagnosis. Potato chips or GF cookies may not be appropriate for other people, but they are a treat in a GF diet in small doses of course. You will need to find treats for yourself initially as you adjust to this diet. Count calories after you are comfortable with your new way of eating, manage your portions instead.
Once you are comfortable with the switch start cutting back on refined grains, crackers, breads, etc., to help the gut heal quicker. In all honesty, bread will not be that important. It's all about taking baby steps!
5. Look at your current menus and meals and find ways to eliminate gluten from your diet. Replace bread in sandwiches with GF bread or green leaf lettuce and add your favorite fixings and condiments. Have breakfast burritos with rice tortillas instead of toast and eggs. Look for GF hot and cold cereals (must not have barley malt) and have those handy for a snack or meal. Replace bread and crackers with tortilla or corn chips, brown rice cakes or popcorn. For example, chicken or tuna salad on rice cakes or scooped onto corn chips is delicious. Popcorn is a filling side dish with soup. Be on the lookout for meals on your current menus or the menus of friends and family that are naturally gluten-free (roasted chicken, baked sweet potatoes and steamed veggies, for example) and make them a staple on your new menus. Surf the internet, watch cooking shows and browse magazines for ideas and adapt them as you see fit.
6. Clear out any and all foods that have gluten, wheat, wheat flour, oats, oat flour, rye, semolina, or modified food starch from your pantry. This will allow you to see how close you are to living gluten-free already. If you have family members living with you who are not gluten free, you might consider giving the "offending edibles" to them to be put in another part of the house while you learn to live and think gluten-free. As time goes on you can cook for the entire family without gluten.
7. Plan and prepare your meals ahead of time. Being caught hungry without a plan is not a good idea! Keep a few GF soups on hand in case of extreme hunger. Keep a small cooler in your car with snacks such as nuts, dried fruit and water. It helps to outline and pack any meals you're eating at home and away from home, including snacks. An example could be -
o Breakfast: scrambled eggs and mixed vegetables rolled in a rice tortilla, sliced apples, and coffee.
o Lunch: Lettuce with turkey, avocado slices, tomato, and mustard, 1 oz. chips, and 2 organic dark chocolate pieces.
o Dinner: Grilled fish or chicken with mixed vegetables, wild rice, and fruit.
o Snacks: 1 oz. almonds and popcorn.
o Desert: Coconut Ice Cream or fruit.
Tips
1. Be patient with yourself. You'll have days when being gluten-free is really depressing (maybe even "fall off the wagon"). This is normal.
Relax – it’s a process.
2. Carry snacks with you wherever you go. It's often difficult to find an appropriate snack when the hunger strikes. GF bars are great!
3. Arrange with the hosts of gatherings you may attend to bring your own sides or complete meals. Most people are very supportive of restricted diets.
4. Carry a small cooler in your car with small cold packs to store fruit, snacks and water.
5. Consider avoiding restaurants during your transition phase as you learn how to eat and think gluten-free. Grilled meats (over a flame), baked potatoes and salads without croutons are usually safe bets. But keep a log of places you eat, what you ate and how you felt afterward. Gluten is insidious and can turn up in the oddest places (french fries, for example which can be dusted with flour).
6. Get your hands on cookbooks or start collecting your own recipes in a binder.
7. Carry digestive aids (enzyme and bioflavonoid) with you in case of accidental ingestion. There are ones specifically for gluten such as GlutenFlam by Apex Energetics; available from your healthcare practitioner.
8. Consider taking a multi-vitamin to make up for vitamins and minerals you may lack with your new diet (ask your doctor or nutritionist if necessary).
9. Find a mentor or support system.
10. Breathe
About the author: Sandi Star, CCN
Sandi is the founder of Karmic Health, specializing in nutrition related to disease where a gluten and casein (dairy) free lifestyle is crucial; working with celiac, autism and all auto immune disorders. Sandi graduated from The Natural Healing Institute with a degree in Clinical Nutrition and is continuing her studies in Clinical Herbology. She has hands on understanding of many health issues and has dedicated her life in helping others reach their optimal health.
For more information related to this article please visit www.karmic-health.com or contact Sandi Star at 760.685.3154
© Copyright Karmic Health 2010
Spooktacular!
Nov 4, 2008 by dankohnIt has been a rather eventful time for us since I last wrote. The Halloween Spooktacular was a lot of fun and the kids had a good time playing the little games. I made what was surely a very tasty and attractive pumpkin spice cake with cream cheese frosting for the Cake Walk, which we struggled valiantly (and in vain) to win back. When we finally did win, we were allowed to pick only a small treat because they were only giving away the big cakes on the quarter-hour. We were bummed and all we got for our efforts were three lousy cookies. It was nice to know that my cake was one of the “good” prizes, though.
Thomas’ teacher was at the fun fair conducting the Mummy Autopsy in the Haunted Courtyard. She was really funny and had a very convincing witchy cackle. Thomas was a little freaked out at first, but he (and Hayley) finally recognized the teacher and she watered her character down a bit so as not to scare my children in particular. Thomas really seemed to enjoy all of the festivities and after we finished up at the Spooktacular, we went to Grandma’s cottage.
Thomas had a difficult time at the cottage. There were a lot more people there than he was used to (good for us pier-workers, bad for the autistic boy) and all of the noise and bustle in the house was confusing and hard for him to handle. On Saturday, when we went outside to work, he did a lot better just being in the more open space and fresh air. The weather was actually pretty great. If there’s anything worse than working on that pier, it’s working on that pier when there’s drizzle stinging your face.
Thomas really liked using the leaf-blower, which we let him do because we’re idiots (again). Actually, it wasn’t that idiotic and it helped him. The vibration of the motor and loud noise really kept him focused and he did a good job blowing the leaves into the fire. Yeah, we had a fire going too. Jonathan was supervising and Thomas and Hayley both know to stay away from fires. Hayley actually learned about fire safety in preschool (where they CONTINUE to spell her name wrong…) and runs around the house saying, “Oops! Your arm is on fire! You better stop, drop and roll!”
After we finished with the pier, we went to the little country pumpkin farm. We don’t even go to the big, commercialized pumpkin “farm” near our house anymore. You should see how much they want for a pumpkin these days! So we go to the little country pumpkin farm up north and choose pumpkins. This place is so cool…you pay on the “honor system” meaning that there is no personnel manning the check-out counter. You just figure out what you owe and put the dough in a box. They have a tiny hay-maze, a big old tractor for the kids to sit on and this year, they had a little silo filled with corn and trucks. As you can imagine, getting Thomas out of the corn was a chore, but he loved playing in it.
We came home on Sunday and started getting ready for Halloween. As is characteristic of Thomas, he was not excited about Halloween. He still didn’t want to trick-or-treat, but as the week went on, I just didn’t let it go. We kept talking about the party at school on Friday so that by the time Friday came around, he was excited about going. Hayley and I walked Thomas to school, then I went to Hayley’s school to watch her costume parade and take pictures and then I booked back to Thomas’ school to help with his party. I put on my Cleopatra costume in the hallway before entering Thomas’ room. His teacher was a very fetching Snow White and one of the other moms was a pumpkin so I wasn’t the only goofy grown-up there. Thomas did really well; he participated in the craft (a little magnetic Candy Corn with his name on it), played Pin the Nose on the Pumpkin and played Spooky Bingo. We then went on a classroom parade, going through the other, big-kid classrooms. Then it was back to the room for cupcakes and cookies, not to mention all of the candy that other kids brought to share with their chums. Then we walked to go get Hayley (I, still wearing my Cleopatra costume. And pulling the wagon…) and then we walked home. Hayley’s backpack was really heavy and I couldn’t imagine what was in there until we got home and opened it. It was full of around five pounds of snacks and candies that classmates had brought. I felt like a deadbeat because I didn’t bring anything, but it looked like the kids had more than enough. With the amount of candy they brought home, we really didn’t NEED to trick-or-treat at all. But we did. My niece Julia looked adorable in her girl’s pirate costume. The kids did a good job, except that Thomas had the same problem as last year with staying by us on the sidewalk. He was running ahead and then running back to us but sometimes he would run a little too far ahead. I know it was definitely not his fault, what with all the sugar in his little body. I would also like to take this opportunity to thank all of the parents out there who gave out pretzels and whole-wheat crackers! God bless!
When we got home from trick-or-treating on Halloween night, the kids were absolutely wired. We tried to get them to eat some form of protein – anything at all that could be considered good – and were only partially successful. Hayley chose scrambled eggs which I whipped up with the enthusiasm of a TV chef. Thomas I believe finally settled on some kind of bread product and wouldn’t be induced to eat any kind of meat. Oh well. Halloween only comes once a year, followed shortly by the holidays. But seriously, only once a year. Like Easter. And vacation. And Valentine’s Day…
We had a party for Jonathan’s birthday on Saturday. His family came over and we had a very pleasant dinner for him. Thomas was okay with the whole thing, sort of. He didn’t want anybody to have any cake, EVER. I just wish I knew what that meant. He says stuff like that, but it’s one of those things where you know he doesn’t mean what he’s saying; he means something else. I just can’t figure out what he means. I’m still working on it.
Thomas’ report card came home yesterday and it was very good. He has either mastered or is progressing as expected in most skills. He still needs more work on remember his address, phone number and birthday. He also needs to work on holding writing utensils properly, but other than that, he’s really doing well. I meant to ask his teacher if he’s being evaluated just as his classmates are or if she uses a more lenient scale for Thomas. I would like to assume that he is graded on a par with his peers, but whenever I’m in class, I can tell that she’s being a little more patient with him than she is with some of the other kids. That could just be because I’m in class or it could be because she knows that certain things are harder for Thomas. I volunteered in class today and meant to ask, but forgot. She kept me busy filing, cutting, laminating and working with certain kids on recognizing letters. I had not a moment to think!
Coming up, we have…very little. My birthday is in a few weeks and I need to think about what we’re going to do for that. I hate making these decisions. It feels like I’m trying to throw myself a party. We used to go out for birthdays, but a couple of years ago Jonathan and I decided that it’s easier with the kids and everything if we just stay in and order pizza. Well, staying in and ordering pizza evolved into staying in and hosting a dinner party and Jonathan’s birthday party was every bit as stressful and required almost as much preparation as one of the kid’s birthdays. So I’m thinking of just saying that we’ll all go to Chili’s for my birthday because I don’t want to have to do as much work for my birthday as Jonathan and I had to do for his.
One thing I will do gladly, however, is accept gifts.